I tested positive for hypothyroidism a few years after my T1D diagnosis. I don’t know what the statistics are but I’ve always thought that since T1D is an autoimmune disease, it makes sense that other autoimmune diseases are more likely to occur.
(Knocking on wood as I type this) I do not have hypothyroidism. @Terry4, I do have some other autoimmune related stuff, like eczema and mild asthma, but overall, nothing too severe.
I have one thyroid lobe (not nodules, though I have those as well) significantly smaller than the other. I questioned the doc about this having a connection with possible hypothyroidism, and she replied no.
I’m suspicious of her answer.
My Doc checks all 3, mid range on all 3. Guess I’m in the 3% (knocking on wood, “YogaO”).
My advice is to always get copies of your lab results. Doctors often fail to order more than just TSH. An enlarged thyroid with nodules may indicate Hashimoto’s Thyroiditis which may or may not impact your thyroid results. Ask for a thyroid antibodies test.
I very much agree with Cyclinglady.
I was told my levels were not low enough to treat. But after running an antibody test, it was clear I had Hashimoto’s.
I have Hashi’s (20 years). At diagnosis, I had a few small nodules and enlargement (nothing too large). Fifteen years into my diagnosis, I had thyroid swings (hypo to hyper). Those resolved along with my nodules and enlargement when I was treated for celiac disease. My thyroid is permanently damaged and I continue with thyroid replacement, but I think that calming down my autoimmune response (reducing inflammation) has been the key to my improved health. Let’s hope this prevents a LADA diagnosis!
So far I haven’t tested positive for this, my endo checks thyroid levels each blood work but didn’t want to test for antibodies. I want the antibody test and I will ask again or ask my gp next time I go there. Maybe there is a way to prevent it. My grandfather had Graves disease so I’m at risk for that too, he had no type 1 or any diabetes as far as we know. I do have thyroid symptoms such as palpitations and sweating etc. My cardiologist thought it’s an endocrine issue.
Mine is not enlarged…just that one side is normal size, while the other side is significantly smaller.
I happen to be male, T1, and was diagnosed with hypothyroidism about 5 years after my T1 diagnosis (at age… 19?)
I have the impression that hypothyroidism is more common in women, and much more common in women with T1. One reference says that 30% of women with T1, have hypothyroidism: http://journal.diabetes.org/clinicaldiabetes/v18n12000/pg38.htm
Incidentally, I have seen a fair amount of thryoid hormone marketing/educational material sent to endos, and universally all the “sales pitches” are based around women patients. All of them!
my docs test my thyroid levels regularly, since i have antibodies against my thyroid. so far i dont need to take anything, i have slightly elevated TRH but the levels my thyroid produces are still normal.
from what i know i could end up with a non functioning thyroid down the road, but this could be tomorrow or in 50 years or not at all. and since there is not way to prevent it (just like with T1) @meee there is nothing to do for me…
I still want the antibody test. I want to know because as we speak there is someone somewhere in the world trying to figure out a way to prevent it or treat it better and so on. If you know hopefully you can be better prepared to start treating if needed rather than waiting for a crisis to occur.
I was diagnosed with Hashimoto’s about 3 years after I was diagnosed with T1 (32 years ago)…however, I developed T1 on the heels of a high-speed, head on automobile accident…so I could have developed Hashimoto’s at the same time, and it was missed.
At the time, my endo put me on Synthroid…and my body didn’t like it at all. I had several side effects–like rashes, headaches, and hair falling out. When I told my Endo she said to just stop taking it and wait until I was fully hypothyroid.
Fast forward 25 years, and I discover not only am I hypothyroid, but the antibodies have destroyed my thyroid…no longer making any hormone (TSH 86) I didn’t want to go back onto synthetic medication so I did research and discovered Natural Desiccated Thyroid. I had to find a functional doctor to prescribe it, and it took awhile to find the right dosage…but it has no side effects for me and works
I read one British study that identified the Epstein-Barr virus as being a trigger for autoimmune attacks on both the isles of Langerhans cells and the thyroid.
The best reason I know to get antibodies tested and get on effective medication if necessary is that–for however long I was without any thyroid hormone in my body–stressed the adrenals significantly and caused adrenal insufficiency for me.
yeah i agree with u on that one, preparedness is key
Thanks for sharing this. I tested positive for an Epstein Barr reactivation not long after getting out of hospital from dka. I’ve had low wbc count since then too. I wonder if this is involved in my diabetes or a result of that or what role it plays. I never knew I had EB in the first place, but I’ve had periods of fatigue on and off.
Happy day, meee
From some of the literature I read while I was researching the role of “stealth infections” in autoimmune conditions, virtually, all of us have the EB virus in our systems now…the key is what opportunistic event (stress, illness, trauma, etc…mine, for example, was a high speed, head on car accident) triggers the stealth organism to prosper and proliferate… somehow, getting past the immune system that lines the gut wall and into the bloodstream where the secondary immune system tags it along with a similar cell in our body and then attacks both of them. See how that is?
Yersinia is another bacteria/parasite that is strongly connected to Hashimoto’s.
Thanks- you too I hope they figure this out eventually. I was also injured in a car accident about 1 year before I went to dka,(being a pedestrian that time) but I had symptoms long before that. That could’ve been a trigger for everything for me along with a lot of other stressful events.
In my case I was diagnosed with hypothyroid first (in 2000), after a few years of unexplained weight gain and steadily decreasing energy… I got my diabetes diagnoses in 2008.
My thyroid is regularly checked, so I suspect many folks with T1/T2 have hypothyroidism. I’m fortunate because so far I do not.
I also made the same post in groups on Facebook. It seems that more than half of those replying do have hypothyroidism.