Cycling lady, I can’t help but wonder whether you may be one of those (rare) folks who both does not test positive for any of the Type 1 antibodies plus has Type 1/LADA whose eventual need for insulin is extremely slow to develop. (Because, as mentioned previously in this thread, CD is associated more frequently with Type 1 than it is with Type 2.)
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Great point and I have been on top of it. I do know the strong connection between TD1 and celiac disease. When my FBG was high, my doctor sent a note telling me to excercise more and modify my diet. What? I was already eating gluten free! I exercise a lot for a person my age. Give up sugar? I researched and decided to try the LCHF diet after my Walmart meter suggested that I was having a problem with insulin resistance. I continued to chart my blood sugar and in a few weeks presented the information to my PCP. The diet worked! Because I have tested strangely on the celiac panel (barely positive, yet biopsies reveal Marsh Stage IIIB), we decided that I would continue the diet (eat to my meter) and not test for antibodies for type 1 at that time. It has been over two years and I have been the same (fingers crossed). My doctor told me to let him know if anything changes. I test my glucose levels less often now that I have the LCHF diet down. I am happy.
Annual labs show that I am now a non-diabetic (but I know better!). My diet is healthy. I am no longer deficient in anything (per recent labs ordered by my GI) and I take no supplements. None.
I do worry about celiac flare-ups. I strongly think (no data to support it) that a severe glutening may trigger TD1, or lupus, or RA. You name an AI diorder and it runs in my family. Hence, no eating out. I do not even know what glutened me last year. I suspect a mis-labeled GF product but have no proof.
Thanks!
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I just added the “thin and athletic” because most folks (and the media) think you need to be out of shape to be TD2. It drives me nuts!
Anyway, CD (can develop at any age) can be ruled out by taking a simple blood test.
There must be a reason for your mom being anemic.
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Probiotics might be useful, but…make sure they are certified Gluten free. GI doctors were recommending probiotics to their celiac patients but they were still sick. Turns out that more than 1/2 the brands Columbia University tested were contaminated with gluten! Google it!
This is a blog from the New York Times but you can find the study:
I take no supplements as a celiac. I get all my nutrition from food and my lab results ordered by by GI show that I am not deficient in anything! Now that I am not longer lactose intolerant (healed from CD), I eat a lot of plain yogurt and other beneficial foods.
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My glutening recovery regime? I stick to whole foods, (stewed after a glutening because eating ANYTHING can hurt to digest), drink water and rest knowing that I will be sick for a while. That means dropping everything that is not important.
Though I don’t have CD and have tested negative for quite a number of autoimmune diseases (including negative on GAD65 antibodies), I’ve wondered for some time if I am also one of those folks. My low c-peptide and relatively minimal IR (if any?) are two reasons I’ve wondered.
TBH, the more details I’ve read about you, Thas, the more I wonder the very same thing… Your “Type 2” sounds so atypical to me.
Hear hear!! That irks me to no end! I’m especially sensitive to all the commercials for T2D meds that, almost without exception, feature only overweight and obese “patients.” I have gained a fair bit of weight, but I did that after diagnosis – as a result of taking insulin and the changes no one told me I should have made along with that. Losing that weight has become a seeming monumental task, as none of the methods that have reliably worked for me no longer do. Even with that, I’m closing in on “halfway there,” knowing full well that the second “half” is a lot harder than the first!
So yah, in a way, diabetes made me fat! 
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Interesting… I was “lactose intolerant,” or at least “lactose-sensitive” before I was Dx’d with T2D; however, since managing my BG, I no longer see any real sensitivity to lactose (which I appreciate, since I do like cheese and ice cream – and now they like me back! 
).
I have both Type 1 and Celiac Disease. They appeared at exactly the same time–November, 1993. Most restaurants are difficult because of cross-contamination, though I’ve had good luck with Indian and Thai restaurants. At home my husband eats gluten-free along with me (it’s easier), so cross-contamination is not a problem… (He does eat gluten bread and baked goods, so I have my own toaster.) I’m also lactose-intolerant, thanks to the CD. I keep lactase pills on hand since they allow me to eat small amounts of lactose, which appear in many foods. I make a fine latte by using lactose-free milk and lactose-free vanilla ice cream. The possibility of accidentally eating either gluten or surprise lactose is like living with the Sword of Damacles. If I could choose between Type 1 and these belly problems, I’d take the diabetes.
I find the above paragraph interesting–even exciting. Thanks.
If my daughter were to develop CD (G-d forbid) I would make our entire home gluten-free because I’ve heard how easily cross-contamination can occur.
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Rgcainmd, with time and practice, keeping a gluten-free home becomes routine. The worst part, along the way one becomes totally obsessed, really OCD! Eating out is another matter; a sense of humor helps.
Many celiacs are temporarily lactose intolerant (unless they already have a genetic predisposition to being lactose intolerant which includes a big chunk of the world’s population). The enzymes to digest lactose are usually released from the intestinal villi tips. Once healed, a celiac can digest lactose again.
Yep, our house is gluten free. Two celiacs against one! Everyone needs a safe place to let down their guard. It is possible to live in a shared household, but it takes a lot of training.
I’m type 1 and I’m still not sure if I have celiac or gluten sensitivity. My endoscopy showed chronic inflammation in my stomach and esophagus but the mucosa in the duodenum was ok. My blood tests have been neg. This could be because I was eating gluten light starting 6 months after type 1 diagnosis. Now I’m trying to eat avoiding cross contamination in a non gluten free house. I’m not even sure if I’m doing enough but I seem to be improving a bit.
I don’t know what is going on but the last 3-4 months have been really, really awful… I have lost 14 lbs, pain, bloating, nausea, bg crashing when I eat and so on… not able to eat much at all, high bg/ketones… all of that is settling a bit now finally but things are still not good by any means. I’m eating small meals still, low carb and able to add non ground food back in now, fingers crossed.
I ate some cheese that was on a gluten containing muffin of sorts at starbucks, not eating the muffin and I got diarrhea after and more upset which is what happened in the hospital when I ate gluten by accident. So I’m assuming whatever it is it is best for me to totally avoid it.
I also have osteoporosis now, low vit D, hyperparathyroid and other things going on, hashimotos.
I had to chuckle that the peanut butter with the gluten muffin was gluten free… lol… wtf? Why not give us a gf muffin/scone too. I know I shouldn’t have eaten that cheese but I was starving and I hardly ever eat out anyway due to type 1 /hashimotos now and not knowing what is in the food/ trusting the restaurants etc.
I am sorry that you got glutened! My tip is that I never leave home without a sturdy zip-locked bag of certified GF snacks in my purse (nuts, bars, applesauce). Avoiding gluten when you are starving is more important than adhering to low carb. I also keep spoons stashed everywhere. I can always find a banana (no need to wash) and yogurt at a grocery store. I have over six ice chests and a few “cute” little coolers. I have even eaten my own lunch in restaurants when I know they can not provide me a safe meal. No one has ever challenged me. Of course, I always order a drink and I am usually with friends who are dining. 
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I have both T1D and celiac disease. I would chose CD over T1D without hesitation.
That’s right. It’s a major problem for me. I would like to eat less carbs, but I don’t want to lose weight. My BMI would drop below 18.5 immediately if I started eating less.
LCHF means low carbs and high fats. Fats replace carbs. So, weight loss should not be an issue because there is no reduction in calories. But if that is not your thing, then choose naturally GF whole foods carbs like squash, sweet potatoes, rice, etc. Gluten free PROCESSED JUNK foods are often higher in carbs (cakes, cookies, potato chips, etc.).
I’ve recently begun to bake all my own bread, cookies, pizza crust, and so on. One reason is because it’s difficult to find WF/GF foods that don’t contain ingredients I’m allergic to, and the other reason is because the foods I could find were very high in carbohydrates, and I’ve recently been trying to eat a LCHF diet. It is not that hard, and is SO much healthier (and cheaper).
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