Hospital stay nurse refused to administer insulin all night

So I was wondering wondering what everyone one else thinks about this. Saturday night I was admitted into the biggest hospital in the area for an infection due to a 2 week prior partial kidney surgery removal at the same hospital.

So the first night i’m there I decide to eat a light dinner, toast and eggs and coffee which they gave me 6 units of insulin for. Hospital will not let you bring your own own insulin and as a matter of fact security takes it from you as you are admitted. Around 7PM the nurse on duty checked my blood sugar and it was 98, which coincided with my Dexcom. At 10PM there was a different nurse on duty and I told her I needed long term insulin before I went to sleep. This was ignored. At 11PM my sugar was slowly creeping up (according to my CGM) to about 115 and again I told her I needed my long term insulin. This still went ignored. Somewhere between midnight and 1AM Dexcom indicated it was around 190 and I again requested insulin and the nurse responded with “you’re not getting any damn insulin, shut up about it”. I knew it would continue to climb all night so I kept my phone on, put it on its stand thinking when she came into the room she would see it. She came into the room a few times to check the IV, by that time my sugar was well in the 300’s, she did nothing about it and did not check my blood sugar once throughout the night. By morning it was 389 (which she still did nothing about), finally at 9AM another nurse came on duty, gave me 12 units of short term insulin at which point I had enough and I demanded to be released.

Is there anything I can/should do about this? I feel this nurse was not just neglectful but that it was intentional.

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File a complaint with the hospital administration is pretty much all you can do and perhaps whomever reviews your complaint may be able to initiate a better policy for the future. The only other way to effect possible change is to take your story to the media.

I am not sure what you are trying to get out of this. Whatever you do, will cost you time and possibly money and at best case will help future patients in your position. How seriously both the hospital and media take your complaint will most likely depend on how well written and concise you can make your claim.

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I’ve had a couple of cranky/inept nurses from time to time (most are very good at their job, in my experience) but never have I had one talk to me like that. It boggles my brain that she said that. It would have been sweet if you could have recorded that convo, for playback with the administration.

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I always have my insulin in my pocket in hospital or have it bought in. I refuse to let anyone else manage my diabetes. Did you ask to speak to the treating doctor? The comment dave quoted above from you sounds like something out of a horror film.

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What’s weird is that these rules vary so much across institutions. It seems like something that’s changing—in recent discussions on this topic a lot of people report hospitals being much more accommodating, but as in your case it obviously still persists.

Some googling turned up NIH guidelines of relatively recent vintage about self-administration of insulin in the hospital setting. The document implies that hospitals have concocted their own policies about it—there’s no universal rule, and some don’t have a stated policy at all. But the authors’ opinion is very strongly in favor of allowing it, though there are a lot of caveats about determining the patient’s ability to manage their own dosing, use of personal vs hospital BG testing equipment, and the like. The description of the problem is right on:

Each year people with diabetes account for millions of inpatient days. Many of those patients are on insulin therapy having successfully managed their diabetes in the outpatient setting. Once admitted to the hospital, most have their diabetes care taken over by the admitting team. Patients’ knowledge of their diabetes care may be ignored or not assessed. Outpatient physiologic insulin regimens are often replaced with sliding scale insulin given only when blood glucoses are elevated. This has lead well-controlled patients to experience diabetic ketoacidosis or hyperglycemic crisis.

That sliding-scale crap is what I ran into when I was in for an extended stay after abdominal surgery about 15 years ago. Had to kick up a major fuss to get around it.

So…

Patients with the knowledge and physical ability should be allowed to self-manage when possible; these are often patients with type 1 and type 2 diabetes well controlled on basal bolus insulin as an outpatient. Patients self-managing their diabetes may have the best ability to ensure appropriate coordination of blood glucose monitoring, insulin administration, and consumption of nutrition.

But:

For inpatient self-management to be effective and safe, a hospital policy must be in place and the patient must agree to follow the policy. Documentation of what the patient is allowed to do (by provider order) and what the patient is actually doing (by nursing notes) is vital to keep a clear record and determine changes needed in care. Because policies requiring the use of hospital meters and/or nursing to store insulin may be a barrier to the patient effectively coordinating care, guidelines with the minimal number of blood glucose tests using hospital meter and nursing documentation of patient administration of insulin along with defined policies with patient agreement allow for patient flexibility while covering liability.

As that indicates, the hospital’s liability has driven the more restrictive policies, and that kind of thing can be so deeply baked into the institutional culture that it’s difficult to root out, hence the wide range of experiences people have reported here on TUD. Nevertheless, the authors, examining the data on allowing self-admin, come to the right conclusions:

The primary team or a diabetes specialist must be involved in the ongoing diabetes care in collaboration with the patient. Patients often know more about their diabetes and insulin management than nursing and medical staff and must be involved in their own care with guidance from knowledgeable providers. Such collaboration has been demonstrated to be effective in the outpatient setting

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So sorry you had to go through this. I suggest complaining both to your own physician and the hospital. When you have to check yourself out of a hospital because they refuse to provide safe medical care it’s worth making a stink over! Depending on how confrontational you are you might consider taking the story to a local paper if you don’t get at the very least an apology and a promise that they will look at their procedures.

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I’d rather go to the administration than go public. No one likes people who run to the media for every issue in their life.

I agree that going to the administration is the best first step. But if a hospital administration refuses to take the complaint seriously then the administration may need a reminder that they too can suffer consequences,

I’ve stayed at 4 hospitals in my area. I’ve never had a non-responsive admin if I had something to bring up, which has occurred maybe 3-4 times (I’ve stayed in hospitals for surgeries about 8 times, and other surgeries were done in surgery centers which means no overnite stay. In and out! :slight_smile:

How did you handle insulin in prior stay?

Generally, nurses can only follow orders. Need admitting dr, hospitalist, or own dr (associated w/hospital), to make orders regarding insulin.
I recently had 3 day hospital stay, admitted via ER. Hospitalist was in my room within 3 hours, and insulin was agreed to be managed by me, and allowed to use pump and cgms.

Several years ago, during more major surgery, I had to get endo involved, and the endo office had to have their on call dr visit me each day, and document I was still capable to continue my own care (with pump).

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Yeah, it is so frustrating when your requests are ignored. But nurses really can only follow orders written in the chart. So that is where I would put my foot down and demand to see endo on call. When I was in observation overnight, they wanted to pull my pump. I said no way and asked for the endo. I got a CDE and we worked it through, that I had control. If that hadn’t happened, I would have made them call my doctor who would have changed the orders in my chart. Sometimes you really have to push and push hard. So sorry it was not the care you had hoped for. I hope your recovery is quick and easy now that you are home!

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Like I said, 2 weeks ago I was there for major surgery (had a kidney tumor removed) and was there for 3 days. During that time my blood sugar was checked every 4 hours and they administered both short term and long term insulin. My level never went over 200. This time no long term insulin and no check for over 12 hours. My insulin needs were obviously documented in their system.

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It would make sense that they could have leveraged that information. If you mentioned that to them, they would still need orders to follow it from your doctor in charge. The nurse could have let you know who was controlling the orders. Never assume.

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What are you saying? In 2 weeks they figured my insulin needs had changed and no longer required long term insulin and that my bg no longer needed to be checked?

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@Baddog40 I have a feeling it wouldn’t matter what was written in the past history as things can change with each visit. I think they probably have to have orders for each time for liability issues.

What an awful experience. I wonder if it would have helped to try to ask for a person higher up? Because it sounds like the nurse wasn’t even trying to find out or she wasn’t communicating that to you. I would get so frustrated watching my levels going up and me not being able to do something and them not even paying attention to the possible consequences.

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Wow - what a terrible experience. Sorry you had to deal with it.

I see two separate issues. The first is the hospital’s policy which I think most of us agree is ridiculous for someone with experience that successfully treats their own diabetes, But as @DrBB points out, standards vary with institutions,

But despite the policy, if followed correctly, it wouldn’t have landed you with such severe high blood sugar. In my mind the target of your action (if any) should be that nurse. Perhaps you could write a letter to the hospital about your experience and demand an explanation. Don’t just file a complaint, make them justify their actions. Keep following up until you get an answer. Or better yet, get your physician to do it (although in my experience health care providers almost never criticize one of their own).

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I would complain to the ombudsman of the hospital. It is literally their job to handle stuff like this. I would also tell my primary care physician and endo… and ensure that next time I went to the hospital, this wouldn’t happen again. That is ridiculous!

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Sounds like a bunch of bullsh!t to me. Bad news bears. Someone may need to sneak in insulin if that happens again. Make a plan. Be prepared.

Here’s the Bernstien letter:

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If that ever happens again, ask them 1.) to document your request and their refusal to administer the insulin in the chart, and 2.) to contact the physician on call (usually a resident) with your request, and if they refuse, to document their refusal to do that. If you have your phone on you, record yourself/send a voice memo to someone else recording your asking for them to do that. They won’t like that, but they will probably take action, because they will not want to document all that refusing to do anything in your chart, because then they are in major trouble if something goes wrong.

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So sick. But no surprise to me. This nurse has a record and reputation already, I am willing to bet.

File a complaint.

If you are ever in this situation again, get out to the nurses desk and demand attention.