How long before DX did you start showing symptoms

I had a good friend whose son (6 or 7 yo at the time) was taken to the ER with bgs somewhere in the neighborhood of 2100. The docs were amazed he was alive at all. Remarkably, there are some kids who seem to survive these excessively high bgs, at least for a short while.

Ok, now there’s definitely a reason to say the dm, which was blindingly apparent at that point, got ignored! If it was the same doc as back in 2007, I’d strongly consider reporting him to the medical licensing board, so his license can be reviewed and he can be reminded of his responsibilities to his patients.

Then again, I can’t say much. I didn’t report the doc I was seeing for potential medical malpractice though he was ignoring post prandial highs that were in excess of 220 and were fairly consistent. He felt that just as long as I have a good A1c (below 7), any highs could be ignored.

Don’t be me!

I can’t quote the studies, but the reason they changed the diagnostic cutoff was because they determined that complications start to happen in those with a fasting BG in the 120’s and up. I highly agree with the goal of preventing complications – many Type 2’s are diagnosed with complications already present because their fasting BGs have only been mildly high (or not high at all) – the fasting BG is the last to go high, and doctors don’t usually do postprandial tests, or glucose tolerance tests.

In 1991, I had lab BGs of 138 and 131 3 months apart. It would be diagnosable now, but not then. 2 months later, I had an A1c of 4.8, so my doc said I was just hyperglycemic, and that was the end of that.



The following year, August 1992, I had a coronary artery spasm, which landed me in the hospital – the BG at the time was 160, so they said “probable NIDDM” (old term for Type 2).



Well, then I started having symptoms, like being thirsty all the time, and needing to pee all the time. I was teaching school, and had to have a sip of water between each sentence, and cross my legs before the end of the period when I would run to the restroom to pee.



Well, in the fall of 1993, my GP decided it actually WAS diabetes, and sent me to an endo, who put me on Glucotrol, which did absolutely nothing at all – my BGs kept going up and up, and I was, needless to say, very frustrated.



Finally about 18 months after the artery spasm, in May, 1994, I finally asked to go on insulin – it took a long trip through several unsatisfactory plans – NPH at night only, 70/30, mixed doses of R and N, and finally Humalog as needed which did work.



Now I’m 12 years out on a pump, and couldn’t be happier – I finally feel like I have my life back.

about seven weeks. i remember the very first sign that something was wrong - it was one of the hottest summer holidays, but i suddenly got very cold + ran in and put a hoody & fell on the sofa. i then remember getting this very sudden urge to drink lots - the only memory is that i asked for a ribena in a shop in town, and by the time we crossed the road to get the bus i desperately needed another drink. i was in & out of the toilet constantly. i remember not feeling right for a number of weeks before the symptoms exploded, i heard my mum & dad talking about diabetes + asked if it could be that (considering i was nine and didn’t know what it was) and my dad joked and said it could be nothing like that. my mum and dad were taking me to the doctor several times a week during & after that + they still kept insisting that i had a virus, despite by this time i was losing a very big amount of weight, i was drinking and it was coming straight up again, i was in and out of conciousness. i remember the last visit to the doctor - ‘we don’t know whats wrong with her, what do you want us to do’ - by the time i got home from that visit i honestly had no idea what was going on, but i needed the toilet desperately again, but didn’t even make it through the front door before i passed out, which i don’t recall at all, but my mum insisted i did. the paramedics did my BS of 340, and the nurse toook one look at me and said she was 95% i was diabetic. i don’t recall any symptoms leading up to that summer holiday at all, the only thing that really affected me & that there was no reason for was that i was infact, FAT & i remember about a year before for about 2 weeks i had very very bad headaches that made me cry for hours. we’d never suspected diabetes at all, none of my family have it apart from type 2, and we believe i developed it from a very bad case of pneumonia & chest infections in my younger years. i had a very bad reaction to milk when i was young, but whether that has anything to do with it i’m not sure :frowning: <3

You know it’s kind of hard to say. Definitely a week before I had crazy things going on with my vision, but I think I had increasing symptoms for a while. I was on another medication that had some side effects like thirstiness, and I was tired all the time because that’s what moms with small kids are, so I had no idea anything was wrong. I went to the doctor so she could have a look at what seemed like a stye in my eyelid (rare thing for me), and then boom! They found out my bg was at dangerously high levels and I was put on insulin immediately. A week later the blood tests came back positive for Type 1.

Small children bundles of oy stress and destruction. Wearing parents out since time began. I just remember being so weak that I was getting off the sofa to feed and change mine, no energy to play with them.

In 2007 I had blurry eyesight and my wife said I had become a real jackass . I went to the eye dr. and he was the one that told me it may be linked to blood sugar levels. So I went out and bought a meter…first reading 490. Quack dr. I went to only ran an A1C(12.3) and said I was type 2 and gave me some Metformin. well that did nothing at all. That was in 2007. I did get a new dr. but he was also convinced I was type 2 as well. but he put me on injections. I have never taken this condition seriously until 2 weeks ago I was in ICU all weekend when I went into DKA. I almost got to the ER to late as I thought it was the FLU. My eyes have been opened, and I have good Endocrinologist in my corner as well. My insulin pump ships on Monday. I am not to excited about the CGM as I felt like I got harpooned when the nurse put the Paradigm IPro in on Friday.

I have learned alot from Tudiabetes over the past couple of weeks and am grateful for a community like this.

Ooh, that is rough. Luckily mine were already feeding themselves and toilet trained by the time I was diagnosed. I can’t imagine what I would have done if I had T1 and was nursing…!

Hope to be on the pump by February

All of the typical symptoms for DB were masked over by lifes events in my case.

In Dec 2005 I had a kidney stone attack, bad… Hospital, surgury the whole 9 yards, back then I swore I would never go through that again so in 2006 I started to drink 1 gallon of water daily. I was never thirsty after that but was constantly going to the bathroom which was fine by me, I figured I would flush the little bastards away.

In 2008 (while still drinking a gallon a day) I started working out so the loss of weight that I did experience I contributed to the fact that I was bulking up.

I never get dry mouth except when put in a stressful situation very quickly. For me that would be pulling up to a fully involved structure fire being tasked with pulling off 5" line and doing a hydrant hook up where it is a race of time. Or going in masked up, all hell breaking loose, stressful. In those cases my mouth gets bone dry.

Not sure of the other symptoms, I dont think I experienced them though.