My gad-65 test came back. I wanted to share the results, and I need your support a little wowed right now.
GLUTAMATE DECARBOXYLASE 65 AB >30.0 normal <=1.0 - u/ml flagged H
So here I am. I suspected it, but actually seeing it wow.
My gad-65 test came back. I wanted to share the results, and I need your support a little wowed right now.
GLUTAMATE DECARBOXYLASE 65 AB >30.0 normal <=1.0 - u/ml flagged H
So here I am. I suspected it, but actually seeing it wow.
So I presume that your reading was higher than 30. That would pretty much indicate you have T1 (LADA). I’m sorry. None of us ever wants to hear that another of our community has been diagnosed with T1. But keep everything in context, life “is what it is” and knowing is far better than not knowing. Today, we are quite fortunate, modern therapies mean that with good attention, you can live a long happy and healthy life. And while learning that you have T1 is not good news, you are fortunate to learn now, to learn early and have an opportunity for treatment that can give you the best prospects in your future care.
So keep your spirits up. Remind yourself that you will be “ok.” You aren’t lost, but in fact are finding your way. And most of all, you aren’t alone.
Thanks BSC. I have a question knowing this, do I need to have all three of my children tested? I am a nervous wreck about this.
Don’t test your children. Keep in mind that type 2 has a broader genetic link and what would you test? Simply being GAD positive means nothing, only when you are diabetic does it confirm T1. You know about diabetes, if any of your kids ever have a problem, you will notice it. I know that you never want anything bad to happen to your kids, but life happens. It will be what it will be.
Hi Stardust: I told you “welcome” in the LADA group, and am now welcoming you here, too! It is good that you got the antibody testing, which confirms that you have Type 1 autoimmune diabetes. As Brian (BSC) says, it is good to know. Also, doing intensive insulin therapy can prolong your honeymoon period (make the few remaining beta cells not yet knocked out by immune-mediated destruction keep producing some insulin). Good for you for persisting and getting answers!
YOU CAN DO THIS!!! Your strong and welcome!!!
a hug and a welcome <3
Glad that you quickly got a correct diagnosis! I too am LADA. Many people fight for a correct diagnosis for years. You can do this! Seems like you have been doing great so far, know it’s overwhelming but you are not alone here
Ahh thanks guys! I am in the shock phase. Or you could say that I am having trouble dealing with the fact that I will have to keep doing MDI forever. That part is the hard part, and I have only been doing them for 1month and already I am just overwhelmed.
Already on insulin since last month. Well that is I was not NPh and Glipizide(oh yeah cuz that is good for me wink) and metformin. but then my BS kept spiking to 339, or 245 and so on so, my endo decided to put me on the novolog and the lantus.
Hi Stardust … by the way, love that name … I am sorry about your diagnosis. Knowledge is power and the best advice I can give is learn all you can. I know that no matter how much insulin I take, honey makes my b/s spike bad!!! There is a quote that inspires me, “Imperfections are inspiration in disguise.” Diabetes can be tough, no matter how long you have had it. The carb counting, the lows and highs, the injections but remember you’re not alone! This is a great website and I’m glad you found it. WELCOME If you ever have any questions or just want to chat you have a friend here Take care!!!
Thank you so much needing all of this right now. I didn’t really think this would affect me so much I just didn’t. It is ridiculous because it is not like I’m dying, it’s treatable and yet I have taken a nose dive, never thought I would feel this way.
I will never forget the over whelming feeling when I found out that I was a type 1 diabetic. Yes, it’s treatable and no, you’re not dying BUT you were hit hard with a big diagnosis. Everyone deals with diabetes in their own way. Some start out good and then 4 years later they get burnt out. Others take it hard and then as time goes on they get better … to each his own … the important thing is when you can’t take it day by day, take it step by step Hang in there, no one is perfect! There will be days that you just don’t want to count carbs or deal with having diabetes, your b/s levels may not always be “good” and there will be days that you feel on top of the world. Anything you go through or feel most likely someone else has been there and done that. You have a family on here! We love you and wish you all the best!!! God Bless Stardust!
Thanks again Amber. It’s funny to me how my mom who has type2 actually took it harder at first. I mean really bad. I was like oh it’s okay yada, yada, yada… Now I am like oh my this is for real, I’m not waking up from this dream. I will be okay I have all of you and my family. It will just take time I think to say okay so here we go. I’m scared of the pump because I have head how ports get infected and so on, but on the same token I can’t fathom doing MDI either. oh bah.
I can tell you why your mom took it so hard. I’m a Type 1 from 73 ok? My daughter took Type 1 in 99. I blamed myself for many years for her having diabetes til one day she looked at me and said “Moma it’s not your fault I got diabetes.” No sweeter words have I ever heard. She let me be rid of all that blame I put on myself for 11 years.
So in short what I’m trying to say is maybe she blames herself for you getting Type 1. Just a thought.
Could be. I told her the same thing. For her I think just knowing that I am having to do shots and all of that I think she has a really hard time dealing with the fact that for the past 5 almost 6 years we thought I was type2. So I think she was just shocked. Thank you for sharing, it always good to get a mom’s opinion. I know I would feel the same way as she does if any of my children got this.
Hi Stardust. Perhaps not MDI forever. Now there are pumps, and I’m sure that research will bring even better options with time. Keep yourself in good condition so that you’ll be able to take advantage of future progress. As Doris said, Yes, you can do this.
Yeah I know. My endo was quick to point out that I am still producing insulin 1.4 was my c-pep result, so I doubt that she would recommend a pump so long as I am controlled. I would like the omipod cordless but like I said she can’t prove that I am medically in need of one. At least that is what I presume.
It really throws you for a curve when you find out about your child! Just tell her you love her and she’s not the blame maybe that will help her out.