Is there any truth or is it a fantasy?

I thought I would pose this question after reading this article wondering how much truth is really in it, especially thinking it would have come to light if it was true on these forums.
http://www.trueactivist.com/first-patient-in-diabetes-trial-is-now-diabetes-free/?utm_source=fb&utm_medium=fb&utm_campaign=antimedia.

The problem I have with the term “cure” is that it has a medical definition and that is that it is a “restoration of health.” The problem with these transplants is that while they can restore beta cell function they don’t restore health. Most people with T1 have suffered an autoimmune attack and are vulnerable to a recurrence. The more appropriate term would be “remission.”

And various techniques have been tried and made available over the years to transplant beta cells into patients and there have been many reports of patients being able to go off insulin overnight. Unfortunately for the vast majority of patients those transplants fail after just a few years.

Dr. Ricordi came here a little over three years ago to talk about this research

So while this article is “true” it has to take in context. This is good news but not the first time someone has gotten a beta cell transplant and gone of insulin. And second it has not been shown to be a cure, it should be considered a remission.

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I deleted the cure from the heading. In retrospect I have heard many times about transplants and the addition of a surgically implanted membrane which would stop the body from attacking the implanted islets of Langerhans. I’m sure if these proved successful most of us would have already have been through the procedure.

I didn’t mean to criticize you, rather that we have to be diligent about the press and popular opinion. We have so many people saying that they have a cure for diabetes. I hate when I am told there is a cure and it really isn’t one.

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While yes being on drugs to keep the cells safe might not be a cure in the true sense of a cure, but it is so exciting to see progress being made. For most of my life, I felt I would never see a cure. Now I am thinking it might happen. Not sure how happy I would be switching from one treatment plan to another but I do believe this can make us hopeful. And that is why I continue to volunteer for clinical trials. I think I need to help move this along.

It appears it worked effectively back in the fall of 2015 and I think we would all agree it was a very effective concept, to inject the cells in a different way. However, there have been no updates since then. I’ve known a couple of people that had islet transplants the old way and they worked great for a few months, then gradually started dying off again. So the test is whether she is still insulin-free after a year or so. Wish they would update us on her progress, but if it hasn’t gone well they likely won’t.

http://www.diabetesresearch.org/BioHub
The video states one of the patients who had a islet transplant has been insulin free for over a decade. Like all of us I am optimistic about what the future holds, but I’m not holding my breath and will continue along the path of dealing with the trials life throws in from of me. Sally I have not been successful in being allowed to participate in any clinical trials yet. I hope you are allowed in and that it is a life changing event for the better for you. Best wishes

I’d never transplant my pancreas. Cos it’s MINE even if it’s dead It’s MINE anyway :stuck_out_tongue_closed_eyes:

Technically it’s not - just your beta cells, the rest of your pancreas is working to help you digest food. You can live without a pancreas entirely, but that opens up a whole new problem regarding the lack of digestive enzymes. Even a transplant isn’t fully a “cure” considering you’re now on anti-rejection meds for the rest of your life and those come with their own issues and side effects.

Yep, whenever people say their pancreas is “dead” I sort of cringe and in my mind go, “No, it’s not.” (I’ve known someone whose pancreas really didn’t work, and they were on a lot more medications than just insulin every time they ate.) In diabetes, only 1-2% of your pancreas is damaged, the reast is working just fine.

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I am curious of your take on this…Dr. Faustman’s findings.

Thanks for pointing that out! I have had pancreatitis and it has taught me a whole new appreciation for the job a pancreas does outside of insulin synthesis! Plus, the idea of walking around with a presumably ‘dead’ organ is just gross!:mask: