First: Thank you, thank you, thank you for all the wonderful help so far. I promise to stop soon - but finding this forum has been such a great help.
I’m trying to get lots of info for V’s hospital stay next week. I’m afraid that if I ask my questions of the doc or dietitian I will just be told that we can’t do what I want or don’t need to worry about. My feeling is they would like to give him a schedule, a diet, the amount of insulin he should use for it and send him on his way - no deviations allowed.
I realize that we will not be having the same lifestyle that we had before, but we’d like to get as close to it as possible. (As in, not spending the afternoon at the shore sipping rose wine, but being able to have a glass with lunch)
I have read, here and elsewhere, about the importance of A1c (is that right) numbers/test. I haven’t been able to determine how/what? Is this a test that you do yourself? Is it a blood test the doc/lab does? How often is it done?
How important is meal timing? I know testing is important, and I know long periods with out food is bad. Here’s our schedule - roughly
8am breakfast, work; 1pm lunch, work; 7:30pm snack, relax/(tv time); 9pm finish up the chores, make dinner; 11pm dinner, 12pm bed. This has been our schedule, for a variety of reasons, for the last 15 years.
V has about 90 carbs for breakfast, 60 for lunch, 15 for snack and 35 for dinner.
He was waking up with lows for awhile (keep in mind he’s only been out of hospital, on his own, for 4 weeks) so I started waking him up at 3am to test. We’re constantly adjusting the insulin, downwards and seem to be reducing the number of lows. He’d prefer not to be woken up - says if he’s low he’ll wake up and know it. Is this right?
The doc never said anything about handling highs, but V’s started giving a small amount of rapid when he has highs - like 4 units (he currently does 18 rapid at breakfast, 12 of 50/50 mix at lunch, 6 rapid for the snack and 12 of 30/70 mix at night).
The dietitian told us he should NEVER have a snack… Why not if he takes the insulin for it? (I kept asking her, she just kept saying no)
Wouldn’t he be able to get better control if he didn’t use the ‘mixes’?
Are we on the right track, trying to make the insulin suit the way we want to live and eat?
I know it’s a lot of work, but can it be done?
(You may not have guessed this, but I’m a bit of a Type A who really likes to make things work in a nice, orderly, proper way… everything in it’s place and all that… And I know his diabetes will never cooperate. I’m just hoping for a workable compromise that won’t put his life in danger)
Any answers will be much appreciated…
Now, I’m going to graph his carbs/bs levels to see if I can make some sense out of what works. I have the info for 3 weeks. His levels have been good for this last week - for the first time (Except for that 405 reading when he went off by himself to get some plumbing supplies… and stopped at the bakery… - I think that was a bit of an eye-opener for him)