Hi! I’m a newly diagnosed T1D…diagnosed 4 months ago at age 49. I have SO much to learn! So far, I’ve lowered my A1C from 10 to 5.9! My carb ratio is 1:15 and I take the 7 units long acting one although at today’s appointment my doctor lowered it to 6 units.
My diagnosis took several months. Following my 49th birthday last May, I had meningitis and then started having vision problems, diagnosed with Hashimotos in August and then with what was assumed by primary care doctor to be Type 2. A visit to 2 endocrinologists confirmed Type 1. Decreasing sugar level has corrected the vision issues and I think I’m still in the “honeymoon” phase as my sugars are very manageable so far.
So, one of my initial symptoms of my diagnosis was weight loss which I was attributing to the thyroid medicine. I was quickly diagnosed when the thirst kicked in so I only lost about 10 lbs…wishing it had been more but with the +ketones I would’ve been super sick! I have 4 kids and would love to lose weight (or not gain it!) as a T1D.
I play a LOT of tennis and struggle with low sugar when I play. I’m not sure if I’m not eating the right foods to sustain the exercise but I’m having to supplement with gatorade and/or protein bars which is only adding calories. Every night, I have to take a snack because I’m below my required 120 so I’m adding calories there as well. And, I can chase a low sugar for hours after a hard tennis match. I wear a CGM which really helps me see the trends although it’s often not super accurate.
So I guess I’m curious about what people are doing to get sugars high enough prior to exercise and what to do during exercise to maintain them.
Usually I will drink a fruit and veggie smoothie pre workout if it’s the morning and I’m don’t take any insulin if I’m working out within an hour of exercise. I try to add something with more protein and fat - to slow the sugar - like an egg. If I’m playing tennis in the evening I am eating something like hummus and pita bread and adding protein like chicken along with it. But, it’s not getting my sugar to 120-150 which is what i need to maintain appropriate levels during exercise and I seem to burn through it rather quickly so I have to start supplementing with sports drinks.
I know a lot is trial and error but I’m ingesting a lot of extra calories trying to get sugars right. I hope this makes sense to someone! lol .
Thanks for any advice and for sharing your experiences and expertise. I guess I’m lucky to be diagnosed later in life but I’m also set in my habits need to tighten up my nutrition. Any suggested resources would be excellent as well. I’m still getting the “are you SURE you’re not Type 2?” questions because of my adult onset. Ugh. I don’t really know how to explain the differences so education there would be helpful. Thanks!