I got a new endo. He isn’t comfortable with the epil because he’s an endo. He asked me to see an epil Doc that he trusts. I think his motives are reasonable. But, the location is difficult to get to - a three hour bus ride, so I have to drive. The insurance company can’t find an endo to work at my neighborhood clinic since my previous endo left. I had my last, stable endo for ten years. Since then, no one long term.
The state doesn’t require me to submit paperwork for the epil because its not severe enough - just the type 1 diabetes. But, that is bad enough. Look at the hoops starting to line up that I need to jump through. They can’t schedule an MRI and an EEG on the same day, so that’s 2 more appointments, plus an additional one to have the epil Doc respond to the results. Test results will be the same as all previous. However, her response to them may differ from previous Docs. She says, “If you have epil, you must take medications.” Epil is defined as having more than 1 seizure in ones lifetime (not attributable to type 1). But, if you only have a seizure once every 3-10 years, then how do you even verify that the meds are working? There are too many potential side effects. The cure is worse than the disease. I do not know one single epileptic in real life that takes medications. I believe that the medication side effects stand a real chance of rendering me unable to work.
This is like playing with fire. I do not trust the machine that is at work. I know what the machine builds - great & insurmountable obstacles.