I'm new here, and I am here for information and support. I'm a psychiatry resident (at my advanced age) but I find that the information I need to live well with this disease is more likely to be found somewhere like this.
I was diagnosed in 1994, in Chicago, with what my endocrinologist called Type one and a half, which no one had v=ever heard of at the time, at least at my medical school. I had a number of autoimmune endocrine problems, so when my A1c came back high, and I explained that I had had "gestational diabetes" for the entire nine months of my last pregnancy he tested for antibodies. At the time, I was very a very active normal weight medical student.
His advice then was to never let anyone give me any oral jeication except metformin. I was able to stay on only metformin until a year and a half ago- and at that time started Lantus. I gaind 25 lbs on Lantus, and kept needing to increase the dose. Then I switched to levemir, and then added symlin which didn't do much.
Then a couple of months ago I had to add prandial insulin, and had pretty much nothing but highs and lows, made worse bgy my extremely irregular schedule. So a couple of weeks ago I started with a Ping pump. My controkl had been pretty fabulous with the pumo--though I am having a hard time with it psychologically.
But my question is about metformin. I've been taking it since 1994, and at 2500 mg a day for many, many years. My endo wants me to keep taking it.
In the meantime, I have only one diabetic complication-neuropathy, but it has been quite a problem, as it hurts, prevents me from running which is my preferred form of exercize, and I worry about getting infections since I want to keep my feet. My kidneys and retinas are totally fine, thank God.
My PMD, the other day, suggested that metformin has actually been linked to neuropathy via vitamin b12 deficiency. I am wondering if all this metformin is doing me any good, and if it could be making things worse. I'm finally going to go to a neurologist and get EMgs and see if they can clarify the cause of the neuropathy but am looking for advice. My endo is not impressed.
Thanks for the advice in advance.
I am really happy to be on this forum. I am a pretty strong person who is not afraid of much, but after all this time the changes in this disease I thought I had learned to live with have me feeling pretty scared and fragile. It's disconcerting.