Misconceptions about diabetes

my daughter allison is type one ,and was diagnosed a short time ago.what gets me is when I have to tell anyone that she is d they ask me EVERY time"how many shots ?"does it matter ?all of a sudden she has aplague (spelling ) and has to be avoided becouse there kids will “catch it” come on now shes only 4 .she doesnt deserve that kind of treatment.sorry venting

Nu Uhhhhhh!!! They don’t really think it is “catching?” That is atrocious. Again…so many reasons why I just don’t bring it up.

We have treatment, and hopefully one day, a cure. Your brother was the brave one.

my mother in law thinks its from something I ate or breathed in while I was pregnant with her lol…Im serious .thanks jen for bringing the misconception subject up.I have to shake my head at alot of what people think and say.its like they think of my little girl as a disease instead of who she is.just a little girl.MY little girl.

Your very precious little girl…best of luck to you both. You deserve so much credit.
PS Tell your mother in law that maybe “IT” was inherited from HER!!!

Thank you elaine

Me and my boyfriend find it s funny that people actually think you can catch diabetes, that sometimes we mess around - he is drinking loads or something and he will say “Oh no, I caught your diabetes” Its the only way we can deal with it, is to laugh.

whats funny is I got all kinds of opinions on how to care for my daughter before d (very strong opinions ) but since she got d I can hear a cricket chirp.lol

I love that comment, too. If I had any reasonable alternative, I probably wouldn’t choose to inject myself 4xs a day (or wear a pump, for those of you that do). However, it’s not really an option. I just have to say, “You’d get over it if you had no other choice.” (I don’t really see coma followed by death as a “choice” if I opted not to take my injections.)

I have a friend who has a chronic condition where she has to get her esophagus stretched ever three months. She tells me that it’s extremely painful, but there is no other alternative. (She’s also a nurse, and is good at understanding the parallels between our situations.) She says the same thing – there is no way she’d subject herself to such a painful procedure if it wasn’t absolutely necessary. I feel for her – my injections (I use the kiddie-sized needles) are painless 99% of the time.

I think when people make that sort of comment, they are trying to give us a compliment for being able to do it. But it really doesn’t sound that way when it leaves their lips.

I was at a funeral yesterday. Someone came up and asked about my pump. As I was explaining it he said that I should get the lapband procedure and how it “cured” his son of diabetes and “cures” 80% of diabetics. I have a very complicated case with no clear diagnosis. The last time I tried to loose weight I lost 20 lbs on my own another 20 lbs to dka, 3 weeks of work, and won a 5 night stay in the icu. Weight loss may help but it is not a cure.

Wow. I thought I was the only one who had an experiance like that. My old boss was needle-phobic and made my life very difficult even though I always did my shots, tests in my office out of site. One day we were in a trainging class together and I asked her where she thought I should do my shot since I didn’t have an office to go to that day.
She told me to go to the bathroom and I refused. I told her that it is an unsanitary environment for drawing up insulin. Then she gave me keys to the company car and told me to do it in there. I did, but as soon as I was done I went straight to the HR office and filed a formal complaint and told them that I wanted a resonable request for accommadation. 3 months later, nothing was changed so finally when I threatened to move my greivance up the chain/outside the organization I got my resonable request for accommodation.
I was so angry at her for that!!! And then, she kept trying to get me fired for the stupidest stuff. It’s a good thing I kept track of everything that happend and documented it all.
It makes me mad that somone would be so terrified of needles that they would try and get me fired because I refused to put my health in jeporady.

I agree. I always tell these people. “Well if it’s take a shot or die, I’m pretty sure you’d figure out how to give yourself a shot.”

Now that I’m on the pump, I have people who get grossed out by the idea of a piece of plastic tubing being under the skin. But a pump is easier to explain if you say it’s like an IV.

I had more trouble when I was using syringes, but now that I use pens, I inject pretty much anywhere. I don’t draw attention to myself, and most of the time it goes unnoticed. I always feel like people are looking, but I think that’s just me being self conscious. I think unless most people are looking specifically for it, they don’t even realize. Again, that’s talking from the perspective of a pen user.

I use a pen, and most of the time people don’t notice. But forsome reason, kids usually notice. lol. They always stare and ask me what I am doing. I think it is sweet.

Are you type 2?

There is no cure for diabetes, type one or type two. There is treatment, and somethings can help. In some cases, like in some cases of type 2, the symptoms can appearto go away - but there is no cure.

I got reallyannoyed today. I helpeda friend move in, and we got some snack type party food. They had some chocolate eclaires, ad I ate a couple. I asked if they still had the wrapper. My friends housemate asked my I needed it, and I said I needed to know the carbs (so I knew how much insulin to inject).

Well, she said “Rebekah, can’t you just not worryabout it for today?” - I don’t know whether she knew I was working out how much to inject, or if she thought I was trying to diet, like callorie counting or something - but either way I felt upset and defensive by the comment.

I have also had someone try to add normal coke to my diet coke because they thought it would make me hyperactive. I tried to point out that a hyperglysemic episode wouldn’t make me go hyeractive, but instead could cause me serious damage. She thought it would be funny to give me full sugar coke. Yeah, real funny.

That is just so wrong…wow. (The Diet Coke thing.)
If you had responded to the housemate razing you for carb counting by telling her you could go into a dreaded DIABETIC COMA!!! she would have quieted down fairly quickly, I’d bet. I guess I am just kidding as I am not one to mention my diabetes very often…I would have kept quiet and felt upset, too.

That is a good question. I know I am insulin resistant (found that out from an insulin tolerance test for hyperprolactenemia (also found out I am adrenal insufficient). Endo told me I need to loose weight. Soon after I moved out of state ans stated a diet and exercise program and lost about 20lbs. Then I started to get sick, bound around from clinic to clinic till I saw a Dr at a real practice he put me in the hospital test were run and I was in dka (lost another 20 lbs). I can find results for every sort of test and screening except for an antibody test for T1. My insulin resistance has improved greatly. Except for a short period (a couple of week) that I tried byetta alone I have had to have insulin to achieve control. I am on a insulin pump now and my current endo is treating me like a t1. Last visit I asked about the antibody test and was told when ever I am ready to know they will order the labs for me.

So the short answer is, out side of insulin resistance and that I do have some but not near enough pancreas function left ,no one is sure what type I am.

I guess I am TYPE ?

I think that type 1 is an autoimmune disease. for whatever reason your immune system attacks your pancreas. I think with type 2 you make insulin, but the insulin you make does not work properly. Type 2 has stages depending on how well the insulin works (diet & exercise, pills, insulin). A type one does not have the insulin producing cells so all type ones have to take insulin

It seems possible that someone with type 2 could become a type 1, your immune system would have to go haywire. but it does not seem like a type 1 could become a type 2 because a type one cannot make insulin.

Is this right? someone let me know if it is not correct.

You are pretty much correct. I heard an endo explain T1 as a gene that is underlying until you catch some kind of virus (they are not sure what kind of virus yet) and that virus unlocks the T1 causing the body to start attacking your Beta cells. This made sense to me because I had a cold prior to being diagnosed. When I look back though, I used to get the hot sweaty feeling a year before I was diagnosed. My 6th grade teacher would tell me to go sit outside the classroom and put my head between my knees (I also felt like I was going to faint). This could have been lows I was experiencing. No one in my family had diabetes so I had no idea what it was or what any symptoms were… now I help educate people through my volunteer work so they know the signs. I speak to cafeteria workers at the schools & teachers as well as other groups around town. My grandmother told me that she now realized why God had me develop the diabetes… so I could help others understand and deal with their disease.