Hello all! I just joined this site hoping that when I have questions/need to rant I can find some people that understand what I'm talking about!!
My future stepson just survived his first year with diabetes. He's such a little trooper, great with his "go juice" as my fiance calls it and doesnt fight us with anything! He will be two in March, diagnosed at 9 months.
I have been looking through the forums and there are a few things I've noticed. Most people don't seem to be using Novalog but Humalog instead? Is it basically the same thing?
As soon as anyone finds out he is diabetic I immediately have to explain its type one because people look at me like it's my (our) fault because he is morbidly obese. We're currently going through the custody case for him and hoping to get primary. Slowly we've been getting more and more time with him and the better diet that we have him on has helped slow down his weight. Does anyone else have a type one child who is obese? We feed him 30 carbs or less per meal and snacks are generally under 10. I've noticed most on here are talking about 50+ carbs a meal! Is that because the honeymoon stage is over for them and bodies need more carbs then? Or is his carb intake suppose to be low because of his age? Does anyone else use the GI index to help manage BG? We've found for example, watermelon he burns right through, giving him a snack of watermelon with no insulin, he will still drop, but if we give him grapes and one graham cracker he stays level.
My fiance and I are really trying to understand all of his BG readings. With us he stays pretty much between 80-200 which is his current target range. However with his mother he shoots up sometimes close to 500, most days with her he stays in the 300's or upper 200's. We share his food records back and forth and while she does feed him a lot of junk, cheezits, popcorn, pizza crusts, rolls (sometimes just popcorn being dinner or a roll/breadsticks being dinner type of thing) even with her slightly changing his diet for the better lately( he's under 20 oz of milk a day finally! She used to give him upwards of 40oz!!), he still seems to be high with her while we're struggling to make sure he doesn't drop. She cut out his morning snack and he is always over 100 with her, we cut out his morning snack and he drops to mid 70's or sometimes lower. The only thing that we can come up with is between us giving him a lot of fruits/veggies and him constantly moving with us thats why there is a difference. His endo won't really discuss the differences with us because shes afraid of causing waves and dealing with the mother's reactions. The only thing his doctor has said to us is that he doesnt feel the mom is writing down all that she feeds him. Could that really be what it is??
When he used to start getting low, he would get glossy eyed and seem a bit lathargic or he would be unconsolable. Here lately, he'll still be giggling and playing and we'll check him and he will be in the 50s!! Has anyone else had their child just "get used to it"?
Speaking of lows, we were told to just give him cake icing when he is low, it used to affect him greatly, recently though it seems like even a whole tube doesnt do anything for him. We have some gatorade we tried the other day but he is really hit or miss with liquids. Any ideas of easy good to use items? His mother seems to be using dumdums?
He's currently on .5 of Novalog to every 20 carbs within 15 min of the start of his meal (recently changed it was .5 to 15) and 4 units of Lantus in the morning and 1 unit at night (also recently changed it was 5u in the morning only)
I know this is a lot in this post but I guess I'm just looking for some insights not to mention it just feels good to get this all off my chest to people who know this type of confusion!
Thanks for reading!