Hello everyone! My son, Aaron, 9 yr. old (will be 10 this week) was diagnosed as T1D on June 03, 2019! He was in DKA when we took him into the Urgent Care and from there we were sent to be admitted into the Children’s Hospital downtown Kansas City. He was treated, diagnosed, and released all in 24 hours! To say that it has been hard is an understatement! Our entire world has been flipped upside down!
We have been educated by his Endo team, but I am still seeming to have constant battles everyday keeping him in Target 70-150. They told me since he is very new to his diagnosis to expect more on the side of 150 BG readings as a Target for the first while. We have made multiple dosage adjustments to his Humalog and Basaglar insulin’s but it seems, more often than not he is ALWAYS high in the late afternoon and night hours!
With that being said, we have looked into other options to help us manage his diabetes and have been approved for the Dexcom G6 and Omnipod Dash! I am very excited about this bc the injections have been a battle! He is on the Autism Spectrum, has ADHD and Sensory Processing Disorder, so he is a very unpredictable eater! With that, the doctor gave us permission to inject immediately after eating! But I am so confused on what to expect with giving insulin afterwards! What is an acceptable time limit for him to have high BG? I have gotten so many different answers from the nurses, and everyone at his Endocrinologist’s office! They have advised that he will have higher BG readings for a couple hours afterwards! What I am confused about it the correction times! I have voiced my concern about it to his doc and team but still am so uncertain and anxious about giving corrections too soon!
We are hopeful that once he gets the Dexcom and Omnipod placed this week that it can help us learn more about his diagnosis and how to better treat it! Any help would be great! I also think he is not lasting the full 24 hours on his Basal dosage! It doesn’t matter the amount we give, we have tried many different units, it never fails he automatically starts to spike around 9 pm. This is even if he has had a good in range day! Also, any help with applying the Dexcom would be appreciated! We have a nurse who will help with the pump but we were told the CGM is pretty simple but I am so scared! How does it feel as it is inserted? Does it cause them pain anymore or less than the injection or finger sticks? Thanks! I know I have left a lot out! If you have any questions please ask!