I wish I had the enegy to read what everyone else wrote but I just thought I would let you know what is happening to us. Same. No sleep.
My son was 3 when diagnosed Oct14/2009. Numbers were great in the beginning but 6 months in they went crazy. Turned out the top of his leg couldn't handle any more needles. We switched to sites he would never let us use and he went back to normal. Another few months went by and his numbers went crazy again. He has a huge Dawn Phenomenon and was going low in the middle of the night. The hospital was complaining that the morning bolus of short acting insulin was so large in comparison to the long acting insulin so they switched things around. It made things worse. We now realize Payton is extremely insulin resistant in the morning and I was right to jack up the fast acting insulin.
The hospital said we were supposed to move to 3 needles a day for more control over his numbers in the morning (Dawn Phenomenon) but instead we started the pump Aug 24/2010.
Things were great for the first couple of days, even the first month because you were expecting to lose sleep while they had you poke your son at 3am in order to calibrate the pump. We actually never used the Animas Inset 30s like the hospital recommended because the inserter is so forceful and I am freaked out about it so I ordered the Orbit Micros right away.
What I found out about those is that he goes really low the first day and then high the second day. I thought I could see a pattern but this is the 4th month and several times I have had to poke him every hour throughout the night to either give him apple juice or to correct and test Ketons. We gave up on the Orbit micros, especially since I think Health Canada is going to recommend they be discontinued due to their week tubing. Not to mention the tubing came off the cartridge 2x causing him to be almost as high as 1st diagnosis by the time I discovered it.
So, we switch to the Animas 90 teflon and things are great the first 5 or so infusion sets. Everything is different with it. My basals need to be increased, my boluses need to be decreased. Its phenomenal what a difference a set can make. So I am poking Payton 13 times a day. I wish there was a CGM in Canada that Payton could wear with the Animas ping.
On the bright side. We went to disney land after only 2 months on the pump and couldn't live without it. I am tired, pulling my hair out, and just plain confused but I am well aware the learning curve can be like this. The hospital would not take the numbers I faxed in for sick days or holidays (which adds up to a whole month) so the learning curve is lasting a little longer than 3 months for us.
One little small change with the numbers and he is either super low or super high. I can't seem to find that middle range. He is extremely sensitive to insulin changes. I think 4 year olds are super active as well making the insulin work harder than your books say it will.
Needles are a lot easier insulin wise but harder meal wise. Pumps are a lot harder insulin wise but a lot easier meal wise. Take your pick. I would rather do the leg work for my son with calculating the insulin changes so he can have it easier with the meals.
I will never go back to needles. Even if it is discovered that I have to change his infusion set every single day to see a pattern I will do that just so he can eat what he wants, when he wants it. I have seen a new happy little boy since we started the pump and not just because meals are easier. It took 2 weeks of solid good numbers all in a row for the exuberant Payton to pop out. I used to think his moodiness was just his personality. I think everyone who can handle the stress of learning an intricate device with several manipulating variables should try the pump. Too bad it is sooooo hard on the parents for several months. I can't wait until I am an expert at it.
Check out Quercetin a natural product for protecting his body from the sugar!!!!
Hope things get easier for you. At least you can correct right away with the pump when you get it. My thought to give to all the parents going through these confusing times is know that one day you will become very proficient at this.
P.s. Being on the pump, I no longer have to feed my kid a peanut butter sandwich at night. Yippee.