I’m in the process of diagnosis and confused!
I started with reactive hypoglycemia, and now I’m having high post prandial numbers when eating normal carbs( sometimes as high as 185 ) but mostly normal fasting numbers with an occasional 100-105. My post prandial can get up between 150 to 190, depending on what I eat. The other day I drank a high protein Ensure and fell asleep ( it was about 10 PM ). When I woke up about an hour and a half later, my blood sugar was 230. I went back to sleep, and then woke up about another 1 1/2 to 2 hours later and my blood sugar was 68. Several weeks ago, I drank a small grape slush from sonic. My blood sugar peaked at 189. At that point I ate about a tablespoon of peanut butter to try to slow the impending crash. A little while later my blood sugar was at 74. I don’t know what to think about these highs followed by lows.
I’ve been going to an Endo for about 9 months. At my last visit she said she wanted to check for LADA. My C-peptide has been 0.3, 1.1, and 1.7. My insulin has also been in the low normal range—last check was 6.8. I had the GAD65 run, and that came back normal (there was no specific number, it just said that it was <5.0, and the range was 0.0-5.0 ). I thought my doctor was going to run other autoantibody tests for diabetes, but the lab I went to ran Antineutrophil Cytoplasmic antibody, which seemed inappropriate to me…maybe than ran the wrong test? I looked it up, and it seemed like it was a test for other disorders. My cholesterol was a little bit high at 220 and my LDL was a little high at 114. Other cholesterol measurements were great, and triglycerides were fine. I’m pretty sure I know the cause of the high cholesterol though… Over the last several weeks I’ve had more red meat, and that always causes my cholesterol to go up. I honestly didn’t even think about it until the test results came back.
I am probably borderline underweight for my height. My weight is somewhat steady right now, ranging in about a 4 pound range depending on the day, but I have lost 10-14 lbs over the last several months (depending on the day). A few weeks ago I went to the doctor thinking that I might have a UTI, but he said that I might be occasionally throwing a little bit of sugar in my urine, causing the frequent urination symptoms I’ve been dealing with.
I don’t know exactly what’s going on…it might not be LADA, but I just want a correct diagnosis. I’m not saying it’s not type 2, but I am very concerned over being misdiagnosed as a type 2 based on my cholesterol level and the negative GAD65. I just don’t believe I fit the profile of a type 2 based on my low weight, low C-peptide, and low insulin numbers.
Anyway, I go back to the Endo soon. I think I am going to ask her about the fact that there were no specific insulin autoantibodies run ( I plan on approaching it as maybe the lab ran incorrect test/left out test, because it was a freestanding lab, not the doctor’s office ) and I want to be sure to mention the weight loss, because I don’t think I’ve ever told her that. Actually, that is part of the reason I believe that my cholesterol got high… I’ve been trying to gain some weight and eating whatever, as long as it’s not too high in carbs.
Any comments/advice for me as I struggle to make sense of all of this?