Does anyone else have hard pockets of tissue on their belly or elsewhere from years of injections? I’ve discovered that this scar tissue is called “Lipohypertrophy,” and is a problem for many type 1’s. I’ve searched online for treatment and/or answers as to what to do to get rid of these unsightly spots (on my otherwise in-shape stomach), and all I’ve found are educators recommending altering injection sites. Not sure they realize that after 25 years of injections, there are only so many spots on my body! Help!
I have Lipodystrophy, which doesn’t create the hard pockets, it actually eats away at all the fat at the injection sites, so I have little holes all over my body that make me look like I’ve been pelted with ping-pong balls. I’m just trying to keep myself symmetrical at this point I’ve only had Diabetes for 2 years, so I’m looking at the next few decades with a sense of dread, I’m going to have to be diligent, but like you, there are only so many places I can wear the OmniPod!
Fortunately I do not have such a problem yet. When they tell you to change the places to inject I understand they mean to do the injections in different parts each time - try to work out your own pattern - and give each area a bit of a rest before using it again. I should think we all have our favourite sites, but if we can remember to do it different places each time to prevent the pitting or lumps then so much the better. I understand that if you inject into the pitting or lumping areas there is a problem with insulin absorbtion.
Yes, I have this on my belly as well. That is my favorite place to inject, and it is like an extra pouch. It is so ugly I hate it. I have also had the same response, vary up injection sites. Not much of a solution, let us know if you find anything else!
How much do you exercise? I find that when I start exercising fairly intensely, the tissue starts to soften again. I started developing really bad pockets on my stomach too, and had to switch to my arms. When I started doing ab/core workouts, the hard pockets began to soften and go away. Still, it’s good to vary your injection sites because those hard pockets also make it harder for your body to absorb the insulin efficiently. Good luck!
Yep, I’ve got it too. I’ve been diabetic since 1990 and yes, I agree, there just aren’t enough places to poke after all those years!
when I pointed my bumps out to my endo, who is also a runner, she said the only way to get rid of them is plastic surgery.
I discovered mine over two years ago and thought that I could someday start using those areas on my belly again. So far, no dice. My entire lower belly is out of commission.
Jenny, I am writing an article on this subject…can I quote you?
Melissa,
I am writing an article on this…can I quote you as well?
Absolutely!
thank you! can you give me your full name? my email is amy.mercer@comcast.net.
Getting my pump really helped my “hard spots” to soften up.
With MDI I had two hard spots, one of my left and one on my right sides of my stomach. Now since I’m not putting 5+ needles in my belly everyday, it’s only 1 every 3 days it’s really helped. To the point where I’m not embarassed about them anymore!
It only took a few months for them to soften up, so maybe mine aren’t as bad as other peoples? Not sure.
Prior to going on the pump I asked my Dr. about what I can do about my hard spots and all he said was to rotate my injection sites, but it’s so hard to inject into your leg when you’re in public and wearing pants! The pump has really helped!
I got hypertrophy on my stomach years ago, when I was using a Disetronic pump and always used my stomach to infuse. About 5 years ago I switched to an Omnipod, which I never place on my stomach, and over time the bumps have gotten less noticeable, but not gone away completely.
About 10 years ago I got a small tattoo on my stomach, which distracts from the bumps