Hello, there,
I’m so happy to have found this group to speak about things we all face as parents. Our daughter Elisabeth had a seizure last year during the summer and it was a terrible experience. I put her down for a nap at about 200 and thought she would be fine, but our Endo told us that it’s the rate her BG is falling that causes the seizure. I checked on her napping and she was ok, but then heard something when I went downstairs that was strange. I went upstairs and she was making a sound like a barking dog, was bluish and very stiff in her whole body. I called my girlfriend to come upstairs, we checked her blood while my friend gave her juice and she was 67 (she’s been way lower). I didn’t realize then that if she’s seizing I shouldn’t have given her juice because she could’ve been unconscious and choked on the juice. I called the Endo and spoke with her as I carried her downstairs while on the phone. I checked her again and she was within a few minutes 47 which was shocking to me. The endo instructed me how to inject the glucagon while a friend called 911. They sent us home from the hospital with glucagon, but the covering Dr. didn’t teach us how to use it, so I would highly recommend knowing and understanding what to do before having an emergency like this. I carry her glucagon with us everywhere in her diaper bag and it was very sobering to realize why we need the glucagon in situations like this. I also tell babysitters and others who are helping me where the glucagon is located. I had to go to the ER in the ambulance although she was already coming up in her BG before they took us, but they just wanted to check her out. Another thing we did was to suspend her pump, which seems like common sense, but you don’t always think of it when you’re panicked. I was really traumatized after this and it took quite some time to recover from it. Thankfully she’s not had one since.
Blessings to you all,
Jessica