Struggling T2


#21

Accuracy with carbs has been important (but not foolproof) for me.

I was (mis)diagnosed and treated for T2 for 19 years before getting an antibody test.


#22

I have to say that I’m in agreement with @Firenza Getting a new Endo might be the way to go. I’m wondering what your c-peptide level is and when were you tested for the antibody? Something is going on. If you’ve been working with this person for awhile, I’d change if it were me.
Originially my gp thought I was type 2, but I didn’t fit the profile - fit and carb conscious etc. I went to an endo and tested positive for the GAD. I’m on an insulin pump now and life is so much better (you know, relatively speaking). Also, I don’t think anyone mentioned ketones… have you tested for them? If you can swing getting a CGM, it’s worth it. You’ll be able to see patterns hopefully, particularly if you keep a food log.
Best of luck to you!


#23

This sounds exactly how I was until 100 days ago. Same patterns and the morning highs were running rampart. I pushed back a bit from my endo and begin working more with my PC physician… we tried many medications…All the while, I was pushing myself to exhaustion at the gym doing cardio and strength. Then we researched The drug TRULICITU and decided to give it a try. We decided on 100days, since my alc would test my last 90 days. During this trial period, I reduced my novolog from 35-45 units per day to a total of 10. I take 5 in the am and 5 with my last meal which is around 8-9 pm…( I split the 5 units up, giving myself 2vunits immediately before I eat and the other 3 units after I finish my meal. I take 10 mg of Glipizide in the morning . None at night. It use to be another 10mg. I completely stopped taking all other diabetic medication… I still workout, but not as hard and I eat a very good well rounded nutritious diet. After the 100 days, my alc went from 7.6 to 6.3. I am down 2 dress sizes and I am continuing to stabilize. I am by no means claiming any miracles here, I am just sharing my story in hopes you and your physician can keep exploring until you find a good fit with you…of course there are warnings and side effects to every medication, but thankfully I have not experienced any to date… let me end by saying TRULICITU cost me about 434 dollars for my first b4 boxes of pens…there are 4 pens in a box and it’s taken once pen per week. When I went back to get the 5th box, I was told that I was in the donut hole with my insurance and thus had to pay nearly $300 per months supply until Jan 1, 2019. There are RX discount cards but they only help if you are not insured. The drug rentals foe $4,500 per month without insurance or assistance, I am told, by the pharmacist. I do hope this helps you. I completely understand your frustration. I pray that my second alc keeps getting better…Good luck to you…keep trying and keep researching what’s best for you🌷.


#24

Increase the basal (Lantus)


#25

Diet and sugar - A YouTube video every #T2D should watch.
Dr David Unwin discusses Non-alcoholic fatty liver disease: Is diet the culprit? (Filmed at the Royal College of General Practitioners in London, 2018)


#26

I enjoyed the video. This doctor is a joy to listen to. I think Britain is years ahead of the rest of the world in addressing the diabetes epidemic.


#27

Yes it is nice to see low carb being accepted.
But it is not new and has been in the US for many years.
10 years ago I was diagnosed with an A1c of 12.0 and Entered into a diabetes education course based on controlling what you ate, Remember eating to your meter. Since the term low carb was not acceptable, that’s the term we used. If you eat what lowers your numbers, you reduce your carbohydrate in intake.
We had the same illustrations, including the spoons of sugar and covered the glycemic index and load. We also had an exercise program included.

We counted carbs and tested before and after meals, and recorded it. For almost two years. Everything we ate. My only meds was Metformin. I just checked in my log book.
Original A1c 12.0. Four months 7.3. At seven months 6,3 I eliminated Metformin at 18 months with an A1c of 6.0. Now 10 years no meds my last A1c was 5.7.

So if the medical community thinks it is new, they just weren’t listening.

Major point this obviously does not work for all T2’s especially those who are not yet. correctly diagnosed,


#28

Thanks Terry, I enjoyed listening to him as well

Tom, the point of this (and other like minded doctors who are speaking out) is that this still isn’t mainstream. Not in the UK, not in the US, and certainly not in Canada.

Consider yourself among the fortunate few who happened to stumble onto / into professionals and a clinic where this approach was used.


#29

That part I understand.

Since I know many T2’s that have been doing low carb for many years, I don’t quite understand why that is never mentioned. And just to point out that low carbing was not supported by the Diabetes community 10 years ago. Even this site, where there was a lot of discussion that everyone should be on insulin.


#30

@TC5683 If you haven’t already, sit down and calculate your carb coverage ratio and high blood sugar correction factor. https://dtc.ucsf.edu/types-of-diabetes/type2/treatment-of-type-2-diabetes/medications-and-therapies/type-2-insulin-rx/calculating-insulin-dose/

For me this was instrumental in arriving at an effective insulin regimen that got meaningful results. At first I was put on a sliding scale regimen which was didn’t do much for me so I went through these calculations, pitched it to my doctor, and with her blessing I was off and running. I used the mySugr app to log all meals, BGs, and insulin dosing.

While I don’t eat low carb, I also don’t carb binge and keep it reasonable at 40-60g carb per meal. That way I have some freedom to eat while managing my BGs. I rarely take a correction dose these days, generally only when I eat something new or can’t guess what the actual carb count is.