It would seem to me that the primary objective would be to educate, namely to dispel the misconceptions about diabetes. Unfortunately, my general feeling is that there remains a serious gap between the positions these organizations take and what we as PWD want. These organizations often have major constituencies that overwhelm the patient voice. There may be hope, the ADA and JDRF issued a joint statement over the Crossfit debacle:
Type 2 diabetes is the most common form of diabetes, accounting for about 95 percent of cases. In type 2 diabetes, the body does not use insulin properly, called insulin resistance, and may not make enough insulin. Type 2 is influenced by genetics, family history, age and inactivity. Being overweight is a major risk factor for developing type 2, but it’s important to remember that most overweight people never develop type 2, and many people with it are at a normal weight or only moderately overweight. Type 2 is treated with healthy eating, physical activity, oral medications and sometimes insulin or other injectables. There is no cure for type 2 either, though it can often be prevented or delayed through lifestyle changes, such as increased exercise and healthful eating.
Unfortunately we still have the unfortunate belief that you can “prevent” diabetes by eating right and exercising. I don’t believe this. The use of the term prevent implies a causal connection and that you can be cured. And this remains a key misconception leading people who follow the advice and fail to feel personal blame for their failure when in fact their condition is not their fault. It will take a lot of work to convince these organizations of this error in their ways.
That being said, the ADA and JDRF had a campaign with the Ad Council on the importance of the A1c. Perhaps this can already fit into what they have done in the past.