I don’t know which type you are, Lil, but the fact that you are controlling your blood sugar so well does not prove that you are type 2, not LADA. The whole difference of LADA from typical type 1 is that it is slower onset. I was misdiagnosed type 2 and controlled well on oral meds for over a year before my numbers started to climb. I didn’t have an A1C done at original diagnosis but my fasting was 325.
Yeah… but I’m pretty sure it’s not type 1 because I have been controlling it with diet/exercise only for over 8 months type 1 comes on very quickly with very high blood sugars but I know 1.5 is a slower process…
Yeah I guess I just need to ask him for the actual results and what my results mean. I know he told me my antibodies were high but I thought he was referring to my thyroid so I prob need to ask more specific questions.
I too am a stay at home mom so I can def relate! There’s no such thing as a sick day!
How long after your pregnancy were you diagnosed?? Were you originally diagnosed as type2 or did they diagnose you with type1 right away?
Your A1C is awesome keep up the good work! Were your blood sugars in range when you were on low carb diet and metformin or were they still pretty high? How long after was your diagnosis of type 2 was your diagnosis changed to type 1.5?
You should always ask for copies of your lab tests so you know exactly what was done and what your results were - don’t ever accept “everything is fine!” I have learned that lesson the hard way. I had an infection in my foot that set into the bone. After having another culture & MRI done, the doctor kept insisting the infection was gone. Things kept getting worse and I decided to switch doctors. I got copies of the labs & both the culture & MRI showed that I still had an infection.
Last summer, I started having thyroid. I had copies of my labs with me when my doctor tried to tell me nothing was wrong with my thyroid - my Free T4 was so low it wasn’t even registering a number anymore.
Last month, another doctor told me that my Vitamin B levels were on the low end of the lab range and I should start taking Vitamin B. She even wrote it on the list of things she wanted me to do. When my copies of the labs showed up, I found out that my Vitamin B was over the top of the lab range - certainly not low at all.
It is always better to see the actual copies of the labs yourself so you know exactly where you stand.
Wow…interesting…how many carbs a day were you eating??
My initial A1C was 7.2. I was 53 but very thin and originally diagnosed as Type 2. My doctor wanted me to take Januvia but I researched and found out that wasn’t a great idea since I am a melanoma survivor and Januvia might activate cancer. I asked for antibody tests and they came back slightly elevated so I was told I had LADA. It’s been more than 3 years and I can control with diet and exercise but do use insulin for higher carb meals. My fasting has risen from low 80s to high 90s. If it wasn’t for the antibody tests, I wouldn’t even qualify as pre-diabetic. I think we caught it really early and keeping tight control and near normal blood sugars might preserve my beta cell function indefinitely. Did you say you have thyroid antibodies? If so, you are much more likely to be Type 1 than Type 2. The presence of one autoimmune condition makes it more likely that you have another. I have Hashimoto’s and psoriasis.
My A1C at diagnosis was 13.8. My blood sugar was over 500. I was diagnosed as Type 2 for about a week, but then it got figured out. I am probably LADA as I am definitely Type 1 and had adult onset, although no one was even talking about LADA back then.
Wow so you are a type 1.5 and diet/exercise controlled? That’s awesome!! Hope thats the case with me if I do end up being 1.5 instead of type 2. Yes, I have Hashimotos as well. Thanks for the advice and what a blessing on being cancer free God is good!!!
My A1c was 6.0 at diagnosis and first misdiagnosed as a T2. I am T1.5 I had “gestational” three times dixxet controlled until last baby! I had easy to control diet and exercise with a low carb diet and when I stopped nursing my number began to creep up within the first year. Then they put me on metformin and continued to up the dose to Max 2000mg daily (saw only about 5 pt improvement) I went from a 5.8 to a 5.7. My goal is to get down to normal people’s level 4.6-4.8 so I am still working on it and I asked to have insulin last visit to endo, she gave me basal insulin Levemir and I have had so much better control under 100 much of the time again. My 2 hr PP go up usually to 110-120 though. I feared insulin and now it is such a relief to have it and have the control. We have some T2 and T1 (my bro and now me) in my fam. some thyroid problems, one lupus dx at 40 so plenty of autoimmune problems. Good luck to you there is a tremendous amount of information on TU D and a great group of people!
I am surprised no c-pepitde test. Unless they did it and didn’t tell you. First they did the regular fasting meter test on me - 205. Ugh. And than they took vials of blood and I had to wait a week for my results. The doctor knew I was diabetic (obviously 205!) but did the c-peptide to make sure I didn’t need insulin. C-peptide 12. So no insulin. Although he didn’t explain to me what a 12 was (high or low), some people on here said it is average. A1C was 9.2 So, presciption for Met. Got the A1C down to 4.9 in 3 months and my daily numbers are fabulous.
I have always been on the thin side all my life but NOT underweight. Average for me as an adult since my 20’s has been anything between 110 and 135. I did weight 100 once when I was very active at 25 but because I am a vegetarian and was very athlelic than.
I weighed 130 at my diagnosis so towards the higher scale for me. I was very sedentary before I was diagnosed eating lots of high carb foods and weight gain in the wonderful ab area. Type 2 runs in my family (the short women in my life get it - and I am one of the shorties) and they get it around 40 years of age. (I am 40 at diagnosis).
Let us know what happens with the tests. And get copies. I don’t have copies of mine but unless things go haywired and change I think I am on the correct treatment plan for me right now. And just to make a point (and not putting down others experiences) JUST because you are thin doesn’t mean you are NOT a Type 2. Type 2 is genetic. There are many factors that can trigger the genes off and weight is just one of them. In my case, it was probably age and than being sedentary second. (that fat around my middle probably third! Lol)
But does “type” really matter? I mean, as long as you are getting treatment that works for you and there are no problems than type is just type. You are diabetic no matter what type you are. Just as long as you get the correct treatment for your indiviual situation - that is what is important. Don’t get too hung up on stereotypes as they don’t always apply to all of us. There are actual hundreds (maybe thousands) of types of diabetes - they just are too lazy to name them all which is why most of us get lumped into two categories that are honestly kind of narrow for a disease that is so varied amongst the individual person. Getting the proper tests - very important so you can have the proper treatment.
Wow thanks for your reply very good to know! So you are liking the insulin? I’m sorry I do not know much about insulin…is basal insulin injected or do you wear a pump?? How many times a day are you taking insulin and how long does it last? Any bad side effects or really low blood sugars?? lol Trying to educate myself just in case for the future.
Thanks for all the good advice And good job on your A1C keep up the good work!
You would be very young for 1.5. The GAD antibodies are the definitive determinant. You could be Type 2. It can seem to hit quickly if the initial symptoms aren’t significant enough to notice. LADA (1.5) is type 1 and insulin is ultimately needed (though it may be held off for a year or so as the insulin produced prior to onset and the remaining beta cells die down) because your body doesn’t produce it.
Really? That’s what I was wondering… I have read if you are under 25 it’s type 1 diabetes, which means I would have immediately been put on insulin. Makes sense, thanks so so much for the feedback!!!
Went to the Doctor this morning…he told me that I AM a type 2 diabetic.
Hmmmm…what does one say? Either way, D stinks! I hope that this is an answer that you were looking for.
lol yes it does!!! I’m just hopin the type 2 diagnosis sticks so I don’t have to start “sticking”