yes even during the honeymoon period at least SOME insulin would be required, not none as being stated by the op, as in the title still not using insulin.....
again if your not using insulin you don't have type 1 diabetes maybe someother malady that temporarily rose your blood sugar like steriods in meds whathave you but....
but your liver produces sugar that your pancreas reacts to which your immune system attacks until it is fully killed off you have a honeymoon period but you will still need some because the liver isn't being shot to death your pancreas is.....
if your not counting carbs and she isn't knowledgeable about food because she is 8 then how are you keeping track of what and how much is going into her body???
other things beside packaged bread and cereal have carbs, so how are you giving her a low glycemic index foods??? i'm not trying to bash here but some things aren't adding together properly, and either you have been given misinformation or something else is amiss.....
but there are sooo many incompletes here that don't make sense....
you don't speak of an endo, but a holistic dietian??? does she have and endo and what does this endo think of the holistic's approach to diabetes mgmt??
and since when has anyone heard of a 7 year old with a honeymoon period...unless this was caught on a regular checkup which isn't normally check for, most children are in severe dka because they don't know how to express their new onset of disease, most children crave sugar snacks etc etc most adults pass off a growing boy to a boy dying from the inside out.....
nuts have carbs, fruit is like skittles really?? no insulin?? nuts have more carbs?? still no insulin?? lemme guess the whole grain bread you give her on her sandwich doesnt require an i:c either??
forgive me but this sounds like any other t2 nutjob that tries to say type one can be cured if i just eat right and loose weight???
but these are serious questions and little girls have died because parents have denied insulin to their daughters for religous and health reasons child protective service should be involved in any nut case who denies insulin to their child because they think their whatever knows better either that or there is no diabetes present sorry, but that is my opinion.....
yes please divulge all the type 1 diabetics that have stopped using insulin,,,,,,,,,,,and lived??? please rise hand....if you still have one...
and if this were such a simple solution kelly then wouldn't you have done this before you got complications from this disease???
as a matter of fact your on a low gi right now, no?? sooo have you stopped taking insulin....
please remember that girl from pa...who's parents said all we had to was pray.....
and to answer my question halle berry is the only person whom has said they have weened themself of insulin, i think on another board you agreed that wasn't possible but somehow now do??
Calling me a nutjob probably isn't the best approach but I will answer your questions this one time.
First, I have a very good idea how many carbs everything my daughter eats has in it. I do not add them all up at the end of the day to know her total count. I don't need to. I know that she's getting good food and plenty of it. I check her BG up to 10 times per day to make sure her levels are good.
I did speak of an Endo, a few times actually. If you're going to post responses then I would ask you read everything not just bits and pieces. The last time I spoke to her she said that what I'm doing seems to be working given the A1c results and my daughters overall health.
I also noted that we caught this early. It doesn't matter at what age you are diagnosed you can still have a honeymoon period. My daughter didn't go through severe DKA. I took her in for a bladder infection and she was diagnosed. It happens.
I'm not denying my daughter insulin. If I give her insulin she would probably die given her current BG levels. When her BG levels require it then I will of course give it to her.
Don't judge or make assumptions just because you haven't heard of something. Open your mind and you may learn a thing or two.
oh so are you trying to teach me something or are you asking questions because you are unsure of your daughters health??
and no one is calling you a nutjob sensative but anyone whom denies their child insulin for any reason is a nutjob??
if your daughters bg isn't high then your not denying insulin although it begs the question if she ever needed it in the first place, or she had a reaction to medication that rose her blood sugar like her bladder infection,
My son was diagnosed 13 months ago, and we believe he is still honeymooning. In the first week or two after diagnosis, he took a fairly hefty dose of insulin, but his needs gradually decreased as the months went by. He does still use insulin, but the amount he uses is relatively small given his size. In fact, one day last week, he left his pump in his gym locker after basketball and had to go back to Lantus for a day. I wasn’t sure if his lantus dose would be 1:1 of his basal with humalog, so I called the endo on call to figure out how much lantus to give him. She asked for his weight and gave me a large number for his lantus dosse. She was quite surprised when I told her that the number she gave me was considerably more than his current total dose - basal and bolus combined.
So, while we’re not insulin free, more than a year after diagnosis, my son uses a relatively small amount of insulin given his size and has an a1c in the high 5s/low 6s. He is not on any particular diet, but we have always eaten fairly healthfully. He does not eat particularly low carb but eats mostly higher quality carbs - whole grains, fruits, vegetables, etc. with a treat thrown in here and there. If his blood sugar levels become more challenging to manage, we’ll explore dietary changes.
Good luck and just keep paying attention to your daughter and adjust as the situation requires.
Have to wonder is there a slow onset for some kids? My endo's staff have used LADA and Slow onset Adult Type-1. Of course I also wonder about the Honeymoon period since there are some days I can handle up to 80 carbs spread out over a 5-8 time period with out a super high spike if I am active (maybe hitting 185) and I can most days handle a 30 carb snack/meal with only hitting around 160 at the 2 hour point. Other days I eat 10 carbs and will spike in the 190s. Never been able to get/find an answer if the pancreas can at times "sputter" also have noticed that my fluid intake as well as caffeine greatly affects my sugar. Don't eat with out at least 40 oz of fluid and if it is caffeinated it tends to drop me hard.
My endo is one of those who refers to low carb as starving myself. I tend to limit my intake to around 100-150 on non work days 120-210 on days I work, limiting to intakes of around 30 carbs a time. I have my splurge days about once or twice a month where I will do a lot more carbs but in general feel better when I am keeping it at a moderate carb rate. I still remember coming out of the hospital and having to force myself to do the 300 carbs a day they wanted me on I would be full and have to go looking for things to eat just to make the amount. I tend to not limit what I eat but how much and also try to do only whole grain and minimal processed food.
Over all if it works for you daughter it works. I would keep up the constant checking of her BS level. Low GI doesn't do much for me I am a carb is a carb person and some foods spike me more then others but it doesn't seem to follow the GI chart. But that is for me. Just watch her carefully and be prepared
I was a type 1 for well over two years before using insulin, does that mean i was type 2 at first but then magically converted to type 1 later? Nothing about diabetes makes sense, and every case is different.
Shana, you are doing a great job! Keeping an eye on our children is the best we can do. You know the signs and what to watch for, i'm confident that should anything change you'd be on top of it quickly and get her the help she needs. Enjoy the honeymoon while you can!
Her last A1c was 5.6. But what was her A1c at diagnosis - what was her worst A1c ever? If she wasn't admitted in DKA then on what basis was she diagnosed as T1?
I don't blame jeremiah_81 for being very sceptical. Your story is far outside the norm, and far outside what any of us juvenile T1's have experienced. We were all admitted in DKA and insulin was absolutely required to keep us alive. If your daughter's case is different it must be because of being caught very early, and not because of the diet you are feeding her.
As others have said, enjoy the honeymoon while you can, but be very vigilant watching for increasing blood sugars and need for insulin. There is nothing to be gained and much to be lost from putting off insulin injections once they are needed.
Being skeptical is one thing. Calling someone a “t2 nutjob” is something totally different and extremely rude, especially in a thread with some very knowledgeable people supporting her.
I Googled what percentage of kids are initially diagnosed with DKA. There is a quite a huge range of numbers going from only 10% to as high as 90%. I didn’t see any that said it was 100%. My guess is with today’s technology and people being able to get online & ask questions when their kids start running to the bathroom (which is what Shana said her daughter did) someone suggests the kid is diabetic. I am sure that fact helps lower the percentage. I have a friend with two kids that are diabetic. She said as soon as the second one started drinking and running to the bathroom, she knew to test her and get her to a doctor immediately. Her daughter did not go into DKA because she got her help fast. I have another friend whose 13 year old son did not go into DKA. Just because someone is a kid doesn’t mean that is guaranteed DKA.
Kelly WPA is right, not all kids go into DKA. My daughter was up going to the bathroom three nights in a row and she asked for a water bottle to take to school. I asked her if she was going to the bathroom more and she said no, I asked her if she was drinking more and she said no. BUT, I knew something was up. There is no diabetes in my family but I knew those two things were signs. The night before I took her to the doctor I was googling diabetes. I was hoping and praying that it was a bladder infection. I figured I was just being a paranoid mom and assuming the worst until I got the dreaded diagnoses. They found sugar in her urine and then did a finger prick and she was too high for the monitor to read her level. Blood work was done by an endo, antibodies were found, A1c was 7.7.
I know it may be difficult for some to understand that people can be diagnosed differently than they were but it's an ignorant assumption that I'm denying or putting off insulin when it's needed. I gave her insulin when she needed it. Right now she doesn't need it. I know that will change and I check her constantly to ensure that she's in a good range. She still has the occasional highs but it doesn't take long for them to go away, especially if she exercises. When I was giving her insulin for those highs it would drop her so fast and to dangerous levels and that was only giving her a 1/2 a unit. Now her highs RARELY go over 200.
We caught it very early. Her pancreas is still functioning fairly well. Feeding her a low glycemic diet helps because she doesn't get the huge sugar spikes.
The original reason for this post was to seek out others that may be in the same situation...early diagnosis, little to no insulin. I have an open mind and believe there may be ways to extend this honeymoon period we are experiencing. But I'm also realistic, I know that it will end some day and when that day comes I will be the first to know because I watch her like a hawk.
technically speaking, aspirin in small children has same effect as in adults, but it also has potential for additional negative side effects (ie; Reye's Syndrome, etc.) Your logic is flawed in many ways, as is your understanding of what is being written here. You are searching for arguments that simply aren't there and can't be supported. Shana is working with doctors, seeking advice, doing her research and has a great attitude with an open mind. Please rethink your position carefully, you are making accusations that are not warranted or based in reality.
FWIW, T1 does present differently for different people. Some T1's like Kelly probably are still producing some insulin even 20 years after diagnosis (of course Kelly was an adult so would definitely be considered LADA and not juvenile-onset). It is rarer for a juvenile-onset T1 to be producing much insulin many years after diagnosis, but the Joselin study of 50+ year T1's found that some were still producing insulin, enough that they needed less insulin and their A1c's were closer to normal. So it is unusual, but not impossible, that her daughter is still producing a reasonable amount of insulin, especially since she was apparently detected very early in the development of the disease while the beta cell destruction is still in progress.
Shana, instead of trying to delay administration of insulin, have you considered looking for a study that attempts to prevent the development of full-blown T1 diabetes by intervention? There are studies like the Joselin Diabetes Prevention Trial - Type 1 (DPT-1) that may be worth looking at? Since she has antibodies but does not yet have full-blown T1 diabetes she may be eligible for such a study.
