A part of the JDRF Adult T1 Outreach Program, they have launched their Talk T1 Program. The needs of the adult type 1 (either diagnosed as a child or as an adult) audience have traditionally been ignored by the JDRF, so here is your chance to let them know what type of support you need as an adult.
From the announcement
JDRF will be doing a live streaming video presentation that day to discuss type 1 issues that are important toyou
This event will be occurring on WDD, November 14 and it is the first time that either of the national organizations have ever acknowledged that the day even exists.
I have trouble understanding diabetes even though I’ve been living with it most of my life. This program seems like it could be really beneficial. I’m going to check it out…
Thank you for telling us about it. Yes we do get ignored as a Type 1 only happens to children. OK those children grow up. I’m one of them. Took Type 1 at 10. Everyone interested then but as I got older no support out there for me aside from my mom who I lost 7 years ago. I also relive now that grown us get Type 1 too. If it wasn’t for this site I think I would have went on with my “dark age” belife
I’m surprised that JDRF is launching this program, when their sole mission is to advocate for and fund research for a cure. This seems like more of an ADA program, since they focus a lot on education. Sure, the ADA is more heavily invested in Type II issues and education, since they comprise the majority of persons with diabetes. The ADA has Type I information available, or once did. I agree that there isn’t much material for newly diagnosed Type 1 adults, but it isn’t hard to pick up the literature geared toward the parents of newly diagnosed kids and learn a thing or two. And there are support groups and online communities all over the place. Why do we need the JDRF for this?
Maybe people asked, and JDRF found there is a need. Perhaps this is focus on education and community is an inexpensive way to keep themselves involved and relevant, which will help them achieve their real research mission.
I am biased–telling you up front. I can’t help but wonder if JDRF isn’t looking for more funds than anything else. I believe in searching for a cure. But I also believe in helping those with diabetes to manage it better in the here and now. Both are worthy goals but JDRF has ignored the second one.
Both ADA and JDRF seem to me to focus more on their professional members. That is my subjective opinion. I interacted with both officially in a former life. But not lately. I would not discourage anyone from giving this event a try. Organizations can change so it is worth a trial. : )
