What would you want your doc to know?

The concern is that for a lot of patients it’s an indicator of hypos, A1C being such a blunt tool as others here have noted. I think it’s actually a good thing that they’re taking a more nuanced view of that number and not simply going with “lower = better!” the way they used to.

On edit: in other words, yeah, what Yoga0: said.

PB - you also have to look at the flip side too, some endos are control freaks that demand patients not to adjust their dosages without checking with them first. My mom had one of those endos for a while many years ago and it was a disaster.

For me, doctors need to be more open minded and think outside of traditional textbook knowledge as well as communication skills with colleagues.

  1. Case in point my mom’s low blood sugar coma. Her endo was set in his ways that she had a stroke because she should have come out of the coma as soon as her blood sugars came back up. The ER doctor and admitting doctors (Internists) both were not on the stroke bandwagon based on the CT scans being negative. They called in a neurologist. Who confirmed that because there was no definite way of knowing how low her BG had gotten (meter read LOW) when the nurse found her and for how long, she was in fact in a low blood sugar coma. It would take some time for her brain to recover and heal which she’s doing.

  2. Same endo is adamant that I need to wean myself off my prednisone for RA in order to “reverse” my diabetes and that even though I have other autoimmune diseases, they are not relevant or connected to my diabetes diagnosis. The endo also refuses to request any autoantibody testing. My rheumy almost had a cow when he heard this and has demanded that I get a second opinion (my appointment is May 26th) and continue my prednisone regimen.

  3. Same endo refuses to talk with my other doctors’ about my conditions, rather he asks me what they say. He also refuses to read any labs from other doctors or any of my spreadsheets. All he cares about is the A1C number and your weight, and then he’s gone to the next patient.

thankfully, I only had one endo (one of, but not THE the worst I’ve had, out of 8) want me to clear dosing changes with him, which is understandable given I was a newbie. When I see my current endo, we just chat about all sorts of topics, some of which might be related to diabetes. :slight_smile:

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I think in my mom’s case, it was more of the doctor not knowing what she was doing. She also had mom on the wrong high blood pressure medication, resulting in her first heart attack. The doctor who is now her cardiologist said the internist should have never prescribed that medication to mom in the first place with her family history of heart problems as well as being a diabetic (which Mom was completely upfront about during her first visit).

Now I hear this doctor is a “concierge doctor”–only taking patients who pay upfront–no Medicare or insurance filed.

Can a Endo or Cardiologist be your PCP. I think I might have to fire mine as he doesn’t listen to my problems. Actually, I think he could have prevented the heart attack and at least save me some heart muscle damage if he has just listen to my overwhelming fatique that I had seen him twice about. I have no clue in picking ot a new one, as I have about 350 choices where I live.

For my insurance, an endo or cardiologist cannot be your PCP, but an internist can be your PCP, very tricky to say the least.

I have used healthgrades.com before to see what people have to say about doctors’ beside manners, their office cleanliness, etc. Also, in my case, my insurance also “gold stars” some doctors–those that save them money I’m sure. Just my opinion.

My last endo wanted me to let him dictate dosage changes at first (on a sliding scale…), but I did not like the results and stopped listening. Couple people here on TuD helped me switch to carb-counting (or guestimating) at that point… At the next appointment, he liked the results I was getting MY way and he told me to just “do whatever you’re doing” and tell HIM what I needed him to prescribe…

Wow, y’all got some nice doctors. My endo would have cut me off at the knees and said something snarky like “When and where did you get your medical degree?”

@YogaO - Even with severe carb restrictions, before 1921, most T1Ds died within a few years. Perhaps “viable” with the Latin root meaning life was not a good choice of words!

@Kate33 - I’d probably return the doctor’s snark and say something like, “I’ve lived with diabetes for more than 271,000 hours. How many hours did you spend in medical school?”

Doctors need to respect the incredible knowledge that we all have living with diabetes 24/7/365. I’d put my insulin dosing chops up against any practicing endocrinologists’.

Our health, of course, should not devolve into a competition of snark.

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Good comeback @Terry4. I really need to work on my comebacks. I’m slow on the up take with those witty one liners that some of my friends can spit out. There really should be a school for folks like me that need to learn that skill. :smiley:

@Thas

When doctors say something like this, I think they realize that patient-directed management works best. With diabetes, there is so much trial and error. For doctors to follow patients with a quick iterative rhythm would be unworkable considering their patient load. Doctors need to work with us, not for us.

@Kate33 - I’m like you, in the moment. I’m much better with the written word. I don’t think that skill can be easily learned. Some people are just more quick-witted. I’m not one of them!

I know my doctors know because I tell them. I tell them that I consider T2 to be a self managed condition. I see my PC as a paid medical consultant and as such I value her opinion ,but I am well controlled and I will make the finale decision on diabetic care. It took me three tries and I finally found a PC who agreed with my approach.

Hi, Terry, I am glad to know about time-in-range. That really helps reduce the pressure I feel when I get a much higher than normal number, since I know once the correction kicks in I am indeed more back in range. I just hadn’t thought about it that way before and then obsessed about the high (and causing myself more stress). What a relief, thanks!