My husband is diabetic and last summer we noticed my son was peeing a lot. Took a morning blood sugar and it was 125 sonwe took him to our doctor and he ordered OGTT. That test showed a drop in blood sugar at 1 hour, which he said wasnt typical and sent us to a pediatric endo just to be safe. Endo ordered another OGTT because with the first the doctor only ordered glucose levels be checked and they wanted to also look at insulin and c-peptide in correlation to glucose. This time he dropped significantly at 1 hour and showed super high insulin release at that time. More tests and doctors later showing he has random (often post meal and night time) hypoglycemia, but occassional highs as well. His endo then referred us to a new Endo that he was hopeful would make sense of it all.
The new endo had us taking blood sugar 6-8 times a day and after looking at the random highs and lows she felt he was in the “very early stages” of type 1 and ordered a dexcom g6 for him as she was concerned about hypoglycemia unawareness. But considered him pre-symptomatic so the dexcom and glucometer are our only “tools” in this journey so far.
He has had the dexcom for 2 months now, with a typical week having 3-4 lows below 60, and 4-5 highs, not crazy high but above 180 and only ataying above 180 for 5-15 minutes.
The past 2 weeks we have seen a huge increase in highs. He is now going over 200 with everything he eats or drinks (meals and snacks) and staying there for 30-60 minutes. His morning fasting numbers were typically between 100-125, and in the past two weeks have been 135-150.
I have emailed his clinic, but my question is… at what point do we stop just watching these numbers go up and get a sooner appointment with his endo or when should we just take him to the ER? I dont want to overreact and waste anybodys time, but i also dont want to ignore it until hes super sick. My husband was in DKA when diagnosed and in ICU for 6 days, so I am kind of terrified of that process!!
They were seeing him every 3 months, but had to reschedule his next appointment and its not until mid November.
Thank you if you read this whole novel and for any advice you can give!!