Hello,
Just created my profile. I’m type 1 and am wondering if any T1s on MDI has tried Treshiba?
Thanks!
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Yes I love it and preach it’s awesomeness ad naseum on this forum
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Really…? were you on lantus or levemir prior…a split dose. How was your transition to it? Did your units stay about the same, one dose or do you have to split it too. I can’t find a basal which lasts long enough. I only take 8 units total but they just burn out way too soon, adding more of either just made it stronger and me go low. adding more of any basal doesn’t make it last longer…it just lasts as long as it’s going to. HA!
Please share your experience, if you would? I’m going to go on it in a week or two?
thanks!
You can start by reading that
I went from 1x daily lantus to 1x daily tresiba… Same dose initially but have over time tweaked it a little.
Couldn’t be happier with it. I didn’t really have any specific problems with lantus but tresiba is just vastly better.
No hardships with transitions at all-- just took tresiba one day instead of lantus and never looked back. It’s easy, don’t over think it (several posters here have switched, some seemed to want to make a big complex ordeal of it)
Give it a few days without changing anything. Take it every day 1x with whatever your total daily lantus dose was. It takes a couple days to reach a steady state in your body…
I think you’ll love it.
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Thanks…You’re not a spokesperson for them are you? HA! Do you take AM or PM…it’s supposed to last longer but it’s not stronger, correct?
I hadn’t really heard of it but my Endo recommended it to me today if I don’t go back on pump. I’m glad you’re happy with it…I hope it works better. I take such a small amount…split doses in half just made it less strong…
No I’m not a spokesman.
I take it in the evening, but honestly suspect that it doesn’t really matter because you’re taking it every day and it’s taking like 40+ hours to wear off, net effect being that it’s never in a state of “wearing off”
There is u100 and u200 available. A unit of insulin = a unit of insulin in theory, so no it’s not stronger in either case-- ones just less watered down.
I actually ended up increasing my dose a little after a couple weeks to where I was taking slightly more than I was with lantus… But that gradually fluctuates over time with my activity levels, exercise patterns etc.
I’d just take it whenever works best in your life…
I currently only take 10u daily as well
Tresiba is actually insulin degludec, which has been widely available in Europe for several years. Our crack FDA has only recently allowed it into this country. It has a sparkling track record and virtually no downside at all.
OH THANK YOU! I can’t wait. I’ve had such bad lows splitting my doses…but one dose never lasted long enough or I never got it right. IDK. This is good news. Much prefer MDI over pump. Gonna try it next week. I’m reading the thread you gave me, too. THANKS! 
I switched about 3 weeks ago after reading it on here also. Just took the same dose one day and works great. Like Sam said, no need to get complex, I take the exact same dose of Tresiba as I did of Toujeo. Very flat and stable and lasts super long.
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I did a 2 month trial of tresiba. loved it. needed a slightly lower total dose than what I was taking for levermir. It is quite marvellously flat. Even helped to level out some hormonal stuff, though how, I’ve no idea.
When I combine tresbiba with low carb eating, I can almost forget I have diabetes, as I hardly need any bolus insulin.
I am currently not taking it only because I am trying to use up my supply of levermir before it expires (I can’t afford not to use up what I have), after which I intend to be permanently on Tresiba.
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I have had T1 for 52 years. Have been on pumps (3 different name brands) for the past 30 years. I have gastroparesis (pretty bad) and the pumps were not much help. After seeing a ad about Tresiba and reading about it here, I asked what they thought of me switching to Tresiba and Humalog. I switched and I have nothing but GOOD to say about it. I use a Dex Com G5 and my graphs have improved greatly. Not to mention the freedom I feel not having tubing to work around.
I have been on Tresiba and Humalog for a couple of months now and I can’t be more pleased.
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My son switched from Lantus to Tresiba in March and it was a terrific decision. So stable. He started at basically the same dose but now use 1-2 units less. No stinging, 24 hour solid coverage… we did try dosing every 36 hours and being able to skip a day sometimes but Tresiba really needs to be dosed daily. He injects it before bed and we don’t have any hypo issues through the night. Good luck with the change! I don’t know anyone who has regretted it. It’s approved for pediatric use in Europe. My son was the first pediatric patient in his endo’s office as they weren’t yet educated on the new drug. Went to a T1D camp this summer run by Dr. Ponder and he loves using it too!
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It’s still considered off-label for those under 18 years old in the U.S. Our insurance will cover it (after I managed to win the usual weeks-long World-War-Insurance Company battle). But because my daughter is only 14, the Tresiba copay discount card cannot be used. The copay is exorbitant without being able to use the discount card (even with our BCBS Fed health insurance). We don’t qualify for the Patient Assistance Program. I simply physically cannot add any more hours onto my double-time schedule to generate more income to cover the cost of Tresiba.
I have been quite “successfully” (not as nice as pre-puberty numbers 
) managing my daughter’s numbers even through puberty (A1cs high 5’s to mid 6’s) but currently, despite every thoughtful pump variable adjustment I’ve made (both with and without the assistance of her excellent endo and other experts in the field) her Dexcom graph looks like a never-ending thunderbolt. I’ve got to find a way to try pumping untethered with Tresiba because I’m hoping this will at least chop the tops off the mountains of the highs she is experiencing while mitigating her multiple daily and overnight lows (trying to get by on 2-3 hours sleep the last few nights is beginning to take its toll.) My daughter is becoming angry with my inability to keep her from going so high she feels on the verge of vomiting only to be followed by scary lows. I don’t blame her.
Please keep your fingers crossed for us!
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Love it! I was on a split dose of Levemir, but on a constant roller coaster. Much more steady numbers with Tresiba - I take it once a day in the morning. I’m actually taking less Tresiba than Levemir.
Since you already take a low dose of basal, ask for the U100 Tresiba. The U200 can only be adjusted by two unit increments. U100 can be adjusted by single units.
Google, “tresiba instant savings card” and read about the savings card. With their card, I only pay $15 for a box of pens.
FWIW, I found Levemir quite good as a basal. For me it required 2x/day (and I’ve seen reference here to 3x/day being ideal), but for as much as I do like Tresiba, it’s just an incremental improvement. My insurance’s formulary (or whatever you call that layer of prescription insurance “management”) would gladly allow Levemir at low cost but Tresiba not at all until a few months ago. I don’t know about Levemir for pediatric use but it’s been around longer so odds are better; I’m sure you’ve looked at this. Good luck!
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I have been on Tresiba for almost six months and love it. No more random hypos and the release is super steady and predictable. Been on Lantus which Was crazy up and down. Toujeo little better. Tresiba far better. Along with Afrezza my A1c is a 5.4 as a T1 with zero severe hypos. I used 30 units of Toujeo and settled at 24 units of Tresiba. It is stronger and will effect your bolus dose as well.I use less Afrezza now
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Thanks to Afrezza I have been pump free for well over a year and Tresiba has made it even better. No more spikes and my CGM line is mountain free. Tresiba can last longer up to 36 hours so if you are late on a dose no worries. Took me a few weeks to tweek the dosing then had to tweek Afrezza due to Tresiba working so well.If you do start trending low it is super gradual and corrections are easy. No more spirals. Good luck.
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So, I’m wondering if anyone can please help me with dosing here? I’ve been taking 4 u am and 4 u pm Levemir doses - total of 8 units. My endocrinologist (whom is fabulous!) gave me a sample of Tresiba to try. I picked it up today but she wasn’t in the office. I want to take my new 1 (one) dose only of Tresiba at night. I took my 4 units Levmir this morning at 8am do I just take my full dose of Tresiba 8 units tonight at 8pm? Endo said start with 8 units. And I wait 3 - 4 days to tirate up down if not correct dose? The goal is to go to bed at good number and wake up to that same number, give or take say 30 points? I’ve never woken up to a good number, without doing something in middle of the night, treating either way, since diagnosis. If this works I’ll be so, so, happy! I do not want to go on a pump.
Thanks!
It sounds as if your doctor is recommending the full 8 u the first night. This would agree with what my doctor told me when I started Tresiba: the full dose the first night, and every night thereafter.
I would check with your doctor for exact titration guidelines.
Mine gave me the following instructions:
wait three days;
increase or decrease by 2 units.
Keeping my level the same for three days worked well for me. It made transitions easy, and provided me with enough feedback to make the changes as needed.
Doctor started me at 16 units. I titrated down to 8 units; after a couple of illnesses, I am currently at 12 units.
Best of health to you.
My last a1c was 5.2 with tresiba and afrezza. I had low a1cs with lantus and novolog too, but the amount of effort I was putting into management was tremendously more. I’m glad to have these options and spend more time living my life
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