Worried about vision loss


#1

Hello everyone!

My name is Liana. I am from Europe -> Latvia, Riga.
I am 31 years old and have diabetes for 19 years.
When I was younger, I thought “I will live forever” but now I started to understand, that my diabetes control was not good.

About a year ago my eye doctor said that she see first rethynopathy signs. Now I am checking eyes each 6 months and I dont know… its is maybe partly psychological but I feel that eyes feeling worse.
I am so worried 24/7, trying to google and usually finding information like “you will lose vision”.

And how happy I feel know, when found this forum! So good suggestions and stories about treatment and eyes. I dont feel lonely with my worries now.

Happy to find you guys

Wish you all good health and 100% vision

Liana


Welcome! New members, please, introduce yourself
#2

I’m glad you found TuDiabetes as well! The internet can be a scary place when generally searching for things like “vision loss.” I’m confident you will get more targeted, reasonable and encouraging information here. Welcome!


#3

“Live forever”? Hate to break the news but, there’s no way out of this, alive! But, if you religiously keep your BG within the ranges specified by a good endocrinologist, you’ll most probably enjoy an average expected life span.
Ask around, to make sure you do have a really good opthamologist and have your eyes checked as frequently as they specify. That will go a long way to relieving your anxiety. If you notice something not quite right, with your vision, be persistent when talking to your doctor’s office. Oftentimes, they aren’t paying close attention so don’t be afraid to get a little pushy. (once, I wasn’t and I paid for it by having to get retina laser surgery.
Good luck, be sensible and you’ll do just fine.


#4

Oh, Liana, I am so sorry that you are so worried. When I was 30 and had already had type 1 diabetes for 22 yrs, I too found out that I had the beginnings of retinopathy. I was devastated.

I started getting a better handle on controlling my diabetes, and the retinopathy disappeared. Now ophthalmologists can’t tell that I have diabetes and haven’t seen anything unusual in my eyes for many years. I am now 68 and plan on living a very long life.

If you control your diabetes well, you will be fine and will live a normal lifespan.


#5

I was DX’d in 1966 at 10 mos old. My first retinopathy treatment was in the mid 90’s, then again in about 2004, then a few treatments between 2015-2017. Ive also had the combo injection in both eyes, as well as a vitrectomy in one eye.

Im lucky to have one of the best retinal specialists in the country, and she flat out told me the one thing that affects progression by far is high blood sugar. Glucose in the bloodstream is kind of shaped like a sputnik, and as it flows through the smallest of capillaries (which are in the eye) they continuously are scraping the walls.

Now, I dont say all this to scare you, as I can also tell you Im corrected to 20/20 vision, with very little peripheral vision loss. As long as you keep on top of things and dont let things get out of hand, it is very manageable. Dont miss your appointments, and dont miss treatments :slight_smile:


#6

Welcome!

#1 thing you can do is manage your blood sugar and maintain good control over time. Make sure you are eating well, taking your medication, and testing blood sugar regularly.

#2 thing is regular eye exams. Have your eye doctor dilate your eyes for a retinal exam and test the pressure of your eyes.


#7

Don’t know if available in Europe, but Eylea injections put my retinopathy on hold and improved my vision.


#8

This link suggests eylea is used for macular degeneration, not retinopathy.

Is it also used for diabetic retinopathy ?


#9

Clinical trials that seem to be working in this direction?