A little boy learns about his pancreas

Had a “teaching moment” this morning. Let me set the stage – last night was horrible. Eric had a sudden BG dip at 3:30 a.m. that I caught, by whatever miracle, before he got too low, but neither one of us got back to sleep until almost 5. How Nate slept through it all, I really don’t know, but he did, and this morning was bouncing around celebrating how well he’d slept, and emphasizing that for once, he hadn’t appeared in Mommy’s bed during the night (this is, in fact, a Big Deal, not in any way lessened by the fact that Mommy spent very little time in Mommy’s bed herself). When he asked me if I had slept equally well, I had to say, No, I hadn’t.

“Why not?” he wanted to know. Well, Eric was low last night and we had trouble getting back to sleep. A wise nod; Nate knows all about Eric being low (see prior post). But then he asked a question that threw me: “Mommy, what happens when Eric’s in the middle?”

In the middle? In the middle of what?

“You know, when he’s not high, but he’s not low.”

Well, that was certainly a good question. I explained to Nate that the middle was where most people were, people like him, and me, and Daddy, and Big Sister Kayla and Big Brother Tom. You see, I told him, everybody has this thing called a pancreas in their tummy, and the pancreas is what keeps us all from going high and low like Eric does. The job of a pancreas is to make insulin so that you never have too much or too little sugar in your blood. Eric’s pancreas doesn’t work right, so that’s why he has an insulin pump, only his insulin pump doesn’t always work as well as a pancreas would, so he sometimes goes up and down anyway. You know how sometimes he’ll grab a juicebox and sluuuuurp it up really fast? That’s because the sugar in his blood is low, and he needs the sugar in the juicebox to get it back up to that middle place. And other times, he eats a lot and if Mommy doesn’t give him insulin with his pump, his sugar goes really high and he feels sick until Mommy presses the pump buttons and gives him the insulin to bring him back down to that middle place. You and Daddy and Thomas and Kayla and Mommy too, we all have working pancreases that do all that for us, but he doesn’t. That’s what’s called diabetes.

“I have a pan-ker-us too?”

Yes. You have one, and so does Eric, and the rest of us too – we all have one. Just some people, like Eric, have one that doesn’t quite do what it’s supposed to.

“And it’s in my tummy?”

Yes.

“I like having a pan-ker-us in my tummy, Mom,” he said solemnly.

Me, too.

Thanks for sharing; it was really cute:)

Isn’t amazing how the siblings pick up on this!!! My 4 yr old daughter was recently diagnosed and my 5 yr old knows how being high or low are not good and so on…It’s cute, that was a great story.
P.S. I can relate to not sleeping…I find myself up until midnight most nights checking her then up in the middle of the night to test /check her, and often find myself just sleeping in her bed with her. I am so afraid something will happen in our sleep and I won’t know and I will wake up to an emergency. Maybe it’s because they are so little. My daughter has dropped low in the day and not felt it so I doubt she’d recognize a low in her sleep. It’s scary…I keep praying for a cure :slight_smile:

I can never express myself correctly when it comes to Mothers of diabetic children, I am just in awe of your strength and love. You are chosen very carefully. I do admire you.

You have some pretty profound children, which I’m sure is no coincidence!

Here is a blog post about a cure encounter I had with a kid with D. Eric may be the only one in the house who doesn’t have a working pancreas, but I hope that he will always know that he is not alone :slight_smile:

So cute. My 4 year old grandson is always asking “are you checking your sugar now?” cracks me up.

Great story! I love hearing the wisdom of little kids.

He is so cute. Miss this age. Wish he had a working pancreas, too :slight_smile:

I love this story. I wonder how my mother explained it to my sister and other people - back in the 1950’s !!!
Because we had no BG meters, testing abilities, pumps etc I always had to rely on “how I felt” - I don’t know if its any consolation but going low in my sleep ALWAYS woke me up. I have even put alcohol into that mix and it has woken me up. I don’t know what it is…but the feeling of going low is so acute in me - 99% of the time my body is right. It is very hard for you young mother’s, young children, to learn and understand what a low feels like and as I said…always, always trust what your child is feeling. If he tells you he is low - always trust what he is saying. As I said, if its any colsolation - I am still around at 56 years with D, I have only had a few times that I needed help with a low.
Sheila

@Kelly, I definitely sympathize! I have that same fear. I think we all do.
@Robyn, aw shucks, just doing what I must.
@Sheila, 56 years? Wow… now if anyone is to be admired, it’s YOUR parents because at least I have BG meters and insulin pumps to fall back on. Gives me hope for Eric’s future, it truly does.

@Kristin, great post - I will make sure he knows that he’s far from alone. Although lord knows, in many ways I wish he were a lot more alone than he is… I just gave a bunch of Eric’s outgrown pump-ready shirts to the clinic to pass along to parents of a 17-month-old diagnosed in March (they just got her on an insulin pump and didn’t have any accessories) and we had a first-grader in Buxton diagnosed six months ago, so there are now three T1s in our small-town school district.

Oh so sweet.Children are a blessing as much as the great mothers that look after them.xxx