Anyone diagnosed with Charcot Foot?

Hi Everyone,

This is my first post. I wanted to thank all the members who sent me such warm welcomes to your forum when I registered last week. I have been following your forum for a week now and have been very impressed by what I read and learn here

I am T1 diagnosed in May of 1957 at the age of 9…yes, 54 years ago. My complications have been limited to “mild” coronary artery disease and peripheral neuropathy. I say “mild” because I had a 75% blockage in one artery only which was opened by angioplasty in 1995 and has remained wide open since. Thankfully the only med I am on for that is Crestor. My father and grandfather died from heart disease so my CAD may be more genetic than diabetic related. I have good circulation in my feet, but peripheral neuropathy has gradually creeped in.

Is anyone here familiar with Charcot Foot? I do not know if this forum allows links, so if this is deleted by the moderators I certainly understand. http://www.oandp.com/articles/2009-11_03.asp

This past April I was visiting my son and grandkids in San Francisco (I live in Florida). We had taken a weekend trip up to Mendocino. I was walking through some sand dunes to get to the beach and my lower right foot literally shifted out of position. It didn’t hurt because of the neuropathy. When I removed my walking shoes later, my foot was swollen and warm to the touch. Everyone wanted me to go to the ER, but I declined since I knew immediately what the problem was and an ER doctor would not know how to treat it. I had read about Charcot Foot when researching peripheral neuropathy years ago and I realize now I had probably anticipated it becasue of my long term diabetes mellitus.

Long story short I have been in a CROW Boot for 7 weeks now (it took 6 weeks for BCBS to approve)) and it is definitely a slow heal. http://www.acor.com/custom_crow.htm. The limited mobility is driving me nuts, but far worse is the lack of exercise and its’ negative effects on my readings.

I am very interested in hearing what others have experienced with Charcot Foot. But please feel free to PM on anything T1.

Kathlyn

My sister had it. She was diagnosed 63 years ago.
I know they gave her a machine to stimulate bone growth, which was nice and apparently worked well.
It truly did show up out of the blue.
Hope it heals successfully for you.