I’m so done. I have been on the Tslim x2 pump since August of 2021. I was so excited when I first started! It was of course a lot to take in, but I felt up to the challenge. I had previously only used MDI via pens, so the world of pumping was and is completely new to me.
Things were going pretty well for awhile. I was loving the control of the pump and becoming more comfortable with using it. Recently though, it feels like I’m not getting the same results that I had been. It feels like I’m not getting the insulin I need, I’m constantly fighting highs, and once it gets high, it stays there for hours despite the Control IQ offering corrections. I got so frustrated at one point that I started giving doses by entering in carbs into my pump, and then not eating. This had varying levels of success, but for the most part didn’t work. I told my endo this, and she discouraged me from doing this and suggested I let the control IQ do it’s job.
The problem is, I feel like it’s not doing it’s job. It’s making me feel scared to eat because I worry about the consequences for my body, mind, and mood. It makes me wish I didn’t have to eat which is kind of sad because I love food.
Another issue that’s been bumping around in my head recently is an article I read regarding pumping and pump malfunctions in which some individuals were given mega doses of insulin through their pump without knowing (im talking a week’s worth of insulin), and falling into a coma, and eventually dying. This is something that no Tandem rep, diabetic educator, or doctor warned me about. I recognize the likelihood of this happening is low, but ever since I read that, I’ve felt anxious and scared. Coupled with the frustrations I listed above, I keep wondering if pumping is even worth it. I also am annoyed that I wasn’t informed of these risks by anyone prior to pumping, but I take some responsibility for this because I should’ve been asking more questions. The main risks I was warned about were not staying unplugged from the pump for too long because it can cause high sugars and DKA can progress quickly with pumps because no acting insulin in the background.
When my blood sugar gets as high as it has been getting, I fall asleep. I fell asleep today very quickly and woke up thinking it was the next day. I looked at my CGM app and I was at 365. When it’s that high, my brain feels like mush, and I can’t think. In total, it took about 5 hours to get it back down under 200 from the pump. Before it went up, I had pre bolused for food, so in total with corrections and the pre bolus, I had been given 9 units.
I’m just frustrated and scared. I keep thinking of the long term effects of these days that my BS is so out of whack. I keep thinking that even on my days off from work, I get no breaks, and I’m constantly trying to do the mental math to figure out if it’s worth eating at all because of how it could effect me later. I’m exhausted from the constant up and downs. I’m jealous of diabetics with better control. I’m annoyed with people in my life that can just eat whatever they want without thought or consequence. I feel useless on days like today because I can’t work on any of my hobbies or do anything fun when I feel like every time I get up I’m walking through mud. I am insecure about working part time because I’m young, and I see my friends working full time, and I feel like that isn’t even a possibility for me because of all of these issues I have. Maybe I don’t know that many other Type 1s, but I’m honestly shocked when I see people in diabetic support groups that work full time hours and still manage to have good control. When I see that, I feel even worse about myself because it feels like not only am I not able to be useful, but the part time hours aren’t even giving me the good numbers.
I’m sorry for the rambling, but if anyone has any advice or just encouragement or support right now, I could definitely use it. Thanks.