I hate to be one of those people freaking out on the forums but I have a legitimatize concern with a surgery that I need to have and as you are probably aware much to my dismay I find out I often know more about diabetes than the Doctors who I am placing my life in the hands of. This is going to be a very long story so I apologize for that.
I have been Diabetic since I was 7 I am now about to turn 30 in the next month. I have struggled with dawn Phenomenon as an adult diabetic and have had very little success controlling my diabetes over the last few years. In spite of this I have never been DIAGNOSED with any complications. I am very physical fit and even took up distance running as a hobby. Things finally started to snowball in the beginning of this year. I was showing symptoms of gastroparesis. I then found out that I had celiacs disease. I changed my diet and felt much better and unwisely dismissed the possibility of gastroparesis. I still struggled with my blood sugar in spite of testing 25 times a day and taking insulin over 6 times a day. ( and still not having lows still running high usually).
Finally in May I decided to try a CGM. With in one week of using a CGM I saw dramatic improvements in my blood sugars and now I am rarely ever over 200 even after eating when in the past I would wake up 300+ most days. To be blunt my blood sugars have been excellent and I was very excited and happy about this. Now as you may or may not already know what can happen when you dramatically improve your blood sugar levels? Diabetic Retinopathy.
Like many Diabetics who dramatically tighten their BS control I suddenly started to show symptoms of retinopathy. I developed a hemorrhage in my vitreous. I went to the eye doctor and he confirmed I have advanced retinopathy. He scheduled me for in office laser surgery. I was upset but glad when the doctor told me my retina still looks good and I wasnt "too late" catching it.
I went to the office for the first laser surgery. I admit I was tense but I was fully ready to do what had to be done. It turns out after struggling for quite a while trying to get the lense in my eye and hold my eye still the Doctor was ultimately uncomfortable doing the surgery this way because of my rapid eye movement and said the best way to do it would be in the hospital with IV sedation but breathing on my own. Now I was really starting to worry. I didnt want sedation for a simple surgery but I was left without a choice.
Surgery was scheduled for the next week and .... I got into a car accident the night before and had to reschedule for the following week. The day before surgery comes and I am trying to mentally prepare for the surgery when the doctors office calls and asks to reschedule because they had an emergency. Which I understand it happens. At this point the surgery was scheduled for 3 different dates and has still not happened.
Finally they scheduled my surgery for yesterday. I was told Diabetics are scheduled for early AM surgeries. I find out the day before I am scheduled for 11:30. I had already made plans to take my lantus late in the morning so that I was not taking it before I went into surgery as I was expecting an early morning surgery. I show up to the hospital at 11:15 or so already late in taking my lantus and not having of eaten since before midnight the night before. They put me on an IV and then let me know theres been an emergency and the Doctor wont be until 12:15 and 2 people are ahead of me and not to take insulin without talking to an anesthesiologist. Hours go by without food insulin or fluid. Finally maybe around 3 or so an anesthesiologist comes into the room and tells me that he doesn't believe IV sedation is the right choice and that hes the anesthesiologist and the surgeon isnt. Then he wanted me to sign consent to be sedated and put all the way under general anesthesia. I told him that was not what I was told and that I wanted to talk to the surgeon. Another 2 hours go by without food insulin or fluid when my eye doctor the surgeon shows up and I am very releaved to see him. He is the only one I feel like I can trust through this whole process. I told him I am uncomfortable not only with what the anesthesiologist said but that he was very rood and he sort of made a rude comment and stormed out of the room when I expressed that I wanted to wait to sign the consent. At this point he was understanding and went and got the anesthesiology chief who allowed me to ask questions and was more professional than the previous person I met with. I expressed to him that I believe its possible that I have gastroparesis as its been 17 hours since I have eaten and I am still belching and I dont feel my stomach is completely empty. At this point he said that in that situation then would put me all the way under general anesthesia or try a lighter sedation then if that doesnt work put me all the way under. Because of the constant delays,high blood sugar all day from lack of insulin and new uncertainty and risks about how the procedure would be done the surgery was "rescheduled"
Now I am at the point where I am meeting with my eye doctor again to discuss how to proceed with the surgery going forward but I have an extreme concern with being put under general anesthesia ( pretty much an enduced coma) especially for a fairly low risk surgery. I feel at this point the sedation is more risky than the surgery. I am very concerned because I have had poorly controlled diabetes for a long time and there are many unknowns on my medical chart regarding the status of my kidneys and heart etc which all can pose complications with general anesthesia. I know that I have had scares with my kidneys in the past. I see a lot of bubbles when I am done urinating and the frequency that I go is concerning I feel even for a diabetic. My blood labs show ok createnine levels but I feel something isnt quite "right" I also had a stress test 2 years ago that came back negative but again this was 2 years ago and I have been told I both do and dont have a hear murmur.
Now I have to make a decision it sounds like to go under fairly risky sedation for a fairly low risk surgery. My vitreus hemorrhage has cleared mostly only after about a month or so and my doctor did tell me that the dmg in my eyes is stable now.
I dont believe the anesthesiologist did or will do the proper research on my medical condition before putting me under and the fact that if I didnt ask about my stomach yesterday they would of possibly risked me suffocating myself. As soon as I said something they took the IV sedation I been intended to get off the table. The concern is what if I didnt ask that question? My point being is I dont feel like they do their diligence.
Again sorry for this really long story but I didnt want to just post a one sentence question without it being in context.
Any input someone could give regarding risks,concerns steps to take before going under general anesthesia would be appreciated.