I've been a T1 for almost 20 years now. And just recently I realized how I've been deceiving myself all of these years into believing that I was in more control than I really was. For the most part, I've lived like I didn't have this disease, with the exception of having a couple of electronic devices attached to me, and thousands of needle holes in my skin. :/ I want to make some changes. I do not have a circle of T1's around me... and desperately need some accountability. Anyone willing to walk with me through this journey ... let me know. :) I also have a blog if you want to read more about my story - http://nomoreshotsforshannon.wordpress.com
Thanks and I'm looking forward to getting to know more T1's!
That is a good idea, definitely. Getting connected with the Diabetic Online Community DOC which is quite bustling at TuDiabetes is a great way to start. When you look at what everyone else is going through, and see how it relates to your struggles, it will not be that hard to find inspiration to take better care of yourself. It certainly helped me quite a bit. :)
Thanks :) I feel like I'm starting all over again ..and I guess in a sense I am? I am so hungry for knowledge right now ... better late than never, I suppose! ;)
If you are like me at all Shannon, it may not be soon enough, but it is NEVER too late. Congrats on your realization and new commitment to your self! This is a fantastic resource for knowledge and support. I have no douct you will find what you need.
Welcome and good for you for breaking through your denial and making a new start! You might want to post if you have any specific questions or issues you are dealing with and I'm sure you'll get lots of support and information.
The folks here have been very inspirational to me....they show that it is possible to get very good control as a T1 - many on here have A1Cs < 6 and some even under 5. It's inspiring me to learn more and continue to improve. Hopefully it will do the same for you.
It is amazing how much information you can glean from sites like this. I learn something new and helpful almost every day. Further, it makes you realize you are not alone. There are so many of us out there. As an adult diagnosed T1 I felt so isolated and almost like a freak. But I realize how many others like myself are living productive lives with this disease. I admire you that you understand the importance of relying on yourself for good control It is empowering and does give you some sense of security knowing that at the very least you are doing what you can to prevent complications. The rest is up to fate I guess.
In addition to reaching out to fellow diabetics, how has your doctor been treating your disease? If they've been letting you slide, it might be time to try and shop around for a new one if possible.
I've found that blog also helps. Though I don't think too many people read mine. Mine is more for being a mom who is diabetic and having a baby who is 7 months old and a step son who is 6 years old with developmental delays, seizure disorder, and ADHD. If you'd be interested in reading here it is: http://dragonmommy.livejournal.com. Thinking about moving it to a place that will get more hits on it. Not sure where though. I haven't really had too much time to write a lot lately.
If you ever need someone to chat with I'm here. I've been diabetic for almost 12 years now. Diagnosed when I was in high school, my junior year week of homecoming. Not fun. I've had my ups and downs with it.
I found a cgm helped me a lot. I had a usual a1c in the 6.9 range for years thinking it was good. I let my sugars go high at night because I would have severe nighttime lows. NOw I can keep better control and my cgm warns me when I'm out. This way it never stays out of range for long, I just got my A1c done yesterday.... 5.8% YEEHA
