I live in a fairly large metropolitan area Zoe and the truth is finding a good doctor to guide those with blood sugar regulation problems is difficult here too. My endo moved out of state last year and the woman I saw afterwards was awful! I’m fortunate to have a kind, opened-minded PCP willing to work with me though and that is enough for now 
I’ll assume this is a joke? This was meant to be a response to grcainmd and appeared in the wrong place. I tried to delete my original post and couldn’t find a delete option. I told you guys I didn’t get this new version of TuD!!
Thanks, Lilli. Yes, I have only seen an endo once and that was in Guatemala. Here, even when I have lived in areas with lots of good endos available I’ve chosen to just have a PCP for prescriptions and manage my own D. I guess I have been lucky with my providers till now but I’m hopeful with all your input that I can make this work.
Here is how to delete one of your own posts.
Click the little three dots right next to “Reply” at the bottom of the post. That will reveal some additional icons, one of which looks like a trash can. Click that one. Voilá.
I actually disagree with this, angivan. I do think it matters if you are a type 1 or a type 2 even when both are on insulin. There are obviously many similarities but the two types do have differences not just in etiology but in the way the D behaves and in the issues one deals with. As for my specific situation. I am not on “both long and short acting insulins.” I’m on a pump which only uses fast acting insulin. My understanding is that it can be very difficult for Type 2’s to be approved for pumps (though it absolutely should not be that way!) and the last thing I need is for Medicare to not improve a new pump. Type 2’s are also allocated a lot less test strips (though if they are on insulin that shouldn’t be the case either!) I’d rather have my diagnosis clear from the start.
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Yep, totally a joke. I was attempting to underscore how clueless most of non-diabetic humanity is when it comes to diabetes, regardless of Type. Sorry for the confusion!
Continuing the joke: kids with T1 become T2 when they are adults if they gain weight. If they lose the weight they go back to being T1!!!
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Following your line of "excellent’ logic, when adult Type 1s lose enough weight, they become Type 0 and simply disappear into thin air!
Oh, I want to be type “0”!!! (Reinstating my sense of humor).
Zoe
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Thanks, David. I didn’t even notice those little dots. Now how do I make my post come under the post I’m replying to? (Like this one)
Juvenile diabetes: just grow up and get over it!
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If you want your reply to be associated with a specific post, rather than just being placed at the bottom of the thread, you must use the “Reply” button under that post—not the “Reply” at the very end of the thread. The two will then be associated with one another.
Once that’s done, you can choose whether you want your new post to display in chronological order, i.e., at the end of the thread, or directly under the post it pertains to. Here’s how you control that:
When a post (we’ll call it “post B”) is a reply to an earlier post (we’ll call that one “post A”), there will be a line directly under post A, by the left margin, that will say something like “1 reply”. You can find an example earlier in this very thread. If you click on that, it will then move post B up to directly beneath post A and indent it so you can visually see what replies to what. If you click it again, it will revert to chronological sequence. It’s a back-and-forth toggle.
Yes, we need to do this whether someone tries to change a diagnosis or not or refuses proper treatment due to their own ignorance. I once again encountered two medical students when I participated in a study, one of whom said: it’s rare for an adult to have type 1 etc. A few weeks before my rheumatologist said something to the same effect There are too many medical professionals out there with these misinformed beliefs- someone needs to do something about the whole education process. A woman I met at a jrdf support group told me someone running a different support group that I had also attended once had told her flat out adults don’t get type 1 ever! This is ridiculous. This woman also told me she was scared to see me do a finger stick:astonished: lol. How was she chosen to run a diabetes support group? I was the only one that attended that night and after that I think they never had anymore meetings.
Agree, there are lot of differences. And the wrong diagnosis can have dire consequences.
I hope eventually it all goes the way of Guatemala, it would make life easier and less stressful hopefully. I would just check your records to be safe, I agree it probably would be hard for him to change it but I’m sure it has happened to some people with whatever diagnosis they have. We see plenty of type 2 adults coming here to say they are now diagnosed type 1.
I guess it depends on the people really… maybe regardless of their age. But I just chatted with two med students, one who just graduated, for a study and she also thought it was rare, the other didn’t say much. I saw an older neurologist who immediately said this to me when I saw her for vertigo. She then proceeded to interrupt my medical history convo constantly writing down the wrong meds information etc. She had an argument on the phone in the middle of my appointment about her broken computer. At that point I went to the bathroom and considered just leaving completely. She had two med students there who were very interested in what I had to say and who kept asking me questions about the diabetes and other things.
Btw… welcome back 
Hi Zoe, I am still here (and here thanks to your original introduction).
I feel your frustration.
I am pretty happy to settle for a Dr that just writes prescriptions, and think there is nothing wrong with that.
I sacked my endo long ago and no longer have one.
I do have a really decent PCP (who I really should see again soon - it’s been 6 months), who doesn’t manage my diabetes or thyroid (I manage both of these quite adequately), but does keep an overall eye on everything - overall health. He was a gem when I had dengue last year!
I hope I can keep him for long…
Thanks for the welcome back, meee. If I can figure out how to do so I might start reading and responding to some posts again. I think it would be great if our system was like Guatemala’s (and many other countries’) but I’m not holding my breath. The U.S. is way too into controlling our every breath.
I can clearly see you are replying to david’s comment. when we had the old platform, if you replied to someone in the middle of a long discussion, it seemed very disruptive.
here’s a nice little article on the “flat vs threaded” design styles and why this platform is so much better.
play around with clicking on david’s picture above your comment etc
I’m an adult type 1 and I always assumed I looked young enough and fit enough for people to not need an explanation that I had type 1 since childhood. Now that I’m aging (38 yrs), I get second looks and prompts to prove my legitimacy at new providers a lot.
Speaking of GP issues, I was seeing a GP practice in a town of 100,000 in AL after we moved here because it’s 90 minutes to an endocrinologist and I was new at my job. The original dr was good, he was just kind of testing my A1cs and filling scripts, but left after 6 months and his replacement refused to treat me or fill scripts for diabetes.
He referred me to the more well-known endo in Birmingham (with cure clinical trials going at UAB) and I couldn’t get in to see him for over 6 months. So I finally had to just find my own in the city when my perscriptions got too low to continue waiting on the research practice. I did end up finding one, but it was a huge PITA because the specialist offices all wanted a referral and so it was a lot of leg work with the GP who now only does my vaccinations.
I sympathize with the frustrating lack of specialists available and also with the having to prove your diagnosis.
About 30 years ago I went to a new doctor after my son was born. The doctor who was taking care of both of us, kept telling me he was too fat. He wasn’t. So I found another doctor. Mind you this was my family doctor. He didn’t believe I was a juvenile onset/type 1. He kept telling me I wasn’t a diabetic when I asked him for the refills for my insulin and syringe. He told me HE had to make sure I was a diabetic. So HE had me go through another glucose tolerance test. I didn’t remember the first one I had at the age of 5, but having to have one again, that was ridiculous. I’ve never had a doctor doubt me when I told them that I was a juvenile onset/type 1 diabetic, never. I had to keep this jerk for a while because all the doctors in my area weren’t accepting new patients. It took me 6 months to find another better doctor.
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