I am new here and just introduced myself in the introduction post, some of this post is a repeat!
Along with a lot of you I am on a frustrating journey! I am only 35 years old, I am not overweight (BMI 21). I have always eaten a healthy diet and am fairly active. I do not have a strong family history of diabetes. There is no logical reason that I have this disease!
When I was officially diagnosed with type 2 my A1C was 8. They put me on Metformin and that combined with a very low carb diet got me down to 6.5 in 3 months. Everyone was happy, except me! I asked to be referred to an endocrinologist as I believed I fit more with a type 1 diabetic (I had also lost 25 pounds in a year without trying and was still losing weight at this point). I got in pretty quick and she ordered the antibody tests, although she did not believe I was type 1. Those results just came back and were negative. At her advice I started to add a few more carbs back into my diet. I made sure these were healthy carbs and low in GI. Also at her advice I stopped testing as it was causing me stress.
Well I have a routine doctors appointment in a few days. At first I wasn’t going to get my A1C done due to fears about Covid! So instead I tested at home. I was surprised to find I tested at 16 mmol/L! This was after a fairly low carb meal! I tested my fasting the next day and it was 13 mmol/L. So I decided to brave it and go get my A1C, it came back at 8.5! I am beyond surprised and frustrated by this! I have done nothing different, except add back in a few carbs at the advice of the endocrinologist.
What else can I do? What should I be asking my doctor? I feel like I am doing everything right and still failing. I thought for sure the answer would be I was actually LADA, but apparently that is not the case. I eat the healthiest diet of anyone I know. I have three young children (4, 3, and 1) who keep me extremely active and busy (my average steps per day is 12000). I don’t know what else I can do. I wish was I overweight and sat around eating bad food all day. Then at least I would know there was something I could change. But that’s not the case, I don’t need to lose anymore weight, if anything I would like to gain some back. I already don’t eat any sugar, very low carb, high fiber, medium protein and medium fat. I’m now at a point where I am afraid to eat anything (I do still eat but feel bad about it)!
Has anyone else been on a similar journey? Can you share you experience? What worked for you? Should I try switching to something like a keto diet? My endocrinologist did not recommend this, but clearly her approach of adding in carbs didn’t work either!
I look forward to hearing from you!