I don’t want to make any kind of political statement, but lately I’ve just been kept up at night, feeling an intense sense of dread and dismay about the impending changes to the healthcare industry.
We are lucky that right now our healthcare is fabulous and we do not have big out-of-pocket expenses. But I know that no job lasts forever and that accidents can happen, job security for young adults is even more precarious and uncertain than it is for us, and I just look out into the long future for my son and see a lot to be worried about.
We would be able to pay for the out-of-pocket expenses of daily diabetes care assuming my son stays healthy, but that whole equation changes if he develops any kind of serious complications. And then I am heartsick thinking of all the other people with diabetes who will be facing increased complications, financial ruin, and death if the system changes as I fear.
I’m just wondering if others feel the same and if they have any backup/contingency plans other than “hope and pray not to get sick and to stay on good insurance through my employer?” There seems to be a lot of wisdom and insight in this community, and I wish there was some way to leverage this insight to actively protect our PWD. The obvious solutions (call your representative, fund advocacy, etc.) are so disheartening because they all involve buy-in from people in power and require filtering any ideas through our dysfunctional political system. Is there some way to make an end-run around all the obstacles to getting good care? Anyone have any amazing solutions sitting in their back pocket?