I’ve created this topic to share my experience with two Abbott Labs Freestyle Libre CGM devices and their subsequent failures. Last Summer my doctor suggested we try a constant glucose monitoring device in an effort to sort out ongoing issues with blood sugar control. The first unit was attached to my arm around the middle of July and worm for the recommended duration. Upon returning to my doctors office for the follow up visit I was told the unit had only recorded roughly thirty minutes of data (whether or the not the data was intermittent or consecutive I do not know for certain). My doctor suggested we retry the test and another unity was attached and worn for the two week duration. This device also only recorded roughly thirty minutes of data.
The first device was attached to the side of my arm and removed by myself the morning I was to take it back to the office (something I would later regret). The second was attached to the back side of my arm and then covered with an additional layer of tape as a measure against the unit shifting or water causing issues. The second unit was removed by a nurse, tape intact, and the needle came out of my arm straight with no visible signs that anything was out of place.
The failure of both devices in a similar fashion created a great deal of tension and a loss of trust between myself and my physician. He even went as fair as using the word “tampering”.
I’m reaching out to anyone here in an effort to figure out what the issue could be that could cause two failures in a row and each time the device only recording a half hour of data?
In both instances I exercised vigorously directly after the device was installed on my arm as I biked to my doctors office and then rode very hard on the way home. I also had regular strenuous exercise with excessive sweating while wearing both units. In addition I sleep on the side the device was attached and tend to shift around a great deal at night.
That being said the tape that holds the unit on was still holding strong and upon removal each unity showed no signs that anything was amiss with the needle.
This combined with other issues I’ve had with my doctor caused him to discharge me on my last visit. I would have been fine with this as it was clearly time to go in a new direction but after reading the doctors notes for the final visit I found things like “I’m concerned about the patients motivations” and “there is a lack of trust between physician and patient”.
Not to get too fair off the topic (sensor failure in the Freestyle Libre) but this lack of trust did exist but not in the fashion implied in my doctors notes. For the duration of my time as a patient he had repeatedly told me that I was taking far too little Lantus and that my use of Humilog was covering for my base insulin even though I had fasting periods with very stable blood sugars on a 14 unit Lantus dose that often exceeded 12 hours. My doctor at times had suggested I should be taking upwards of 28 units - this based on a formula that he claims hasn’t varied from any of his other patients and had been very effective. Using the formula on the Lantus website shows my dose is right on track.
In addition my doctor referenced that I claimed my sugar would rise without eating in my discharge letter. I did. Everyday AFTER I wake up, whether I eat or not, my sugar will spike. Whats worse is that it does so in varying amounts. One day 3 units of Humalog will cover the spike, others it takes 6 units. He does not believe this occurs even though there are many people on the internet who describe the same thing and a few that claim it’s merely the dawn phenomenon (something not always associated with morning blood sugars it seems).
These things have produced some heated visits and I would have been fine if the final write up had merely said something like “I and the patient are parting ways over a disagreement in the direction his treatment should take”. Something neutral.
So the point I guess is that I wore two sensors for a month, both failed, and I am accused of tampering with the devices and discharged with a write up that not so subtly implies I am a liar and untrustworthy. I can’t live with this. The disease has been frustrating beyond belief for the last decade and now I catch #$#@ for doing as I am instructed by my doctor.
Does anyone else have info about sensor failures and as what rate they occur? Or any idea how a sensor could fail after thirty minutes or so? As I stated earlier, my removing the first sensor (on the day I was to take it back to my doctor) combined with its failure started some of this but the second sensor was removed by my doctors nurse with both layers of tape intact.
It makes no sense why (or how) anyone would sabotage a sensor when that person willingly brings in their meter with months of blood sugars.
I guess I’m hoping that if I can find information that sensors do fail or find the reason why I will at least feel some vindication. Perhaps I can appeal to my doctors better nature and see if he will reconsider and rewrite my discharge letter as well.
I hope someone can help and I thank you all for enduring my story.