My son is 14 and having a bad time of it at the moment. He has cystic fibrosis related diabetes, but I have come into the Type 1 forum as he ‘acts’ like a type one. He is on Levemir in the evenings and carb counts with novarapid. He is waiting on a pump, the hospital are just applying for funds so it may be a couple of months yet. (We are in UK).
The problem he is having is that he is feeling low nearly all the while. He feels when he is rising and falling and anything lower than 7 he feels like he is having a hypo. It is affecting his school life and he is constantly taking his blood sugars.
He has only felt like this after a serious illness he was hospitalised with last october. But this is now an every day battle.
Really what I am asking is has anyone else had to deal with this problem … I’m just hoping the pump will stabilize him.
Sorry it’s quite long and thanks for reading.
Hi Helen,
Welcome to the community & happy Mother’s Day.
I have two nephews with CF & know how it is.
It’s great that your son tests frequently. Too often, teenagers don’t want to be bothered with this. With previous high BG, lower readings will feel like lows until his body adjusts to more normal levels. He just needs to ride it out & it doesn’t take long for the body to reset. He shouldn’t elevate his BG to feel better.
Hi Helen,
I have type 1, and am in the UK as well and I have been pumping with the minimed 522 for two years now, since I was 15.
Sometimes when my BGs are running a bit higher than they should be, I feel low at higher levels - so if my average was 9, I might feel low at around 5. But I see your son’s A1C is 7.0 which is pretty good… I don’t suppose there is something else which could be making him hungry or dizzy, mimicking hypo symptoms without actually being related to a hypo at all?
I hope your son can get on the pump soon. It doesn’t make diabetes behave any better, but my control and lifestyle improved tons after I switched from lantus and novorapid onto the pump.
Feel free to ask me any questions about pumping on the NHS (:
Is he on meds? If so, it could be the meds he is on. Check with the doctors. I feel for him. It sounds like his anxiety level is pretty high.
He is on many meds, and I have asked the hospital if it could be them, but I think perhaps they have made him more sensitive to feeling the drops downward.
Hopefully this will sort its self out when he has the pump and CGM, then I will be probably asking a lot more questions 