This is the first time I’m creating a topic, but this will be a very personal and honest one. I will first share some information of myself to then move on to the related issue. I have been diabetic since the age of 14, turning 26 in september. When I first got the diagnosis I was very scared.
I am someone who used to have 2 soccer practices per week and also matches. I stopped soccer due to complications regarding dehydration I believe (calf cramps).
If I may try to stay on the topic here, I still do sports, I play hockey once a week and also go on roller rides (I am french canadian so bare with me with the tougher words that I barely use, ever).
Ever since I was diabetic, I have been getting trouble controlling it at the perfect rate, if a perfect rate even is achievable as a T1 diabetic. During my teenager years, I mostly used pens in order to provide me with novorapid insulin and lentus, until I finally got accepted at the age of 17-18 for the Omnipod Insulin pump.
Since then, my A1c have been lower but not by much. I highly doubt (can’t remember for sure) my A1c ever was higher than 11 (maybe when I was diagnosed and during my first year or two).
I now use the Freestyle libre as well as my omnipod management system in order to provide me with my glucose levels. I find the Freestyle quite inaccurate at some times but that’s the only continuous glucose management system I can use until the Dexcom is available in my area.
However, on the Freestyle libre app, they give us a pre-result of our A1c and this is the first time I actually have took notice of it.
My question is; I am still of fairly young age, my diabetes haven’t been the bees knees in terms of results since I was diagnosed, but definitely got better since I use the Insulin Pump, should I be scared regarding complications and the results of A1c I have gotten from the age of 14 to 26?
I have an endocrinologist and he has not mentioned anything about dangerous glucose on my end so far. Let me make it clear; I do have high glucose sometimes because I tend to forget, but my average has been 10-12 (not mmo/ml) and on my app it says I am 50% of the time between 10 and 13.
/// Very important note \
I have suffered from Acidokinosis or DKA? Last year, due to a pump malfunction over night, I missed a whole 10-12 hour of insulin in my body which caused me to go to Intensive Care for 2 days.
My Freestyle app is telling me my A1c will be at 9.5, which I have read is very high. I am beyond scared in terms of complications. I practice sports alot, I want to live a beautiful life. I am someone who stresses alot, why did my endocrinologist not tell me anything about too high A1c?
Please enlighten me, I could write for years but I gotta stop now because my girlfriend and I are supposed to go grocery shopping and she’s putting her shoes on which usually is a sign she is becoming impatient
Thank you all,
have a blessed day,