I confused and a little nervous.
I was diagnosed with GD 16 years ago, and then again with my last pregnancy 14 years ago. My HBA1C was 6.4 in 2012 (although my fasting BS has been elevated since 2008).
I’ve been on oral medications for a few years, (Metformin, Januvia, Glimepiride, and Jardiance, not all at once) with no great success. 3 months ago my endocrinologist put me on Trulicity, and despite getting all the side effects, my blood sugars weren’t greatly improved. I’ve been prescribed Xultophy, but it has not been approved yet.
Meanwhile, I spoke to my diabetes nurse on Friday regarding the denial of the Xultophy and asked if there’s any chance I’ve been misdiagnosed as a type 2. She asked if I’ve ever had my antibodies checked and I said no (because I didn’t ever remember that being discussed, certainly not with my endocrinologist), and she said she’d speak to the doctor.
When she got back to me, she told me something very surprising: I tested positive back in 2006! and my doctor wa surprised too (it must have been a test ordered by the GP for some reason because I wasn’t even seeing an endocrinologist back then) and is having me take another blood test to recheck.
Because blood tests are digital, I have access to all of the old tests and looked it up myself: I had a GAD-AB of 3.8 (according to the test values, normal is between 0-1).
Obviously I will be retesting. But what does this all mean? How will my life change with a different diagnosis? Also, from what I read about LADA, patients require insulin within a max of 6 years. However this was 12 years ago?
Feeling confused. And nervous. I’d love to hear people’s thoughts,