You’re most welcome, Lynne. Sorry you’re so scared.
nom nom nom
I am, unfortunately half asleep right now, but I thought that I was the only one to have this !!! I can’t believe I’m not alone. I was too embarrassed to even tell anyone. I have two high energy dogs and it scares me just to walk them. I don’t do aerobics or ride in bike-a-thons anymore because of my phobia. I feel like I’m missing out on my life, and I feel lousy bc of up and down blood sugars. I’ve had several scares with blood sugar lows, but I’ve always been able to feel them, so I don’t know why I’m so scared. I even feel embarrassed when I’ve had to wolf down food, juice, etc. in front of people. You can’t explain what’s going on when you feel like you’re going to pass out or even die. I, therefore, keep my blood sugars on the high side in any situation where I’m afraid it will go low… This too keeps my A1c out of control. I hate it. I wonder how the heck athletes and musicians who are in constant motion manage to keep their blood sugars in control and do their jobs. I can barely walk a dog!
Mon nom c’est acidrock vignt-trois.
I, unfortunately, have been forced to have medicare as my primary insurance, although I have private ins. thru my employer. This makes it impossible to get all the test strips I would need or a Dexcom.
Hi Hannah -
There has been quite a lot of research on insulin dosing including the DCCT which was a very large and long term study which settled the question of whether MDI with it’s emphasis on the use of rapid insulin to manage post meal numbers combined with basal insulin to maintain fasting numbers leads to better outcomes than a simple 2 shot per day - basal insulin doing all the work - regime.
Of course, 45% is not a magic number. I was diagnosed with Type 1 at the age of 57. For the last few years my basal insulin has run around 35% of my total daily dose; it has recently climbed to about 40%. But for months three through six after diagnosis, I was taking about 65% basal. My A1c was fine (less than 6) but I was having lows four to six hours after meals. My regime was shifted to less basal, more bolus and I was able to minimize the lows without much of an increase in my A1c.
It would be nice if formulas were more than guideposts based on accumulated experience but diabetes is a crapshoot and guideposts are all we have. It would also be nice if each of us was totally unique. That would make each of us very special but the reason we’re all here and can learn from each other’s experiences is
precisely because our experiences have a lot in common. It’s a bell curve.
Take care,
Maurie
I run 20-30 miles/ week and have a CGM and test a lot. I didn’t have the CGM when I did Tae Kwon Do boot camp and did two-a-days for 2 or 3 months before the black belt test, since I didn’t want to suck and say “oh well, I have diabetes…”. I was testing 17x/ day, according to my meter. It was hard but, w/ diabetes, it’s hard if you sit on the couch and read books too. That’s what I did before I started working out all the time and I think that if anything, it was harder because I wasn’t focused on beating the hell out of diabetes so that it didn’t get in the way of my strange lust to work out. I’m more laid back these days w/ the running b/c sometimes it seems like 1/2 the reason I run is to listen to music, which I also dabbled in during the 1980s college rock era I played in a bunch of bands and had a great time and, similarly, it was so much fun, there was no way I was going to screw up and let my BG get in the way of rock concerts, practice, beer, strobe lights, girls, etc…heh heh heh.
The reason I responded the way I did , because I thought that one comment referred to quote " No pumps are av. in Montreal ?"
I am aware pumps are not covered in Q …we; YOU and I and lots of others , need to advocate for pumps for adults in our country !! …my pump buddy BJ started a discussion recently in the Canadian Group ( on FaceBook as well ) .
I am surprissed , that not many comments are added ??
Is this organization mentioned in her discussion , I can’t recall ?? : S.U.G.A.R. is a national charity providing assistance to people with diabetes by distributing S.U.G.A.R owned devices such as insulin pumps to patients based on need.
Website: http://www.sugarcharity.org
Email: terryannethomson@sugarcharity.orgThis email address is being protected from spam bots, you need Javascript enabled to view it
Message line: 905 632 0932
Mailing address: c/o 495 Enfield Road, Burlington, Ontario L7T 2X5
Diabetes Smack Down. I love it. Just refuse to let the D win.
Il y a des noms, et alors il y a des noms
Oh bless your heart! Please do not be ashamed to see your endo, they are there to help you with issues like this and trust me you are NOT alone many many people struggle with the fear of hypos!
Wow…I really want a CGM to have better control without the fear of hypos but I never thought about it stressing me out…was it just because you see your up and down trends or what?
So are you using injections during this pregnancy VS the pump?
Hello Riz! Just wanted to let you know you are NOT alone this is a very common problem for diabetics. I was going to throw in a few suggestions…not sure how consistent your schedule is but eating the same number of carbs at the same time of day even the same meals everyday for breakfast and lunch so you know how it affects you and you will not be so nervous may help. Maybe you can start with small steps such as aiming to be between 180-200 then 160-180 then 140-160 so on and so on. Also as some of the others have said you may want to switch to Levemir if you find Lantus peaks too strong and you are afraid of hypos, Levemir is much more consistent and does not peak like Lantus does so it has smaller chance of causing a hypo. I am a firm believer in less carbs=less insulin=less hypos or mistakes. Have you thought about speaking with a therapist about your fear? I have an anxiety disorder so trust me fear is something I know WAY too well but sometimes behavior therapy or medication may be able to help get to the root of your anxiety. Best of luck, you can do this!
God Bless,
Jenn
I was diagnosed Jan 2010 and just started on insulin Jan 2011 I am LADA. I take 2 units of levemir at night and I am very low carb so I only take about 4 units max of humalog during the day (if it were up to my endo who wants me to increase my carbs/insulin and gain weight it’d be more like 10+ units humalog day) so no I am not split 50/50 or anywhere close or else I would be fighting lows 24 hours a day from too much levemir. I’m sure as I exit the honeymoon period and my pancreas continues to fail this would be more realistic.
Lantus did funky things to my body. I have a feeling that I was allergic to it or something because it DEFINITELY had peaks for me when it claimed to have none. Levemir lasts for 20 hours in me. It is very effective and stable, but is gone in 20 hours, which is why I have to do 2 shots of it. I wasn’t nearly as controlled when I was on Lantus, but I have a feeling that if I was still on Lantus I would have to take 2 shots of that as well. Looking back, I’d guess Lantus lasted for about 22 hours for me.
The CGM taught me a LOT about my body and how it processes foods. The CGM is how I really learned that I don’t process white foods very easily (white breads, white pastas, etc). Without the CGM, I don’t know that I would have figured out why I was always sick after eating things like that.
But, yes. It became a compulsory habit of mine to check the Dexcom. Every five minutes, I’d check it. I would have a panic attack if someone took it and hid it from me. I would wake up in the middle of the night and check it. It would have an alarm going off at night when it thought I was too low or too high. But, then I’d verify with my meter and my glucose was perfect. So, I’d be awake and stressed out for mis-read on the Dex.
I’ve thought about going back to it. I dunno. Sometimes I would get so frustrated with it. And then I was correcting on such small increments all the time. My A1c actually went UP a point because i was getting so stressed out about it. Stress causes high BG in me.
As for the pump, I was allergic to the catheters. Didn’t realize that until after 3 years of using it with infections at the insertion sites and scars across my stomach, and 4 ketoacidosis episodes when the pump failed in my sleep and didn’t sound an alarm… My A1c went up 2% on the pump. Plus I was getting antibodies and resistance against the short acting insulins. When you’re only on the short acting on the pump, with no Levemir to back you up, if the pump malfunctions, you’ve got about 2-3 hours to fix it or else you’re in Dka. My endo kept pushing the pump on me even after 4 Dka episodes due to pump malfunction (and my un-known allergies to the catheters). So, I said never again will I put my life within 2 hours of the reeper.
Just like on CGM, I learned A LOT about my body and how my basal dosages change throughout the day while on the pump. i wouldn’t trade in my experience with it for anything. But, I’m not going back to it either. Not so much scared of it… more like frustrated beyond repair about it.
So, yes. I’m on 10+ shots per day with this pregnancy. We’re almost 5 months!
I guess what I was trying to tell you before, to hopefully ease your fears, is that I’ve been in 10+ diabetic insulin shock comas due to going too low (over the past 13 years with Type 1)… but I’m still here and chugging along! The body does not WANT to die. It will preserve what it can to stay alive as long as it can.
Also, the body doesn’t typically go into a coma until your BG is at 10. I’ve been at 19 reading on my meter and was still walking around. Not that being that low is GOOD, just that I wasn’t dead at 19.
I’ve had the readings on my meter say just “LO” when my husband tested me while I was in a coma- which means it was below 10. He just gave me a little bit of cake frosting and waited 15 minutes. Tested again. i was at 20. Gave me a little more cake frosting and waited another 15 minutes and tested again. I woke up around BG 40.
I used to be really afraid of lows too. I used to cry myself to sleep at night because I thought diabetes was going to kill me in my sleep. I got over my fear of lows by testing how low I could go while I was awake. I’m not suggesting that you do this, I’m just telling you what I did to get over my fear. I no longer panic if my BG reads 37 when I’m awake. I don’t even panic if it reads 37 when I wake up in the middle of the night. I just calmly walk to the refrigerator and drink a couple gulps of juice. Then I go back to bed. I keep a tray of jolly rancher candies next to my bed. If I wake in the middle of the night and my glucose is low, if I’m too tired, I will just pop a jolly rancher in my mouth and fall back to sleep.
My body is pretty sensitive to carbohydrates, so a little bit of carbs go a long way with me.
haha. I can relate. I was screaming like a wild monkey on my last insulin shock. I was at a rapidly falling BG 27 and I just stopped mid sentence while I was talking to my husband. I got stuck in a loop in the sentence and said the same thing over and over and over again. I picked up the juice bottle and chucked it across the room… three times. Then started screaming. He had to sit on my chest to spray cake frosting down my throat.
I completely blame these 6 recent insulin shocks on NPH. It was such a bad mix with me, but was necessary for the first trimester of pregnancy. Thank goodness we’ve gone back to Levemir. What a mess!
Hell yes. I’m the same way. While I still don’t go for runs, I will walk for miles a day just for the heck of it. I bring my meter, my dog, and a bottle of glucose tablets. I was a singer in a rock band last year. Soooo much fun! A1c was still good and I was drinking beer and having a good time. I still stay up to all hours of the night on the weekends and when I have to work. I refuse to let the D bring me down. This life was made for living and if I have less time here, then I’d better make sure I get all my living squashed in!
I’m the one who thought I was quoting Riz as saying pumps aren’t available in Quebec, Nel. Tracing the thread, it was a tad confusing as to whether it was the pump or the CGM that was being referred to. Sorry if I confused things further!