The 504 Plan is basically a tool you can use for telling the school what’s expected of their staff in handling your son’s medical care. You can tell them what you want, and if there are any reasons they can’t supply it, then you sit with them and negotiate a compromise — one that DOES NOT compromise your son’s medical care or safety. How he gets his care is negotiable, under the ADA; whether he gets it isn’t. They have to provide appropriate care, but the details are for you and the school’s staff/administration to hammer out.
As far as CGM data transmission is concerned, I do not know a lot about this subject (yet), since we’re still in the process of getting Eric a Dexcom ourselves. He was on the Minimed CGM but had to discontinue because he developed an allergic reaction to one of the ingredients in the sensor — which I gather is a pretty common with the first generation Minimed CGM but is less likely with a Dexcom.
In any case, if your son’s CGM is part of his prescribed diabetes therapy (and it is) they can’t actually stop you from using it. In fact, trying to do so could arguably seen as a violation of their ADA responsibilities, and could even be seen as negligent — I mean, if the doctor prescribed this device for a medical purpose, it follows that refusing to allow the child to have it threatens his health. The only thing they really can do is deny you access to their Internet capability, which would stop you from transmitting the CGM data from his sensor to your phone, but I think if you help them to understand its value, they wouldn’t have any good reason to do that.
I do know that it is possible to set this up, though. There’s an organization called “NightScout” that got impatient with the various manufacturers’ refusal to move on this issue and created a CGM hack that enables parents to have their kids’ CGM data put into the cloud in real time. The website is here http://www.nightscout.info and frankly as long as your school has wifi enabled, I don’t see why the school would have any valid reason to object or even be aware that you’re transmitting — you simply set up the CGM to transmit the data and they can’t very well stop you from receiving it. Nor should I think they’d want to. If the school limits access to internet or does not have wifi, then what I would do in that situation is ask them to allow you to install a wifi router in your son’s classroom (with appropriate password etc.) hooked up to the school’s internet account, to be used only for your son’s CGM. You can get a decent router fairly cheaply, and it would be your property not the school’s, so that each year you could move it to his new classroom. That might be where you’d have the most trouble getting them to agree — they could very well consider it a liability and decide it’s easier to just say no.
But many if not most school districts probably already have wifi capability, and surely they’ll be able to recognize the value of having an extra set of eyes on your son’s BG values, and you could argue that it would be useful for the nurse as well because then he or she could be given access to the data and monitor your son remotely too, and only go to the classroom (or have your son brought to the nurse’s office) if there were signs that the blood sugar was going down rapidly or had hiked up too high. For school districts that only have one nurse covering several schools, this would actually be a Godsend.
So there you have it — that’s the sum total of what I know about this subject, but I hope to learn more once Eric’s Dexcom gets approved (fingers crossed!)
As far as logging his insulin intake for remote viewing is concerned, we use paper records ourselves but I don’t see any reason why it couldn’t be done on say a Google doc. If you set up a Google spreadsheet that the nurse could log into and put in the date, time, BG, carb intake and bolus, that would give both you and her/him access to the same data set at any time. Depending on how tech savvy your nurse or aide is, you might have to sit down with them at the start of school and show them exactly what to do — and I would give them a written step-by-step as well in case you have a sub one day — but it’s worth the effort to ensure they know how to handle your son’s care. I’m very hands-on with my son’s school and it has never been something I’ve regretted.