Hear, hear!
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I agree but I wouldnāt wish this on any one.
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You know, I guess everyone has difficulties. But donāt diabetic people have difficulties beyond diabetes too. Diabetes helps nothing and no one. But if diabetes was the human condition then life would be more equally difficult. Is it similar to being a different race? If we were all one race there would be less difficulty. And that would not be boring. The bible says multiple languages were established to prevent human progress in the story of the tower of Babel.
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Being a ship captain, I find this particularly amusing!
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I just wish my āshipā wouldnāt go lurching off in dangerous directions with no apparent logic half the time. OTOH, having spent some time at the helms of various sailing vessels I can recognize the similarity between T1D management and tacking to get to a destination upwind.
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Thatās the thing MissMargie, Iām an overweight T1. I actually gained weight before I was diagnosed (at 35) & lost weight after starting insulin. The past 5 years have been a very rough road.
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yes, true that! and that itās not a science, rather an art (so to speak), things change daily, itās exhausting, we need planning for everything and it can suck the life right out of you both physically and emotionally. also, there is NO magic cure, natural herbs, rocks, whatever donāt work.
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I wish people knew this about diabetesā¦
that āDiabetes is part of you shouldnāt be at war with yourself.ā - ELIZABETH ZABELL co founder of Diabetes Daily. For real, I wish folks knew that this gig can be managed. I watched this and recommend it to anyone who wants to understand more and thrive with diabetes:
https://www.diabetesdaily.com/blog/2015/09/inside-thriving-with-diabetes-the-backstory-key-lessons/
that i am tired of hearing ādoes that hurt?ā whenever i am testing my BGs in front of someone. of course it hurts, and so do all the other gadgets i stick into my body on a regular basis!
but really, that managing our D is a 24/7 job
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I wish my daughter knew how much I want to tell her how to manage her diabetes, because I see when she forgets to check her blood before she eats, or when she forgets to bolus and ends up going over 500. A part of me dies each time I know thisā¦ I try not to say anything, but thatās so hard! ā¦to just let her manage this horrible condition the way she wants to. I wish she knew that those high blood sugars affect so many things, like her eyes, her kidneys, her skin, her nervesā¦but she doesnāt want to hear. I wish my daughter knew that what I want most is to helpā¦not to interfere,ā¦because I love her and want the best for her.(written by Jamieās mom)
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Yeah, I hear you. You love your daughter. I got type one at age 15. But a 500 bg was never a thing in 1975. And there was essentially no treatment or support. Sounds like the high bg hurts you more than her. Kids have so much energy and their own mortality is not a cool topic. Kids can just push through highs. Your expressions of love are terrific. Is your icon picture your daughter? She wants to have fun and try new things. And diabetes says no. Then you want to help her treat diabetes. Some days sheāll undoubtedly confide in you, the one who loves her and youāll get to see sheās making it work.
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With your eyes closedā¦ you only get to open them briefly every 2 hours (if you are using CGM you can keep them open but you ony get to look out of the rear window).
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I wish people knew that having D makes me a crab ā ā ā when Iām on a roller coaster ride. Especially my Wife and family. I also wish the guys at work would understand that sometimes I just canāt think right and say things I regret saying later on because I was running low.
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I agree
That type 1 and type 2 are not the same disease.
AND not all diabetics are the same. Not all diabetics react the same way.
We are all different people just like the rest of the world.
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I wish people knew that diabetes is foreverā¦and to not ask me if I still have diabetes.
I wish people knew that if Iām not smiling 24/7, itās not that Iām pouting or in a bad mood.
I wish people knew how much work it is to manage diabetes.
I wish people knew that diabetes is just one of the things on our plate.
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I wish people knew how lonely and frustrating it is sometimes. That even though I have endured it for a short duration that I hope everyday something better will come up to manage my disease. That the best times for me rifht now is when Iām coaching and for two hours I forget I have diabetes. And finallyā¦I wish people knew that although I have this I would never wish it upon my worst enemy and I thank God everyday my kids donāt have to endure this.
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I wish people knew how much it hurts my very soul to watch my 14-year-old struggle with T1D. And how much I wish that I could exchange my pancreas and immune system with her.
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How incredibly difficult it is to manage when you can not easily determine what your schedule and activity level is going to be on a given day. For example attending a conference. (Maybe weāll walk across the street for lunch or maybe weāll walk 10 blocks. After lunch might walk back to hotel or do some walking to see some city sites.). Itās about impossible.
Also a very small misjudgment in carbs, insulin and activity can have you at 50 or 250.
The amount of emotional torture when your monitor reads 250.
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. . . that you have no idea how much work nor how consuming it is. The visible part you can see, e.g., giving myself a shot, is the miniscule tip of an iceberg.
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