Strange in my diagnosis, not just personality.
I was diagnosed last November at the age of 26 with polyurea, polydipsia, and 15lb weight loss in 1.5 months (starting at 135 I didn’t have enough weight to lose…). My wife is an Rn and noticed the symptoms so we went to a clinic where the tried to send me home on metformin (borderline malpractice…) even though my sugar was at 685mg/dL. I spent the next 3 days in the hospital with an insulin IV in my arm, and went home with Lantus and Novalog. We assumed for the time that it was a generic type 1 after my A1C was 13.9% with ketones in my urine. Up to here, the only strange part was that I was not DKA even with a blood sugar that high. My C-Pep was less than .3 when I was admitted, but for some reason I still had insulin in my system that was preventing me from going DKA.
I really don’t have a family history of Type 1 diabetes, although my Father has a mild case of T2 (diet/exercise controlled), my grandfather (paternal) had T2, and his mother was an amputee for unknown reasons (assuming diabetes, was not well diagnosed). My 2 year older brother, however, was diagnosed with type 1 only 7 months prior to my diagnosis while still in the honeymoon phase. What gets stranger is that neither one of us have any identified antibodies from an autoimmune attack on our pancreases.
Being military, I lucked out when my endo requested MODY testing and they decided to cover the whole thing. They tested me for types 1-5 of MODY, and all but #5 were negative, and #5 was inconclusive. I know there are still 4 other types of MODY that are not publicly tested, so I still have my suspicions.
My endo also suggested that I could be a skinny type 2, and my pancreas has simply burned out due to having to overproduce for extended periods of time. The tell-tale sign for this would be after a few months of insulin, my C-pep would start to increase and my body would begin to regenerate its B cells and regain pancreatic function. This has not yet happened, so perhaps my pancreas really has been voted off the island…
My brother has had some clinical studies done as well with absolutely absurd results, such as being completely off insulin for 1.5 days, getting a 20% bag of dextrose IV, and his BS wouldn’t go above 90… basically better control than their non-diabetic subjects- the next week he’s up over 200 for no reason. I haven’t had any clinicals done like he has.
I’m currently taking 16u of Lantus in the AM and have an insulin:carb ratio of about 1:35. My most recent A1C was at 6.5, and my C-Pep was for all intents and purposes at 0. I have an excel sheet of every blood sugar I’ve taken if it helps anyone.
Does anyone have any thoughts on the scenario? Pre-emptive thanks,