I'm 29. Diabetic for 12 years. Started by happening to find out some sugar in my urine. Had first blood test come back with 288 BG and 0 ketones. The second one - 304 and 5 ketones.
Was sent to the er from there. For 3 days. Which ended up with just oral meds. Which literally did nothing. So had to come back after for 4 more days. This time I got short and long and I've been on it for 12 years.
I has my first Dka 2 months ago. And I've always screwed around with my sugar but only for the past 1-2 years it's really going up and respond badly. When I was 20 - I could skip my nph, eat close to nothing and with one glucose - I was just fine. Now? At the age of 29 - if I would have delays my Lentus for more then 4 hours I see A huge BG rise.
I used to think that I might be Mody, and maybe the ones that have to be on insulin. But a diabetic research told me - flat out - Mody don't get DKA like I did.
Now I'm starting to wonder if maybe it's LADA. Is started late and now I'm completely insulin depend.
kittywolf, i would say it really doesnt matter. i was diagnosed three years ago and went right onto insulin. i only take fast acting if i want a big treat and i try to eat low carb. i wondered if i was lada, just needing the long acting most days, or if my low-ish carb diet was doing a good job of helping to retain beta cell function. in the end it doesnt really matter. what matters is being in control and doing your best to take care of it.
It sounds like you are correct based on the data you are sharing. I think they can confirm this with a C-peptide test although, as I've been T1 for 30 years, I don't totally recall what score you're looking for on the test.
It sounds like you have typical Type 1 to me. Not all Type 1s are in DKA at diagnosis, and a honeymoon can last a year easily. You were young at diagnosis, it sounds like you needed insulin right away, and then had a honeymoon period that made control slightly easier. I believe in most cases of LADA oral medications work for several years before they need insulin.
I think it does not matter like pancreaswanted said. There are really just two types of diabetes. Type 1 and Type 2. And then the sub types have emerged. Your type needs insulin. If you must have a label then ask your diabetic research(er) to perform such. But again, you have been using insulin for 12 years, and when you screwed around with your sugar for the past 1-2 years you experienced DKA. No matter your age or even your type, your condition needs to be managed, and yours needs insulin.
It can be important to be "typed" correctly as the availability of treatments can differ greatly depending on which type you are e.g. with Medicare, no CGM period. With NHS, no pumps for T2, unless you are Sir Steve Redmond. Many insurers won't give T2 the same lush, plethora of supplies with which T1 can be showered. The OP is in Israel and perhaps they are more savvy there but I think it's useful to know your type just for general purposes but also so you don't run into problems getting your gear together.
Well I am sure the OP is Type 1 - and was asking for the sub type to be determined. If the label is important than what we think is not helpful, she needs to get the testing to know.
Regarding treatment - I would like to get my hands on the dx that provides the lush, plethora of supplies that T1 can be showered with. I must have missed that boat ?!?
LOL,I've done alright ever since my brilliant 4 way call with me, BCBS, the pharmacy and my doc on the line. BCBS went "the doctor has to prescribe it..." the doc asked "what do you need" I said "oh, maybe 14 strips/ day..." doc: "he needs 14 strips/ day" me: "ok, so when will those be ready Walgreens?". It was totally absurd but the spaghetti seems to have stuck to the wall since then.
I agree it sounds like T1 but we've seen other people dx'ed as adults who try oral meds and they don't work. If that happens, to get the oral meds, you probably "need" a T2 DX since (I think...), that's about all most of them are good for. Once you are in "the system" as T2, it may be challenging, or at least require attention, to correct. I'd been T1 since 1984 and somehow got flip-flopped to T2 when we moved to Chicago. It didn't get in the way of supplies for me, as I was pumping and all that stuff was in the pipeline but every now and then I'd go in for a sprained ankle or something and the people taking the history, would be like "you're T2?" "no, T1" "oh" but they didn't change it. I got hooked up with a PCP I like and he eventually said "oh, I need to fix that" so maybe only a doctor can that? It was bizarre but sort of fits with some of the scenarios others have reported here I think?
Sounds like pretty classic Type 1, with a somewhat later onset and longer honeymoon, i.e. LADA. But as others have noted, the label has at most a tenuous relationship to treatment, so in some respects the label matters less.
You're making me think about my own case, because I think I actually fit the MODY profile pretty well. I'm going to post a new post around that to try to get some insights from this forum.
I have never had DKA (though I've had at least one close call before I was put on insulin during days of misdiagnosis) and I'm still very clearly a type 1. I was diagnosed with a blood sugar of 249 mg/dL and that was basically fasting but the hospital just saw it as a low number and misdiagnosed me as type 2. I don't know if I had ketones on my diagnosis day and I have honestly no way to find out , but I'd suspect no, because I didn't feel as bad as I did on my close call. I've had a few times I got dehydrated and thought I was having DKA and went to the ER and embarrassed myself (namely after one of my surgeries) but yeah , no DKA hopefully not jinxing it.
It sounds a lot like you're T1 and just had a long honeymoon period. LADA tends to be a term reserved for later-onset T1, specifically for people who do not require insulin for at least 6 months after diagnosis. So it seems like your very long honeymoon period is just drawing to a close.
Your BG at diagnosis seems to be a little on the high side for MODY, but that could just be my interpretation. Also, most MODY subtypes (especially the more common ones) do not require long-acting insulin, so I stand by my reasoning that you're T1 with a very long honeymoon. Be happy--the majority of T1's have a relatively short honeymoon, so you had a longer time to adjust.
If you're really interested, you could always get antibody testing to determine whether you're actually T1 or not.
I don't agree as T1 always. my diagnosis is Insulin depended. from the start. and most doctors just treat me as i'm a T1. and that' what i want. because T1 are first to get anything. if I was anything ells i would not be eligible for the cgms (which i'm only getting since i'm planing to get pragent).
the Real reason for knowing is more of a personalty thing then anything. I NEED to know. because that's who I am.
The reason not to test so late is that if all or nearly all the beta cells are dead then there won't be much of an autoimmune reaction to look for. However, seeing as you're still fairly close to the honeymoon period, it might be possible to find out.
It sounds like you’re type 1. Not sure how old you were at onset but it doesn’t matter. If you haven’t, get c peptide & antibody testing to confirm type. It does matter, a lot, imo, to understand your treatment and for insurance purposes. Don’t ever try to go off insulin without a real cure because you’ll go back into Dka and risk death. Ketosis prone type 2 and sometimes other type 2 with infection and dehydration can also go into DKA.
