Well, I just got my latest report… A1c was 6.1 and I rarely even test. Everything else checked out very good as well which is great but my physical and mental well being are being controlled by the swings. No one believes I can be that sensitive but I am. I was considering going on antidepressants but I have doubts they will help. Nothing I believe would camouflage lows which would be dangerous to begin with but maybe they would help take the edge off the elevated levels? None the less I have my doubts.
It wouldn’t hurt to try anti-depressants. If they’re not going to help, you’ll find out soon enough. You can’t have doubts about what will make you feel better if you haven’t experienced what you’re considering. To me it sounds like there are other chemicals in your body unrelated to BG (but which can have an effect on BG) that are causing mood swings.
I’m very sensitive too, I understand.
Yeah, I still think the magic pre-meal number for me is 90. I’ve taken a few readings nudging 100 and was a little irritable and when tested below 80 I was mentally disturbed but after eating a small piece of candy or what not felt better though I can’t say this is completely cut and dry as I have taken some elevated sugars and felt relatively fine but most times I feel really awful. I also realize that the levels need to be elevated to at least 125 -130 at the hour mark to not come back down too low. If I can get lucky enough to meet that fluctuation I will likely feel ok. Ironically from dinner on I generally feel well. Thats not to say I can’t have a bad night by any means but out of 100% the nights are near 90% good where the mornings and afternoons are mainly hell on and off throughout the day.
How many times a day do you test?
Rarely ever anymore. I did the four pricks a day for a few years when I went on MDI and got tired of it. Please don’t suggest that if I test I’m gonna feel better. I did it for a good three years and still felt awful a good percentage of the time because unless you test every 15 min you can’t make the proper corrections if needed. I refuse to prick my finger all day long! Now if there were a non-invasive watch type unit that showed a digital readout for our viewing pleasure that would be a huge difference. That way we we could make adjustments on the fly before anything gets crazy and we’d litteraly be able to stop all the lows. I find it baffling they still don’t have a non-invasive glucose meter as look at what they do with technolgy and something like that would be huge help. From my understanding there are a few units real close but nothing has been approved yet. Also understand out of normal range sugars are know to cause depression for some diabetics as its clearly a chemical imbalance of our brain function needs. On top of that excess glucose in the blood is toxic
Those people are actors and probably don’t even have diabetes. How many meters do you think they would sell if the people were dragging their assess everywhere? LOL!
I think it is completely unnatural to feel happy all the time. Whats the fun in that?
If you weren’t supposed to feel crappy every now and than we would have a ability to be so. If you were never sad, you would never be happy.
“Stones, knives and bearskin days” – that made me LOL!
It’s astounding that any of us maintain any degree of emotional stability being subjected to ever changing glucose levels. How do we function! Even on the good days, there’s still a range that effects us from one hour to the next. It’s perpetual imbalance.
We become obsessed with numbers & utterly self-absorbed, or so burned out from the work & frustration that we want to give up. Difficult to strike a balance between the two.
We’re chasing an elusive, unattainable goal.
As far as technology has come from peeing on sticks, we’re still shooting in the dark. Meters aren’t accurate, CGMs aren’t either. I have no faith in an AP being effective. Our greatest hope rests with smart insulin.
Oh no I hate pricking my finger too, and I’m on MDI! Yeah of course the glucose imbalance can also be a reason for depression, but for sure having to deal with bg numbers all the time doesn’t help.
It sounds like you’re in one of those “existential” spots when all options are not good enough… How does one deal with that mind state? I’m not sure…
Gerri,
No emotional stability here and for any parent who has diabetes god bless you. Not sure how anyone that feels like me could even remotely handle the responsibility of a child. I’d love to just go out with some friends to do everyday things without being overwhelmed by sugar swings. Anyway your starting to sound like me with the Smart Insulin…LOL. Personally I’d rather see Faustmans treatment come to fruition but I just can’t get past that its possible a simple already approved drug in the “right dosing” may have the ability to kill off enough bad T-cells by itself to even temporarily render insulin dependence. Supposedly D. Faustman is a brilliant scientist and I doubt she would have wasted any time on this project if she felt the chances were slim. So like all the others potential therapies until the dosing trial starts We’ll just have to hope for the best and continue waiting and waiting and waiting and waiting and waiting.
I’ve been following Dr. Faustman’s work. I can’t remember her name now, but there was/is a member here whose sister knew her & she (the member) met Dr. F. Said she was brilliant & also a charming women. I signed up over 8 months ago to donate blood to her project. Completed the forms & was told they’d be making appts again in Sept. I contacted them in early Aug several times & didn’t hear back. Hope she still has funding to continue. As we know, there’s no money to be made from the drug she’s researching.
Gerri,
Faustman is still plugging along from my understanding but she will need quite a bit of funding to accomplish the future trials. Most of her money comes from public support. Yeah thought of a cheap vacination maybe a few times a year that could arrest the imune attack and free us of Insulin dependence would be beyond a gift. Big pharma and other Orgs wouldn’t be to happy but F*** them.
Aside from the joy of being liberated, the next best thing would be Big Pharma, the ADA & the strip companies taking a hit. They’d still have our T2s brothers & sisters to prey on, but hopefully more will be learned there also.
I have Volunteered as a blood donor and have visited the Faustman Lab twice. I have met her and She IS super brilliant, industrious, engaging, and determined .I truly believe that her efforts will lead to a cure for Type 1 diabetes ,as well as many other autoimmune illnesses, IN MY LIFETIME.
Gerri, I have found that emails are not the best way to make initial contact with the Faustman Lab. Call at the number listed on her website. Best time to call is mid-morning to early afternoon. Her organization and staffing is small;;she and the researchers do all of their own scheduling and paperwork in order to keep costs down, I assume. She needs about 8 million to proceed into Phase II.
God Bless,
Brunetta
Thanks, Brunetta. Appreciate the advice. I’ll call. I emailed the first time & got a reply pretty quickly. Then got another email saying they received the form & I’d be contacted when they were scheduling again.
I remember you donating blood & Marps, too. You both inspired to do it also.
Eight million–sigh. I’ll kick in $4 million, if you’ll cover the other half, ok?