Just getting used to the CGM...Is it Pump time (for a 2 year old!)

BTW, my wife has breastfed all our boys until 2 years, max - except for this one because he finds comfort in it and we’re OK with that.

It’s so hard to deal with a 2 year old in the middle of the night who has a low…when this happens, we are usually up for the rest of the night because a) he doesn’t want to drink anything…especially a whole juice box and b) once he does drink it, he’s so pissed for being woke up that he just wants to spend the rest of the night reminding us what a bad idea it was to wake him up (inconsolable).

Breastfeeding him at night has helped curb these lows during the night…but we know we have to address it because he can’t breastfeed forever.

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The thing that honestly kind of annoys me is…why don’t we learn about these types of things from the doctor??? I’m specifically referring to all the wonderful tips you’ve all give me just in the past couple days…Shotblocker, using the meter more than 1 week, etc.,?

One would think they would CARE about saving your child pain if they could…it’s so frustrating that we wouldn’t get these tips from medical professionals…

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I went through the same emotions when I discovered diabetes treatment methods that made a huge difference in my quality of life. I was angry with a whole series of doctors that should have known about these tactics and certainly told me about them. But they didn’t. Most of my discovery was about limiting carbs to help control my blood glucose levels. To be fair, doctors receive little to no education about nutrition. And the demands of the typical clinician with a hurried schedule of patients makes me wonder how they can get anything done.

That’s when I realized that it’s our job, we patients, to inform each other about how to deal with this dastardly disease. Peer support cannot replace medical support and doctors/nurses/diabetes educators cannot replace peer support. We patients play a critical role for each other. My participation here changed my life for the better. You have discovered a key pillar to construct a great support system for your toddler T1D. Stick around. Participate. The depth of knowledge here will amaze you!

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This is a resource that I’m definitely glad I’ve tapped into. I hope eventually to help others here as much as I’ve been helped.

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Hi Harold and Erin,

I’ve been where you are — my son, who is now 9, was 18 months when diagnosed. We tried for 10 months to make it work with shots only (access to either a pump or CGM was out of our reach due to insurance issues) and it was misery, although our problem was highs, not lows. When at least we were able to get better coverage for him, we switched over to the pump. So, the pros: We saw much better control of highs IMMEDIATELY, and his A1c went from over 8 down to the mid 7’s, which is a huge improvement. About a year later, we got approval for a CGM and the benefit of that wasn’t so much that it helped improve the ability to sleep without stress — although it did — it was that we were able to see the patterns of blood sugar fluctuations during the day. Once we had that data, we were able to do something with the pump that you simply cannot do with shots: program the basal to increase during the times when more is needed, and decrease during the times when less basal insulin is required. That capacity, in a nutshell, is what makes the pump so useful — the ability to control the level of basal insulin according to time of day. Pumps also give you the ability to stretch a bolus out over time rather than give it all at once, which with toddlers can be especially useful because it means if they get halfway through a meal and decide to throw the food on the floor, you can shut off the insulin that was intended to cover what’s now being eaten by the dog :smiley:

And, as you noted, you can program the pump to give insulin in incredibly small increments, which is not possible with shots — and it does make a difference. Example from my experience: When Eric had been on his Paradigm 522 for 4 years, the pump developed a small crack in the reservoir housing. Since it was out of warranty, we applied to the insurer for an upgrade, and got him a new Paradigm Revel that, among other things, had the ability to program insulin deliver in increments as small as 0.005 units. We justified the upgrade by suggesting that more pinpoint delivery of insulin would help with blood glucose control — and quite frankly, I thought we were simply telling them something that sounded good but probably wouldn’t actually make much difference.

BOY was I wrong. It has made a HUGE difference. Eric’s A1c, which on the old pump was consistently in the mid-7’s, is now consistently in the high 6’s and low 7’s — WITHOUT FREQUENT LOWS. The only time we really get lows is when he has a higher-than-normal activity level during the day, and we can compensate for that with lower basals at night.

So that’s the pros. The cons: managing with a pump and managing with needles are not the same, and it does take a certain amount of mental adjustment to realize that you now have to assess the basal insulin’s activity along with the bolus insulin’s activity, and the ratio of one to the other, when trying to figure out preventive strategies for lows or highs. Also, carrying a pump around can be somewhat fatiguing for a small child (I solved this problem by sewing pockets onto the back of my son’s shirts, with a little slot for the tubing, so that it both made it easier for him to deal with by distributing the weight onto his back rather than one side of his waist, and kept the pump itself safe from exploration by curious fingers — and kept the tubing from snagging on stuff too.)

You do have to change pump sites every 2 to 3 days, but we put a blob of lidocaine/prilocaine cream on the skin where we plan to insert the site an hour ahead of time, and that numbs it so he feels nothing. My son just recently started changing his sites himself, and the fact that we could numb the skin (and the skin blanches so you can actually SEE where the numbed skin is) was of key importance in helping him get past the heebie jeebies about sticking himself with a needle. Your doc can probably prescribe this cream, it’s not at all expensive. The flip side, of course, is that you don’t have to do shots anymore unless you have a pump site that pulls out or gets crimped — and that’s another pump con, that the sites sometimes don’t work as advertised and you wind up with high blood sugars and ketones. But that’s why we keep syringes as a backup.

Hope that helps!

Oh, and… as far as learning this stuff from the doctors? Most of them don’t live with it day to day. They understand how the body works (or doesn’t) and the physiology of diabetes, but they are specialists, and their specialty is how to apply medical knowledge to the disease process — so unless they have a child with diabetes or have lived with diabetes themselves, they have absolutely no way of knowing the day-to-day knowledge accumulated by patients. Eric and I have been regularly giving seminars at a nearby medical school that brings patients with chronic illnesses in to talk to the first-year students to help them learn just what kinds of daily stresses face patients that most MDs and DOs never hear about, as a way of trying to pass on that knowledge. Nurses who are CDEs usually have a better handle on these things, and if you haven’t been given regular appointments with a CDE, ask if this can be arranged — I’ve learned more from the CDEs at my son’s clinic (one of whom is a type 1 diabetic herself) than from anyone else.

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I am in complete and total agreement. I was truly baffled by the fact that my hospital /doctor didn’t tell us about a simple cheap plastic shot blocker so that I didn’t have to needlessly cause pain to my toddler. Or enlighten us to the glycemic index…among other things. Then I realized that they aren’t the people living with this disease. They don’t study quality of life. I have realized that if you want great information, you have to go to the source. To the people “studying” this disease 24/7. I am so grateful to have that resource. I’m glad you found your way here!

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Omnipod may be if you consider a pump the way to go for a child. I’ve never used Omnipod, as I personally thought it was a little bulky (the pod itself), but I also didn’t start pumping until well into my adult years. I’ve always used tubed pumps, but for a small child being tubeless and it being waterproof would be big considerations for me. Everyone has given you really good advice about the benefits of a pump. My only suggestion would be be sure you understand how to dose for insulin, because even on a pump, there are frequent changes in dosage, and needs for correction. Also if you go the pump route, don’t be surprised initially if your son’s blood glucose levels are a little out of whack initially. It can take a bit to get basal rates adjusted, and also there is just a like anything a learning curve with a pump. I think you are def on the right track in considering it, and certainly it does allow one greater flexibility and ability to fine tune dosages, and ultimately better control than what you can achieve on injections. Good luck.

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Some (perhaps many) adults notice little to no improvement in A1c or BG control in general when comparing MDI to pumping. The same is definitely not true for the vast majority of children/teens. I consider pumping (along with utilizing a Dexcom CGM) a necessity when managing Type 1 in a child. Type 1 is practically a different disease in children…

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You have already accomplished this goal by posting some FBI info for my daughter!

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Handy for us adults but acutely important for kids because the body mass is so much smaller.

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Gave me a chuckle because it’s not just a problem for kids: I’ve become an absolute fanatic for pocket t-shirts since going on the pump. Actually ANY shirt has to have a pocket because, not to put too fine a point on it, any time I drop trou I need to have a place to keep the thing so it isn’t down there in my pants pocket yanking on the tubing when I stand up. And sleep time, gotta have a pocket! Problem is that men’s shirts increasingly lack them. Back in the days when everyone smoked it was an obvious necessity–that’s where your cigarette pack went–but now the designers think it looks “cleaner” without it or something. Grrrr! I need that pocket!

EBAY! :stuck_out_tongue: I am a big 80’s guy…big flashy colorful button up shirts with pockets. hehe…you can buy them on eBay - it’s where I get all my super cool (embarrass the kids and wife) shirts!

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Problem is I already have a bunch of those no-pocket shirts that I actually kinda like–only went on the pump 2 1/2 years ago–but I can’t wear 'em without considerable practical difficulty.

Send me your shirts and I’ll sew pockets into them. (Among my many [actually TNTC :wink:] talents, I’ve been known to make some dreams come true with my sewing machine and some fabric).

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A man after my own heart! I am currently (at my advanced age!) going through a Mori girl (minus Lolita)/lagenlook phase. Embarrasses the living crap out of my daughters who refer to my bloomers as “your damned Little Bo Peep pants”… :laughing:

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Ha, but part of the issue for me was I didn’t want him being able to touch his pump and push buttons, and maybe dose himself with insulin unintentionally. That’s why the pocket was on the back, where he couldn’t reach it. Now that he’s older, he has a belt pouch.

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That’s a really good point. Children’s physiology is very different from adults. My 53-year-old husband, whose T1 reared its ugly head a year ago, has fairly predictable blood sugars and doesn’t often have crazy swings from high to low and back. Our son? Not so much.

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I searched everywhere for info about using the Dex G5 sensors longer & was so disappointed to find most people saying it couldn’t be done easily or well. I am on day 13 with my last sensor & yes, the biggest problem of all is getting it to stay stuck to my skin! I have a Grifs on it but the edges are peeling & of course, it’s not looking nearly as spiffy now. Can I get SkinTac at a pharmacy or drugstore or does it have to be prescribed?? I’ve “heard tell” of it for years but never really needed it til now. I love the Grifs but if you’re going longer than a week they need a little backup. Also… Has anyone had a skin reaction to Grifsgrips?? I’ve used four total I think…I ordered a few for my pump port too because it’s just been so hot and I did fine with the first one on the left of my belly button, but the second one on the right stated itching after the first day. It got worse til I finally just took it off. I still have the evidence of the rash it left and I’m SO SAD!! No reactions on the arms so hopefully I can still use them there. Is the SkinTac pretty sensitive-skin friendly?? Thanks!!

Skin Tac

No prescription required.

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You can get it online. Try Ebay or Amazon. Link in post above shows the wipes. You can also buy it in a 50ml bottle in liquid form. The cap has a little applicator brush… Personally I find this easier to use than the wipes. A lot of sensor users also use Opsite Flexfix tape over the sensor tape. You can also get this on Amazon.

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