Hi everyone! This is my first post and I’m really glad to have stumbled upon this forum, when I did, a few months ago. I don’t know anyone in real life who has T1 or LADA and this forum has been a great place to hear about and learn from other peoples experiences.
I’ve been managing LADA with a low carb diet for years but started on insulin 2 weeks ago. My endo gave me a humalog kwikpen so I could try 1/2unit increments as I was quite scared of taking insulin and eating carbs. Exactly two weeks ago, I started with 1/2unit per meal, gradually increasing my carbs and insulin for each meal so that now I’m up to 15g carbs at lunch/dinner and 2u insulin. My carbs come from nuts and salads mostly with a low carb tortilla or slice of bread at times. My numbers seem to stay between 80-130 with occasional highs in the 160s which come in the 2-3 hour time window after a meal. I don’t quite understand why that is and I don’t have enough data to actually see any patterns yet either. Most likely protein or complex carbs + high fat slowing digestion to when insulin is all but gone? This is mystery #1 for me.
Mystery #2 is that I get a headache almost daily. Most of my life I’ve never had headaches and to have one daily is quite annoying. No lows or super highs so I’m confused about what may be causing the headaches (not dehydrated, sleep or caffeine deprived). I check using my One Touch Mini which I’ve used for years and 2 weeks ago I also got the Freestyle Libre sensor. The sensor numbers seem to match fairly well with the meter readings.
Mystery #3 is that in the last week, it seems like my own insulin production has gone to zero or I’ve developed more insulin resistance or something else that I don’t quite understand. My waking numbers have always been around 82-84 with no change by the time I eat breakfast. However, this past week they’ve been a bit strange. I wake up with about 92-95 but the minute I get out of bed the numbers go up to 105 and then by the time I eat breakfast (30min after getting up), they are as high as 130. I took basal insulin (Lantus, 4u) for the first time last night around 11:30pm, and today morning woke up with 85 that quickly went up to 105 when I got out of bed.
Lastly, mystery #4 is that once my number stabilizes after a meal (approx 2-2.5 hours later), it stays static at that number for several hours after that. This makes me think there is no basal insulin in my system, which is strange since just two weeks ago, I was doing fine without any external insulin, and during my first week of external insulin, none of these mysteries existed. My most recent A1c was 5.3, checked 2 weeks ago, before starting insulin. Over the years my A1c has mostly stayed below 5.9
Perhaps you have some thoughts on what may be going on that could help me understand and solve these mysteries. While I understand 2 weeks isn’t a very long time and the body may need more time to get used to external insulin and carbs, the headaches, the morning highs and the random post-meal highs are making me want to reconsider taking insulin. The reason my endo prescribed it is coz I got pregnant and she wanted me to eat a few more carbs than I have been eating.
I haven’t quite figured out what my I:C is nor how much insulin I need to bring down glucose by how many points (not sure what this is called…ISF?).
Has anyone had similar experiences when starting insulin or adding carbs or otherwise?