Thanks Joe_h. Below are some links to articles referencing the regeneration process. There are actually better articles online that I read a few months back, I’ll try to find them. The ideas that I expressed as far as regeneration and eliminating triggers to stop an auto immune response are based on my research, opinions and experience with my own child.
On my site I post the recipes that work for my daughter Madison. We eat SOME rice pasta but mostly stick to Quinoa as our grain. The process that I’m discussing here with regard to Kim’s livewithouttype1.com blog pertains to each person/child finding what it is that is triggering the response in their body. Like I said, its different for everyone. It may very well be that there is only a window of time at early dx when this method will actually work to stop the auto immune response and save the beta cells. With my daughter brown rice pasta does not raise her blood sugar, goat dairy does not raise her blood sugar, etc. She avoids her trigger foods (found through blood and kiniseology testing) which are grapes, chicken, honey, white flours, refined sugar, cow dairy, gluten, corn, etc. There is a whole list. So, its not about high/low glycemic (which I’m assuming that’s why you included “veggies”) its more about eliminating an individuals food sensitivities.
My goal on my website is just to provide healthy options for toddlers after they’ve found their trigger foods. You can substitute any ingredients in the recipes as needed. It is not one size fits all. What worked for Kim only partially worked for us, we’ve had to go through a long process of eliminations and substitutions.
I truly believe that my daughters gut never properly healed from birth (she was “colicky”) and being introduced to cows milk at the age of 12 months with a leaky gut caused an auto immune response and attack on her pancreas causing her diabetes. Again, my opinion, my theory based on my research, but I’ve done a lot of research.
The bottom line is, I’m not going to sit here and say, I’m right, you all must listen to me LOL I am just a Mom trying to help my daughter, if someone here can change my mind about what I’ve found or can show me things in a new light I’m open to that, I won’t close my mind to anyone’s ideas or opinions because ultimately we all want the same end result… A CURE!
http://www.joslin.org/research/susan_bonner_weir.html
http://www.joslin.org/news/joslin_researchers_identify_new_source_o…
the two articles you link are about islet transplants and stimulating beta cell production not about pancreas regeneration on its own.
what are the blood and kiniseology testing helped discover your daughters ‘trigger foods’?
are you working w/ an endo?
yep islet transplants and embryonic stem cells look very promising. I am looking forward to more research on these therapies.
I was hoping the Maddys mom blog would have had more info about finding the cause of T1 and would have hoped that her doc would have put this theory out in a paper so that it could be proven or least researched some more.
I have a TON of articles/links as I’m sure everyone here does. Here’s a one that better supports what I was trying to convey http://www.healthcentral.com/diabetes/c/14/1390/beta-cell-explained
The blood testing is a food allergy/sensitivity test that tests for over 118 foods. If you want to know the specifics I can go find the RX and post it. We worked with Dr. Jerry Kartzinel on this.
The kiniseology is a muscle reflex test. Basically a muscle reaction to simply touching different foods… I know, sounds quacky! BUT it really does work, I went in skeptical and really watched the doctor and how it all worked, he was right on with my own proven allergies and everything he listed for Madison were things we had noted back home as having raised her blood sugar significantly. The doctor we worked with on this was Kim’s daughters doctor as well, Don Baker in Arizona. Unfortunately he passed away last year but his wife and peers are continuing his work at the House of Natural Medicine in AZ.
Yes, we have an Endo as well. We see him every 3 months and do her A1C at that time, my daughter takes her insulin Lantus and Humalog as prescribed by him, her dosages are not altered without his approval and she is tested 6-8 times per day, sometimes more. Because she is only 2 and she also stopped showing hi/lo symptoms we are very diligent about testing her and we test her throughout the night well when she tends to drop.
We have found Kim’s method to be very difficult because its like changing your whole life after a diagnosis that changed your whole life. When we follow the food therapy plan we’ve created for our daughter she almost immediately stops needing Lantus and only 1-3u of Humalog. Her typical doses on a day of “normal” kid food (yet still organic but includes dairy and grain) is 4.5u of Lantus and 6-10u of Humalog.
We have NOT been able to get completely off of insulin as Kim has done but we are working with her doctors on a plan to eliminate a stomach bacteria she’s had and using a probiotic among other supplements to heal the leaky gut which I believe she still has.
Again, these articles don’t prove the idea of spontaneous beta cell regeneration. Kim’s idea of “resting the pancreas” is not scientifically proven. I don’t feed my diabetic son tons of refined sugar and flour, but he does get to eat some semblance of the same diet as the rest of his family, but I would try anything if a “real” endocrinologist would support it. I don’t buy the whole food allergy thing and once your body’s immune system is sensitized to something it will continue to attack it.Once allergic always allergic. There is such a thing as desensitization (allergy shot principal) but you are still allergic you just react a little less intensely.
I know! They are working on it. Its tough because there is a lot of legal red tape with saying certain things and finding a way to put it out there is the biggest obstacle because it is so individualized. I wish it were as simple as saying DIET: eat this but unfortunately until we get more people on board that can help with research and that understand this process a bit better it is up to each individual.
I’m going to be working on my blog A LOT more in the coming year and focusing on the cause as well as putting together a pdf of step by step how to go through the testing and food therapy process but really need to get another organization to back us to really get some answers, working on that too! I have a ton of info to share just haven’t had the time with my very hyper diabetic 2 1/2 year old and being 8 months pregnant. I feel like I’m still recovering from her dx and that was a year and a half ago.
Anyway, thank you for the productive and civil exchange of info, these subjects can get touchy!
I don’t really get the idea of needing a “real” Endo or MD to support something before it can be viable. That’s just ridiculous to me, doctors are just people too, unfortunately they are people trained to make money off of treating disease not curing it or finding a cause. That doesn’t fly with me. I respect our doctors/Endo’s and take everything they say in to account in my daughters treatment but I’m also not afraid to challenge them and ask tough questions. You wouldn’t believe some of the things that respected doctors have told me about these food theories, legally they can’t say certain things but there have been instances that things have been hinted to me that I’m looking in the right direction.
Whether or not you feed your child tons of refined sugar and flour isn’t the point. That’s not what this theory is about, if you read above I explained it. What triggers an auto immune response in your sons body may not in my daughters. My daughter can eat apples all day long with no insulin and stay in normal range but yet if she eats one grape or a piece of cheese (from a cow) her bg skyrockets into the 300’s. What the “real” doctors told me was that cheese among other crap like Jello is a “free food” that will not require insulin if she consumes it while in a normal range, that NEVER was the case for us.
Also a food allergy is different from a food sensitivity, I apologize if I made them sound the same. Kim’s theory of “resting the pancreas” in my mind refers to removing the trigger foods that are causing the auto immune attack therefore stopping the attack on the new beta cells being produced and allowing them to work on their own. Certain foods can then (after at least a year) be worked back into the diet but for the most part a lot of those foods will always be a problem. So “once allergic always allergic” could be correct in a sense.
I can’t support the opinion that everything must be “scientifically proven” or doctor approved. I mean, this is not hurting the child in any way and while it would be great to have a “real” doctor back up all of these ideas just for the sake of making more people open to it that will never happen. There is no money in a treatment of this sort for them and the amount of money a medical cure will cause them to lose will be astronomical so that’s not likely either so what do we do just follow the medical industry like sheep or use common sense and the brains we were given (equally as good as the “real” doctors have) to figure out the cause?
In a conversation with my endocrinologist just last night, he said that in theory, you could manage diabetes by not feeding a child at all while maintaining basal insulin at a steady rate, because the body would break down body fat and muscle proteins to obtain glucose (“gluconeogenesis”) without going into ketoacidosis. I pointed out to him that this is basically a starvation diet, and he acknowledged that while it was a scientifically valid approach, that didn’t mean it was moral or ethical. So… this may work if the child is still in honeymoon, but it would not work unless there was some insulin going into the body to prevent ketoacidosis.
It’s called the scientific method. The ONLY way to prove anything is to do repeatable studies. Anecdotal evidence (it worked for me) is not science no matter how hard we want to believe it .
I don’t believefor one second that any of our doctors want to profit off our disease. Maybe the pharmaceutical and insurance companies do but I do not understand throwing your trust toward unprovable science. Your doctor should do a repeatable publishable study. If he and Kim and you really believe in this then you will want to prove it to the world in the way that the established medical community discovers breakthroughs.
Please see about getting your hypothesis tested and the results published.
late reply. how is a muscles reaction to food have anything to do w/ your digestive system? I’m sorry but I don’t get the link between the two.
scientifically proving this would go a long way in helping other T1s. proving your diet works and why it works would go a long way to discovering the cause and cures for T1.
This explains it fairly well http://www.synergistickinesiology.com/what_is_kinesiology.html
I feel a bit overwhelmed by the fact that everyone seems to be missing the point.
- It is not a “diet” it is eliminating foods that have been proven a a problem for you as an individual, you then remove those foods and include vitamins and supplements (again as needed for YOUR body determined by testing) and you make those changes.
- It is NOT starvation by any means and the body will not go into ketoacidosis. My child eats a healthy diet, no different than a healthy child in any family would eat. We eat tons of fresh fruit and veggies (including red potatoes), turkey, chicken, eggs, we bake muffins, cookies and cupcakes using almond or coconut flour and Stevia as a sweetener. We eat coconut ice cream, goat cheese, almond butter and milk, some brown rice and brown rice pastas, tofu etc… Does that sound like starvation? Our main focus is on eliminating those foods that my daughter tested badly to and buying fresh, quality grass fed and organic foods.
- We currently have 40 families testing or successfully using this process we are all doing our best to document everything we are doing but every child reacts differently to different foods which makes it impossible to create a one size fits all plan. As much as I would love to share this and help as many people as I can the bottom line is people have to be open to try it for themselves. I am only one Mom so without a lab and a team of experts behind me to give you the “scientific proof” you want is a long process and I have a child who must come first to me. The best I can do for now is document everything and share what I’ve learned and hope that more families give it a try and help fill in the things Kim and I still don’t fully understand. Dr. Baker was putting together an official study with all of these families but unfortunately he passed away last year. I can only hope that his colleagues can continue his work and get some solid answers to you guys who need that.
I also want to throw others that this method is very scientific, the fact that it hasn’t been proven by a scientist or doctor is a non issue for me. If you look at the way the body works, learn about leaky gut and food/toxins/bacteria crossing into the blood it’s simple common sense. There is a partial PDF on my blog that explains some of it.
What happened to the link in the original post. Why do these people and their links seem to disappear?
Is there one type1 member of tudiabetes that has gotten off of insulin from diet?
It would make sense to me to create a healthy diet then after you select what foods are in your diet you can figure out what the required insulin doses and types of insulin work for that particular diet.
Creating a diet based on a low insulin dose seems like backwards logic unless you are type2.
This woman is full of crap… As others have said… its quite possible that she was misdiagnosed as a type 2 or the predominantly low/no carb diet is keeping her honeymoon going for a little bit…
I mean, the whole starvation diet “worked” to some extent extending peoples lives before insulin but at what cost?
Shs a fraud. and hope someone is watching out for her daughter… this could turn for the worst…
I think, definitely, the word cure should not be used in this discussion.
What you are talking about is a diabetes management strategy. There are advantages and disadvantages to all types of approaches no matter how effective they might be at treating our broken metabolisms. Clearly, a lot of the resistance you are experiencing is to the the idea that, somehow, your strategy actually fixes our broken metabolism. Clearly, it does not. It just treats the synptoms. If you accept that premise, I think you’ll find people who are more open to discussion.
That being said, we can discuss how effective your strategy actually is. If the information on your page is up to date, you list an A1c of 9.8 for your child. I’m sure you love your child dearly and are honestly doing what you feel is best for your child’s care but, keeping in mind all the discussion in this forum regarding A1c testing, I still think that there are very few of us who would find those results acceptable. Based on that alone, I might as well be doing nothing for my own personal diabetes care because those are the kind of numbers I had when I hit rock bottom and would regularly skip testing and insulin doses before meals.
yeah that didn’t help. I’ll try to keep an open mind and await further results. take care and good luck
Over the years, there have been a number of people who have showed up claiming that they “cured” or at least “managed” their type 1 diabetes through diet. It is entirely feasible that someone who is newly diagnosed or is suffering from a huge inflamation could find relief with dietary changes and yes, possibly manage their emerging type 1 simply through diet for some period of time. In fact, before insulin, patients (usually children) were put on strict low/no carb starvation diets and they could live (not thrive) for years.
And in truth, diabetes is certainly aggravated by inflammation. If you have a terrible insensitivity to certain foods, it seems reasonable that if you remove the foods from your diet you could markedly reduce inflammation, reduce your insulin demands and achieve blood sugar control. Why couldn’t an emerging T1 find that they could go some period of time with such a diet and not need insulin?
I am open to believing that food sensitivities could affect the course of T1 diabetes. Dan Hurley talks about triggers in his book, and I am willing to keep an open mind. The problem that I have is that these are theories. But a single case does little to differentiate whether the diet makes a difference or whether this is just a honeymoon. And the real danger is that making claims that you can manage or cure T1 diabetes with diet can put people (and children) at risk. Even if we believe that this worked for one or two kids, suggesting this works in general can lead other parents to start their kids on these diets and stop insulin therapy. I know that is not what has been said, but that is how it will be heard.