So, I'm now into my 6th year of membership in the T1 club. Late onset at 39 years old. I'm 6'1" and 165lbs.
Most of the time I have been keeping my A1c under 6.2, generally around 5.8-6.0, which I'd like to lower a bit more but have been testing out eating MORE carbs the last few months (I'd been staying 50-60g/day before that with better A1c results, but I am always hungry so have been trying to eat more to see if I can alter that at all).
Anyway...I've been getting back to my reading up on long term issues for T1s and (much like for T2s) 99% of what is out there appears to be speaking about uncontrolled diabetes, or doesn't make it clear.
In a class of mine on internal medicine, we got a slide that stated that after ~20 years 100% of T1 patients develop retinopathy. That took me back a bit. 100% is a serious statement to make. 99% implies some don't, but 100% is...well.everyone.
So I started poking around the google again and found it almost stated elsewhere as well:
During the first two decades of disease, nearly all patients with type 1 diabetes and >60% of patients with type 2 diabetes have retinopathy.
So my questions to you are as follows:
- Is that true for retinopathy?
- Are any of you longer term controlled T1s not impacted by retinopathy?
- How about insulin resistance? Is it inevitable as well despite good control, physical activity, etc?
I certainly get that better control = better prognosis, and I'm not thinking of abandoning control, but I will be upset to learn that it is just a delay, not an avoidance of complications. Obviously every body is a different case, but am I just lying to myself by believing that good control means avoiding retinopathy, neuropathy, insulin resistance, etc?
Thanks for listening!