In the middle of 2018 I started seemingly having hypoglycemic episodes along with fatigue, lightheadedness, and a LOT of hunger, unbearable hunger sometimes and the hangry feelings that come with that. A meter showed I wasn’t actually going low, though. I’ve been on metformin since July (I have PCOS, so my doc let me try it as it helped friends with PCOS with similar issues) and an increasingly strict diet since then but no routine for those has kept my symptoms at bay for more than 2-3 weeks. In the middle of that time I went off the metformin for a week ahead of a 2-hour OGTT, which showed high 2-hour glucose, so I was diagnosed with pre-diabetes. I used a Libre for 2 weeks after restarting the metformin and it showed the levels evening out each day as my symptoms got better (then of course they got worse after a few more weeks). At times my symptoms have been so bad I was nearly bedridden.
My main issue now is that eating seems to really increase my symptoms, mainly at breakfast and lunch/mid-afternoon. Shortly after eating I often get shaky, STARVING, and have difficulty concentrating on work. It’s like I lose a chunk of IQ points; I sound like an idiot sometimes. It’s really, really embarrassing and unpleasant sometimes and doesn’t seem to be related to what food I’m actually eating. My blood sugar is controlled right now as long as I don’t stray from the diet too much and levels don’t seem to relate to my symptoms. Since I can’t alter my metformin in either direction without feeling worse, can’t diet any more strictly, and have symptoms in common with it, I pushed for LADA-related testing. I got my glucose, insulin, and c-peptide checked (non-fasting) and so far had 2 antibodies checked (happy to share specific #s if it would help - I also have some from the OGTT). The ones tested so far were GAD65 and ICA, and both were negative. I should be able to get the other 3 tested next week but I’m not holding out hope for a clear answer.
At this point I really feel like I have LADA given my symptoms and history (hypothyroidism, thin person given basically a T2 (pre in my case) diagnosis) and have no clue what else this could even be, but with normal glucose levels, albeit with metformin and strict eating, and so far negative antibodies, I’m afraid of how much longer dealing with these symptoms might go on. It’s really affecting my day-to-day life and I have a toddler I can’t do much with like this, which gets really depressing.
Did anyone here with LADA have anything like this early on or does it sound like I’m grasping at straws and have something else? The hunger is what’s really killing me. I even cut back on some of my daily eating because I’m better off having normal hunger from not having eggs before leaving the house or my afternoon snack than the post-eating mess they started causing. I know I need those calories though so this isn’t sustainable for very long - I’ve always been thin and have already lost a few pounds. It overall feels like my body can make insulin right now, if I eat well enough, but is really unhappy to be doing so (I realize that might sound crazy - hopefully people understand).
Finally, does anyone have advice for someone in my position, and long-shot - if anyone’s in Toronto could they recommend an endocrinologist? Mine seems to focus on T2. I don’t even know if they’re letting me do this bloodwork out of actually thinking it could be LADA or are just humouring me.
Thanks in advance for any help. I just want my normal life back