Does anyone have the MODY form of diabetes? I know there is a group but it is quite inactive.
I saw my PA today and we’ve come up with a diagnosis of exclusion. He initially thought I was type 1 but tested negative for antibodies. A 3 month trial of metformin did nothing to improve my fastings so we tried lantus. That did not help and even increased my fasting bs the more we increased the dose. I have been controlling my post meal bs by restricting high glycemic carbs.
Since I did not respond to weight loss, metformin, insulin, he thinks I have MODY 2 or MODY 3. Of course we won’t know exactly which one unless genetic testing is done but insurance probably won’t pay for that. We are doing a short trial of glyburide. If my fastings improve, most likely I have MODY 3. If not, MODY 2.
Has anyone else gone thru this! How did you end up getting treAted? This is nerve racking.
Thanks for any insight.